Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,397 members • 10,602 posts

All posts for January 2013

Professor Graham Hughes' December blog

Rain, rain, rain! The wettest year ever in the UK. Monica and I drove to Aberystwyth in distant west Wales to the funeral of my oldest friend John Hefin -...

Rain, rain, rain! The wettest year ever in the UK. Monica and I drove to Abe...

Hidden

•12 years ago

11 Replies

Sucess stories needed x

Hey all, I've lost 3 babies and would like to try again a year since the last one, I have been diagnosed with hughes so they will try me on heparin injections...

Hey all, I've lost 3 babies and would like to try again a year since the last on...

xxkellywxx

•12 years ago

9 Replies

neurologist

Well Ive been for appointment It was a woman consultant who did know all about Sneddons so that was good. Had to recite my medical history as she said would...

Well Ive been for appointment It was a woman consultant who did know all about ...

sharonap

•12 years ago

10 Replies

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Inr

I had heart valve replacement 9 months ago and on warfrain as I have a machanical heart valve I had a Tia last year my inr is set at 2.5 to 3.5 it's normally...

I had heart valve replacement 9 months ago and on warfrain as I have a machanica...

Sandyb123

•12 years ago

2 Replies

Had a preterm labor with lots of clots, and now a blood clot in arm. Possible APS?

I have had a myriad of symptoms. In July I began going into preterm labor with my daughter at 32 weeks. When the doctor was performing the c section, I...

I have had a myriad of symptoms. In July I began going into preterm labor with m...

Jen_1984

•12 years ago

8 Replies

Hello everyone. I'm new here.

So glad I found this site. I have APS and have been patient at the London Louise Coote Lupus clinic since 2001ish. Had my annual review there today and am...

So glad I found this site. I have APS and have been patient at the London Louise...

putterbunneh

•12 years ago

17 Replies

Anyone with Pulmonary Arterial Hypertension (PAH) and APS that started with high hypertension?

After I started Warfarin my hypertension has normalized. I have had a PAH-pressure of 50 the last two years. No breathlessness. Waiting for a...

After I started Warfarin my hypertension has normalized. I have had a PAH-pressu...

Hidden

•12 years ago

6 Replies

How long before improvements are seen?

How long after starting aspirin would you expect to see improvements in symptoms such as migraines, forgetfulness etc?

How long after starting aspirin would you expect to see improvements in symptoms...

Paleosooze

•12 years ago

5 Replies

Is there a link between APS and depression?

I'm thinking of depression as a direct symptom of APS rather than the depression that many of us with AI diseases end up with because it's so hard coping with...

I'm thinking of depression as a direct symptom of APS rather than the depression...

Paleosooze

•12 years ago

6 Replies

Drug interactions

Hi, I'm on warfarin and due to lots of things going on in my life at the moment, am very depressed. I've found out that loads of drugs & herbal alternatives...

Hi, I'm on warfarin and due to lots of things going on in my life at the moment,...

debatwistow

•12 years ago

2 Replies

Neurologist

have an appointment tomorrow with a neurologist, bet he knows nothing about sneddons or APS so im taking some documents with me about them. Feeling quite...

have an appointment tomorrow with a neurologist, bet he knows nothing about sned...

sharonap

•12 years ago

7 Replies

Thanks 4 the support :-)

I just wanna say thanks to all of you out,you've all helped me in so many... Thank you. All so very much :-) DZ

I just wanna say thanks to all of you out,you've all helped me in so many... Th...

lollie

•12 years ago

4 Replies

confusion and lonely

im so confused about hughes syndrome there is no information really that is avaliable i have symptoms but not sure if its the hughes or something else

im so confused about hughes syndrome there is no information really that is aval...

kimmi9

•12 years ago

27 Replies

aspirin for blood thinning but aggraves stomach ulcer

you have peptic ulcer and aspirin might cause this to bleed. You must continue the aspirin after having had a stent fitting so cannot discontinue use. Cant I...

you have peptic ulcer and aspirin might cause this to bleed. You must continue t...

geralddavies22

•12 years ago

6 Replies

DISABILITY LIVING ALLOWANCE

KB`S LIST is a useful web site, to keep you updated with news relating, to matters relating to barbaric disability cuts, along with housing and other welfare...

KB`S LIST is a useful web site, to keep you updated with news relating, to matt...

benkathie

•12 years ago

2 Replies

Do I need ongoing consultant support?

Hi all. I'm new to all this. I have coeliac s and hypothyroidism and lots of other symptoms. My sister has very similar symptoms to me and is under the care of...

Hi all. I'm new to all this. I have coeliac s and hypothyroidism and lots of oth...

Paleosooze

•12 years ago

10 Replies

Frustrated & confused

After recent stay in hospital, due to blackening little toe, & cut scans etc showed blood clots behind the knees etc drs decided that they wanted my inr to be...

After recent stay in hospital, due to blackening little toe, & cut scans etc sho...

lollie

•12 years ago

8 Replies

Winter bug

Can any explain why its taking twice as long to fight this winter cold bug thats doing its rounds. Had it since Christmas day and still got it now, I can not...

Can any explain why its taking twice as long to fight this winter cold bug thats...

KarenOR

•12 years ago

9 Replies

Success at last - blood tests positive - confirmation and relief!!!

Hi all - not too sure if you'll remember my posts regarding the struggles ive had with my sight/strokes/struggles to get recognised despite 5 tests of positive...

Hi all - not too sure if you'll remember my posts regarding the struggles ive ha...

emmaj

•12 years ago

13 Replies

Article and petition

Staffordshire in the UK was a scandalous situation, patients and medical staff alike were bullied for flagging up dreadful care. The paper attached to this...

Staffordshire in the UK was a scandalous situation, patients and medical staff a...

MaryF

Administrator•12 years ago

3 Replies

EEG

Well my "new" neuro had me go through yet another 24 hour EEG because of my seizure symptoms. I wasn't sure why b/c I had been through about 5 different types...

Well my "new" neuro had me go through yet another 24 hour EEG because of my seiz...

Willa

•12 years ago

1 Reply

APS and Lupus Genetic link?

Hi, I have APS, MS. Pernicious Anaemia. My Uncle who died aged 50 about 20 years ago had recurrent blood clots in his leg from age 30, the first...

Hi, I have APS, MS. Pernicious Anaemia. My Uncle who died aged 50 about 2...

anniesensi

•12 years ago

7 Replies

any1 knw

any1 read the article in the sun bout nurse diagnosed wit aps after 5 miscarriages..... a gd read also any suggestions on injection sites 4...

any1 read the article in the sun bout nurse diagnosed wit aps after 5 miscarriag...

rach1081985

•12 years ago

11 Replies

Livedo reticularis?

Could I just ask whether everyone has livedo? ( the 'corn beef' rash on legs and elbows) I was told at my rheumy appt. that it was highly unlikely that I have...

Could I just ask whether everyone has livedo? ( the 'corn beef' rash on legs and...

mitzygaynor

•12 years ago

9 Replies

The girl?

Does anyone know what happened to the girl that has the personal blog about living with APS? I have enjoyed reading it and she hasn't posted since October. I...

Does anyone know what happened to the girl that has the personal blog about livi...

Hollylewis

•12 years ago

1 Reply

Stuck in the mud :(

Long story short, I was on JSA and they told me to try for ESA because I was too sick to turn up to appointments, so I did, I had a medical last year and only...

Long story short, I was on JSA and they told me to try for ESA because I was too...

xxkellywxx

•12 years ago

3 Replies

Blood results back

Well this is the first time I have been tested by my GP I believe. I was tested by Tommys back in 2004 and Prof Hughes said we could get Anticardiolipn tests...

Well this is the first time I have been tested by my GP I believe. I was tested ...

Jade

•12 years ago

4 Replies

should i be taking aspirin?

after being diagnosed with a dvt last year and a positive aps antibody test doctors think i dont have aps, and have been taken off warfarin, but i am away on a...

after being diagnosed with a dvt last year and a positive aps antibody test doct...

carinab

•12 years ago

7 Replies

Finally found a hematologist

Hi all I had my 1st appt with a new hematologist referred to by my GP.. My husband and I liked him very much. He was well informed about APS and Lupus...

Hi all I had my 1st appt with a new hematologist referred to by my GP.. My husb...

strawberryblonde

•12 years ago

4 Replies

London Lupus Unit - patients being discharged

For those of you who have been treated at the Lupus Unit, please beware that there will be some major changes taking place. These changes have been on the...

For those of you who have been treated at the Lupus Unit, please beware that the...

Hidden

•12 years ago

11 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for January 2013

Professor Graham Hughes' December blog

Sucess stories needed x

neurologist

Inr

Had a preterm labor with lots of clots, and now a blood clot in arm. Possible APS?

Hello everyone. I'm new here.

Anyone with Pulmonary Arterial Hypertension (PAH) and APS that started with high hypertension?

How long before improvements are seen?

Is there a link between APS and depression?

Drug interactions

Neurologist

Thanks 4 the support :-)

confusion and lonely

aspirin for blood thinning but aggraves stomach ulcer

DISABILITY LIVING ALLOWANCE

Do I need ongoing consultant support?

Frustrated & confused

Winter bug

Success at last - blood tests positive - confirmation and relief!!!

Article and petition

EEG

APS and Lupus Genetic link?

any1 knw

Livedo reticularis?

The girl?

Stuck in the mud :(

Blood results back

should i be taking aspirin?

Finally found a hematologist

London Lupus Unit - patients being discharged

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