Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

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All posts for January 2013

Does anyone else suffer gastric problems?

I do, varying degrees of pain and symptoms, seen consultant 18 months ago, who wanted to perform surgery to remove gallbladder, but the anaesthetist refused,...

I do, varying degrees of pain and symptoms, seen consultant 18 months ago, who w...

swx3

•11 years ago

4 Replies

A very worrying reply from St Thomas' about the discharge of hundreds of patients.

I copy verbatim the body of a a letter I have received from St Thomas' in reply my December email to them about my discharge letter .. Dear Mr xxxxx...

I copy verbatim the body of a a letter I have received from St Thomas' in reply ...

tim47

•11 years ago

29 Replies

Graham Hughes' January 2013 blog

This year, 2013, is the 30th anniversary of our first description of the antiphospholipid syndrome, published in 1985 in the British Medical Journal and the...

This year, 2013, is the 30th anniversary of our first description of the antipho...

Hidden

•11 years ago

7 Replies

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Dental issues with aps

Has anyone else had dental health problems with aps? I have no end of problems my teeth just crumble away and have done for years gotta have six teeth out...

Has anyone else had dental health problems with aps? I have no end of problems...

hartnell5

•11 years ago

10 Replies

A question for the ladies

I was diagnosed with APS around a year ago.I am a man,as is probably obvious from my name and have 2 daughters.One was recently checked for APS in...

I was diagnosed with APS around a year ago.I am a man,as is probably obvious fro...

StevePT

•11 years ago

4 Replies

Pregnancy updated!

hello everyone. sorry I've not been in touch recently, life's just flown by of late. so pregnancy updated.... Well, things are progressing quite well. We...

hello everyone. sorry I've not been in touch recently, life's just flown by of l...

kateb81

•11 years ago

11 Replies

eye twitching driving me mad!

Hi all - the eye twitching has been going on constantly now for 10 days - i dont think others can see it thank god, though sometimes if i look in a mirror i...

Hi all - the eye twitching has been going on constantly now for 10 days - i dont...

emmaj

•11 years ago

3 Replies

I have found myself becoming more and more sensitive to heat, bath, hairdryer etc. For years

I have suffered from being cold all the time and this continues. Could these be part of APS. Thanks.

I have suffered from being cold all the time and this continues. Could these be ...

hmpowell

•11 years ago

4 Replies

Any understanding doctors in the West Mids?

Because St Thomas's discharged me immediately on diagnosis, I'm going to go and see Prof K privately, but I assume it would be a good idea to have a consultant...

Because St Thomas's discharged me immediately on diagnosis, I'm going to go and ...

Paleosooze

•11 years ago

3 Replies

Thank you

Hi everyone , i would just like to say thank you to everyone that has helped me on this website , i felt so alone before but now i feel that i have somewhere...

Hi everyone , i would just like to say thank you to everyone that has helped me ...

kimmi9

•11 years ago

7 Replies

Claim: Tetanus Vaccine Causes a New Disease Known as Antiphospholipid Syndrome

I came across this article today. http://healthimpactnews.com/2013/tetanus-vaccine-causes-a-new-disease-known-as-antiphospholipid-syndrome/ First I've...

I came across this article today. http://healthimpactnews.com/2013/tetanus-va...

tim47

•11 years ago

7 Replies

Is there aps and itp patients with their experience on the medication used?

Pertlov

•11 years ago

1 Reply

Neurologists and other health care professionals

I am ultra positive for all 3 antibodies associated with APS. Have suffered PE's and several DVTs. Have also just taken early retirement at 53 from a very high...

I am ultra positive for all 3 antibodies associated with APS. Have suffered PE's...

Barnet

•11 years ago

16 Replies

Feeling so tired

Hi guys I am feeling so tierd spent 7 hours in hospital Sunday with chest pain to find out my INR was 2.3 when my range is 3-3.5 the doctor said everything was...

Hi guys I am feeling so tierd spent 7 hours in hospital Sunday with chest pain t...

noodlesrita123

•11 years ago

7 Replies

APS and arthritis

hi everyone i hope know one minds me asking this question !! What is the link between APS and arthritis and how does it work ?? im only in my first yr of...

hi everyone i hope know one minds me asking this question !! What is the link be...

kimmi9

•11 years ago

7 Replies

help needed

Hi I am new here and are a little confused, I recently had a pulmonary embolism, which the doctors put down to having a broken foot, but after reading things...

Hi I am new here and are a little confused, I recently had a pulmonary embolism,...

darceynjo

•11 years ago

8 Replies

Thyroid test

Really down at the moment as totally exhausted and fit for nothing. I am going to see my GP next week to ask about another thyroid test but I have had...

Really down at the moment as totally exhausted and fit for nothing. I am going ...

panda60

•11 years ago

4 Replies

How do other APS sufferers hold down a job?

How do other APS sufferers hold down their job? I have recently changed my job which is now a lot more office based and involves a lot of decision making....

How do other APS sufferers hold down their job? I have recently changed my job w...

Grudgings

•11 years ago

17 Replies

Does skin texture changes have anything to do with APS? I think my Reumy said to watch for changes in skin texture.

jean48

•11 years ago

2 Replies

help me

any1 knw alternatives to warfrin and fragmin......... i dont tolerate warfrin well and dont fancy injecting life long...... waiting on a consultant appointment...

any1 knw alternatives to warfrin and fragmin......... i dont tolerate warfrin we...

rach1081985

•11 years ago

6 Replies

Is APS hereditary?

I was diagnosed 4 yrs ago. Nobody seems to know if APS is hereditary. My son who's 16 has started to get migraines with arm/finger numbness, vision distortion...

I was diagnosed 4 yrs ago. Nobody seems to know if APS is hereditary. My son who...

debatwistow

•11 years ago

7 Replies

Infertility - treatment?

Hi, I was diagnosed with APS by Professor Reagan at St Mary's after 4 miscarriages. I found it difficult to even get pregnant each time, and have been trying...

Hi, I was diagnosed with APS by Professor Reagan at St Mary's after 4 miscarriag...

Northy81

•11 years ago

6 Replies

I am so tired of everything at the moment.

Hi Everybody. I'm feeling really sorry for myself at the moment. I am so tired or could even say I feel exhausted. Every bone in my body hurts. I look like...

Hi Everybody. I'm feeling really sorry for myself at the moment. I am so tired...

InSpain

•11 years ago

27 Replies

Finally updated my blog, Life With APS.....

Yeah sorry I haven't been on here too much, hoping to change that soon. Just life has been harder than ever lately and I seem to pull away from people and...

Yeah sorry I haven't been on here too much, hoping to change that soon. Just lif...

Hidden

•11 years ago

10 Replies

I am going to be travelling quite a lot this year and was wondering about the cost of Coaguchek in England. In Canada it is too expensive.

CountryGirl

•11 years ago

13 Replies

Aspergillus fumigatus and chronic eosinophilic pneumonia

Looks like I have my diagnosis now: chronic eosinophilic pneumonia, with aspergillus fumigatus fungus. I suspect the fungus, along wth Sjogren's, is the cause....

Looks like I have my diagnosis now: chronic eosinophilic pneumonia, with aspergi...

Coppernob

•11 years ago

13 Replies

relief finally

thanks to this web site i am finally dizzyless. i told doctors about a medication that was listed here that aided people with aps and dizzyness. i finally got...

thanks to this web site i am finally dizzyless. i told doctors about a medicatio...

packerfan

•11 years ago

2 Replies

Does anyone else get restless legs and arms?

I have had restless legs and arms since diagnosis. I am now on pramipexol. I started to get times when my whole body would be twitching. I am no longer on...

I have had restless legs and arms since diagnosis. I am now on pramipexol. I s...

Mystynzl

•11 years ago

10 Replies

no mentions of some of my medication

i have had Hughes for the last ten years and feel relativly stable with things but after reading some of the blogs and stuff i am confused about differing...

i have had Hughes for the last ten years and feel relativly stable with things b...

jerryc

•11 years ago

4 Replies

mobility problems

Hi everyone i wonder if anyone else out there has mobility problems due to hughes ? some days im so tired i can hardly stay awake , sometimes im in lots of...

Hi everyone i wonder if anyone else out there has mobility problems due to hughe...

kimmi9

•11 years ago

20 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for January 2013

Does anyone else suffer gastric problems?

A very worrying reply from St Thomas' about the discharge of hundreds of patients.

Graham Hughes' January 2013 blog

Dental issues with aps

A question for the ladies

Pregnancy updated!

eye twitching driving me mad!

I have found myself becoming more and more sensitive to heat, bath, hairdryer etc. For years

Any understanding doctors in the West Mids?

Thank you

Claim: Tetanus Vaccine Causes a New Disease Known as Antiphospholipid Syndrome

Is there aps and itp patients with their experience on the medication used?

Neurologists and other health care professionals

Feeling so tired

APS and arthritis

help needed

Thyroid test

How do other APS sufferers hold down a job?

Does skin texture changes have anything to do with APS? I think my Reumy said to watch for changes in skin texture.

help me

Is APS hereditary?

Infertility - treatment?

I am so tired of everything at the moment.

Finally updated my blog, Life With APS.....

I am going to be travelling quite a lot this year and was wondering about the cost of Coaguchek in England. In Canada it is too expensive.

Aspergillus fumigatus and chronic eosinophilic pneumonia

relief finally

Does anyone else get restless legs and arms?

no mentions of some of my medication

mobility problems

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