Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,351 members • 10,539 posts

All posts for February 2016

New procedure, approved by NICE for the mechanical removal of blood clots on the NHS

http://www.nice.org.uk/news/article/nice-greenlights-clot-removal-procedure-for-use-on-nhs?utm_source=NICE+Newsletter&utm_campaign=4291addb46-NICE+News+February

http://www.nice.org.uk/news/article/nice-greenlights-clot-removal-procedure-for-...

MaryF

Administrator•8 years ago

3 Replies

Tia unconfirmed really confused

Hi 2 weeks ago I had my 4th dvt and then on Friday I appeared to suffer with a TIA. I spent all day in accident and emergency. My blood pressure was high on...

Hi 2 weeks ago I had my 4th dvt and then on Friday I appeared to suffer with a T...

Serenstar

•8 years ago

4 Replies

Rare Disease Day - Hughes Syndrome

Tomorrow is Rare Disease Day. As many will know, Hughes Syndrome is classed as a Rare Disease. Here is the information that is published on the website of the...

Tomorrow is Rare Disease Day. As many will know, Hughes Syndrome is classed as a...

purple

•8 years ago

10 Replies

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Antibodies?

I have hypothyroidism. I also tested positive for anticardiolipin for APS. Have to go for 2nd test still. When I 1st started on synthroid helped but now sptoms...

I have hypothyroidism. I also tested positive for anticardiolipin for APS. Have ...

Nanny23

•8 years ago

5 Replies

Sore joints

Hi everyone I am having sore joints in my shoulder, back, hip & knee. I am wondering if any one else has had this happen to them and what I can take to ease...

Hi everyone I am having sore joints in my shoulder, back, hip & knee. I am wonde...

johnlane

•8 years ago

9 Replies

Vission: Floaters?

Greetings, This will be my first post. I am hoping for some information and help, regarding side effects and vision. I apologize for the long length. My...

Greetings, This will be my first post. I am hoping for some information and hel...

maybe61

•8 years ago

5 Replies

Lightheadedness

Hello again, I have another question to ask 🙂 Does anyone of you experience dizziness or lightheadedness? Several times everyday I have that, often in the...

Hello again, I have another question to ask 🙂 Does anyone of you experience diz...

Anjdur

•8 years ago

21 Replies

Aps and pregnancy

Hey I'm new to this I have Hughes and have suffered 9 miscarriages well here I am again I'm currently 7 wks and have never been so scared I went Dr today and...

Hey I'm new to this I have Hughes and have suffered 9 miscarriages well here I a...

Chellebean

•8 years ago

6 Replies

Checking-the Hughes meeting

I am flying in from California, USA. Is the Hughes meeting still 18May 2014. What is the time? Designer16

I am flying in from California, USA. Is the Hughes meeting still 18May 2014. Wha...

designer16

•8 years ago

3 Replies

Early miscarriages Hughes?

Anyone have recurrent early miscarriages at 4ish weeks and find out it was Hughes? If so were you successful after meds ? Thanks

Anyone have recurrent early miscarriages at 4ish weeks and find out it was Hughe...

Hidden

•8 years ago

19 Replies

Possible Hughes?

Hi, I have had a blood test for Hughes 3 weeks ago. I have another 3 weeks to go for results. My symptoms include : 5 very early recurrent miscarriages Cold...

Hi, I have had a blood test for Hughes 3 weeks ago. I have another 3 weeks to go...

Hidden

•8 years ago

19 Replies

Rash

Has anyone developed any skin conditions? My eyebrow, forearm, hand & foot itch like crazy!! All is happening on left side of my body. They have tiny little...

Has anyone developed any skin conditions? My eyebrow, forearm, hand & foot itch ...

GirlfromTennessee

•8 years ago

8 Replies

Why cant I stop worrying

Hi, today was my first day of injecting myself with heparin (I am taking innohep) and 75mg aspirin a day, I am literally just pregnant at 4weeks and 5 days, I...

Hi, today was my first day of injecting myself with heparin (I am taking innohep...

katemurray1985

•8 years ago

11 Replies

Update from surgery

Hi all!! As promised, here is an update after my surgery. The procedure went very well, the doctor placed rods and screws in my back...very little blood loss...

Hi all!! As promised, here is an update after my surgery. The procedure went ve...

becca10

•8 years ago

19 Replies

APS mentioned on Holby City Hospital T.V programme

Sitting watching Holby and a case of DVT arrives, after tests the patient is diagnosed with APS. Word must be getting around for a well known T.V shown to...

Sitting watching Holby and a case of DVT arrives, after tests the patient is dia...

JoJo0405

•8 years ago

5 Replies

Hughes Syndrome/APS on Holby City tonight

Here I am having a low key evening watching the tv, on comes Holby City, and a patient in bed with Antiphospholipid Syndrome. MaryF...

Here I am having a low key evening watching the tv, on comes Holby City, and a p...

MaryF

Administrator•8 years ago

1 Reply

Sojerns

I just got to say, no doctor told me to get tested for Sojerns! I just went to my eye doc said I had APS & had symptoms of Sojerns & wanted to be tested! I...

I just got to say, no doctor told me to get tested for Sojerns! I just went to m...

Debbweb01

•8 years ago

6 Replies

Ideas of how to increase Salt Intake

Hello - Dr has rx'd increased sodium - 2-4 t a day (to treat low BP). I have been trying different things.....Salting food just doesn't get me to this req...

Hello - Dr has rx'd increased sodium - 2-4 t a day (to treat low BP). I have be...

JDMiller

•8 years ago

19 Replies

Sojerns another collectible autoimmune disease!

Hi there! Been out of the loop lately as I've been sleeping a lot! A bit of walking here n there! Was feeling good one day and decided to walk 4 blocks! It was...

Hi there! Been out of the loop lately as I've been sleeping a lot! A bit of walk...

Debbweb01

•8 years ago

7 Replies

Professor Khamashta and Gluten

Hello, I have APS (actually most of my paternal family has APS). I'm curious about the posts mentioning Professor Khamashta advocating a gluten free diet. I'm...

Hello, I have APS (actually most of my paternal family has APS). I'm curious ab...

Hidden

•8 years ago

2 Replies

Gangrus apendixates

Got aps symdrome had major stroke 2011 then two years after had Gangrus apendixates and bi lateral phnewmonia was in intensive care unit for 4 days on life...

Got aps symdrome had major stroke 2011 then two years after had Gangrus apendixa...

Tim_Thorpe

•8 years ago

3 Replies

Still no dx

I've been seeing a rheumatologist for about 4 months, after my General Dr. Referred me. She did bloodwork that revealed positive ANA of 1:320, among other...

I've been seeing a rheumatologist for about 4 months, after my General Dr. Refer...

mariannagowens

•8 years ago

4 Replies

I know this is for Hughes syndrome but I was told you can help me I have polycystic ovaries and factor v Leiden can I still get pregnant.

Hi I have recently been diagnosed with polycystic ovaries and Factor V Leiden and i have been trying to get pregnant with my partner for two years now and...

Hi I have recently been diagnosed with polycystic ovaries and Factor V Leiden an...

kristina281192

•8 years ago

10 Replies

How do you cope APS?

Hi, I have been diagnosed with APS 8 months ago after a stroke. I am on warfarin and now also on Clopidogrel after having two TIAS. I am so scared of this...

Hi, I have been diagnosed with APS 8 months ago after a stroke. I am on warfari...

Anjdur

•8 years ago

26 Replies

Introduction and a query

I received an APS diagnosis early this morning. It caught me completely off guard. I spent a good bit of time today doing the google research thing. I'm more...

I received an APS diagnosis early this morning. It caught me completely off guar...

JossMiller

•8 years ago

13 Replies

Help!

I cane home from surgery with a catheter fitted. Woke up rosay with bag full of blood. inr is 3.2 -gave been on clexane 100mg alongside warfarin since op Am...

I cane home from surgery with a catheter fitted. Woke up rosay with bag full of ...

Fusch

•8 years ago

10 Replies

Mixed Connective Tissue Disease

Hi there, I was diagnosed with APS & Sjogrens back in 2008, although at the time the Specialist said he thought I had Mixed Connective T.D., no bloods or...

Hi there, I was diagnosed with APS & Sjogrens back in 2008, although at the tim...

Zamalek

•8 years ago

2 Replies

Scared need oral surgery

Ok I have issues with my mouth( got a big mouth LOL...) I need at least 10 teeth pulled! I'm scared to death! The last time I had a wisdom tooth pulled my jaw...

Ok I have issues with my mouth( got a big mouth LOL...) I need at least 10 teeth...

Debbweb01

•8 years ago

12 Replies

Lecithin and APLS

Hi, Does anybody know if it's ok (or even beneficial) for a Hughes Syndrome sufferer to take powdered Lecithin/supplements? Lecithin is supposedly an aid to...

Hi, Does anybody know if it's ok (or even beneficial) for a Hughes Syndrome suf...

Clotia

•8 years ago

26 Replies

Bovine colostrum

Has anyone taken and benefitted from bovine colostrum? Just read it's a supplement good for people with auto immune diseases. They take it from cows after...

Has anyone taken and benefitted from bovine colostrum? Just read it's a suppleme...

Nanny23

•8 years ago

22 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for February 2016

New procedure, approved by NICE for the mechanical removal of blood clots on the NHS

Tia unconfirmed really confused

Rare Disease Day - Hughes Syndrome

Antibodies?

Sore joints

Vission: Floaters?

Lightheadedness

Aps and pregnancy

Checking-the Hughes meeting

Early miscarriages Hughes?

Possible Hughes?

Rash

Why cant I stop worrying

Update from surgery

APS mentioned on Holby City Hospital T.V programme

Hughes Syndrome/APS on Holby City tonight

Sojerns

Ideas of how to increase Salt Intake

Sojerns another collectible autoimmune disease!

Professor Khamashta and Gluten

Gangrus apendixates

Still no dx

I know this is for Hughes syndrome but I was told you can help me I have polycystic ovaries and factor v Leiden can I still get pregnant.

How do you cope APS?

Introduction and a query

Help!

Mixed Connective Tissue Disease

Scared need oral surgery

Lecithin and APLS

Bovine colostrum

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