Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,351 members • 10,538 posts

All posts for June 2014

Radio interview - The Science of the mind, including stroke recovery: Andrew Marr

http://www.bbc.co.uk/programmes/b047wnyf MaryF

MaryF

Administrator•10 years ago

1 Reply

Tour De France ride for Hughes Syndrome!

Hello again my fellow ASP friends. I thought I would just do a last minute plug for my fabulous husband and the big bike ride he is doing. As some of you...

Hello again my fellow ASP friends. I thought I would just do a last minute plug...

kateb81

•10 years ago

2 Replies

warfarin courses britel bones and ostporosis

I read a report done in holand and America, stating a fit 40 year old male taking warfarin for one year has a 63% higher chance of getting brital bone, when I...

I read a report done in holand and America, stating a fit 40 year old male takin...

ainsleytidd

•10 years ago

23 Replies

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part of Dr Martin Scurr's ongoing column

The reason I put this article on, apart from the fact that he gave up his free time to come along to our last Patient's Day at St Thomas', is simply on...

The reason I put this article on, apart from the fact that he gave up his free t...

MaryF

Administrator•10 years ago

2 Replies

A post by KateH off the HSF Facebook page: Infertility and testing in pregnancy

I thought it would be a good idea to put this on here: New research indicates that fertility problems are caused by antiphospholipid antibodies (aPL), and...

I thought it would be a good idea to put this on here: New research indicates ...

MaryF

Administrator•10 years ago

9 Replies

MRI Letter

Good afternoon everyone. Some of you will know I have been waiting for appointments and results from tests etc. Today I received a letter from the...

Good afternoon everyone. Some of you will know I have been waiting for appointme...

crista1

•10 years ago

37 Replies

Trouble with the weather

Hi everyone, not very well at the moment, the weather is playing havoc with my body. I am really having a lot of problems when out in the sun,I don't go out...

Hi everyone, not very well at the moment, the weather is playing havoc with my b...

Elfie1

•10 years ago

5 Replies

Factor V Leiden plus high LDL cholesterol exponentially increases atherosclerosis

Article: "they found that the risk of carotid atherosclerosis rose exponentially with increasing serum LDL cholesterol concentrations in nondiabetics with the...

Article: "they found that the risk of carotid atherosclerosis rose exponentiall...

Tranquility1

•10 years ago

9 Replies

What causes an INR to drop after it has been normal for multiple months in a row?

I was just recently diagnosed with APS after an event of cerebral venous thrombosis at age 30. I have been on coumadin for a few months with my INR being...

I was just recently diagnosed with APS after an event of cerebral venous thrombo...

Hidden

•10 years ago

13 Replies

Does being on Warfarin mean I will have no further problem with Hughes Syndrome?

I have a clot in my subclavian artery and have been diagnosed with Hughes Syndrome and have been on warfarin for two years, . Is it reasonable to assume I will...

I have a clot in my subclavian artery and have been diagnosed with Hughes Syndro...

PGNYC

•10 years ago

15 Replies

Hello all, I was very recently diagnosed with Hughes's. Can anyone advise whether insurance companies class this as a critical illness? Ta:)

DaveyG

•10 years ago

16 Replies

Inr all over the place on warfrin for aps resulting in vertigo symptoms. R there any other meds to help this??? Im struggling alot with this

gemgemz

•10 years ago

35 Replies

Follow up to Appointment

Greetings everyone. I had an appointment earlier this month with an internal medicine doc whose specialty is hematology. I gave him a run down of what had...

Greetings everyone. I had an appointment earlier this month with an internal me...

Preserved

•10 years ago

25 Replies

Prothrombin fragment 1 + 2 blood test indicates future thrombosis or miscarriage in those w APS.

Old study - but new to me. I have high Prothrombin Fragment 1+2. It means I live in a hypercoaguable state. Both APS and also Factor V Leiden can cause high...

Old study - but new to me. I have high Prothrombin Fragment 1+2. It means I li...

Tranquility1

•10 years ago

4 Replies

Crazy debilitating fatigue then bursts of energy?

Hello everyone! Does anyone else have crazy debilitating fatigue and then bursts of energy when you try to catch up on all the chores you missed along the...

Hello everyone! Does anyone else have crazy debilitating fatigue and then burst...

Tranquility1

•10 years ago

10 Replies

Coming off blood thinners before birth.

I am now 35 weeks pregnant and have been on 150mg aspirin and fragmin throughout pregnancy. Baby is growing well and so the plan is to come off my aspirin at...

I am now 35 weeks pregnant and have been on 150mg aspirin and fragmin throughout...

starships

•10 years ago

10 Replies

A round up of articles from the UK press

1. http://www.dailymail.co.uk/health/article-2661883/Take-music-stroke-Playing-instrument-improve-recovery-patients-spatial-awareness-problems.html 2....

1. http://www.dailymail.co.uk/health/article-2661883/Take-music-stroke-Play...

MaryF

Administrator•10 years ago

2 Replies

Getting very anxious now.

Just gone into my 37th week of pregnancy, never thought I'd get this far and hopefully being induced in 10 days time. I received a birth plan through the post...

Just gone into my 37th week of pregnancy, never thought I'd get this far and hop...

Hopingforababy

•10 years ago

11 Replies

Have any of you been diagnosed with small vessel disease as well as the Hughes. I believe this means we could develop vascular dementia .

Has the Hughes caused the small vessel disease, and the memory problems could be the start of vascular dementia.??/

Has the Hughes caused the small vessel disease, and the memory problems could be...

Zamalek

•10 years ago

15 Replies

Hi just wondering if anyone has managed to get the dreaded PIP while working part time. I have been off sick for a year and have been told I

am only allowed to go back part time. I also have fibro and query ankylosing spondulitis and am of course a good day bad day person but thanks to the pain...

am only allowed to go back part time. I also have fibro and query ankylosing spo...

sangje

•10 years ago

4 Replies

I am curious how many, if any, are diagnosed with both factor V leiden and Hughes Syndrome? Is there a common "co-diagnosis"?

#factorvleiden #hughessyndrome

PamZ

•10 years ago

11 Replies

Transplant Optimisation Trial - fall out

Hi - just thought I'd share this, I wrote it to explain to a relative what was happening. I know it is more about my transplant than the APS, but someone...

Hi - just thought I'd share this, I wrote it to explain to a relative what was h...

Hidden

•10 years ago

15 Replies

Exercising and Horse riding with lupus anticoagulant

Can anybody tell me if they still exercise daily and in particular Horse ride. My surgeon and consultant last year told me my lifestyle would be different( I...

Can anybody tell me if they still exercise daily and in particular Horse ride. M...

Kittybaker

•10 years ago

22 Replies

Stroke risk tied to cold, humidity & weather swings

As I get older, I keep having to unlearn many of the things I was taught early on. For example, as a child I was taught that what appears to be sinus pressure...

As I get older, I keep having to unlearn many of the things I was taught early o...

Tranquility1

•10 years ago

2 Replies

Woman videos own stroke to get doctors to believe.

A woman in Canada believed she was having a stroke. By the time she got to the hospital the symptoms had disappeared and the doctors said it wasn't a stroke....

A woman in Canada believed she was having a stroke. By the time she got to the ...

Tranquility1

•10 years ago

2 Replies

Blood tests

Think I have reached the end of the line with my NHS appts after being discharged again from the unit a few months ago I emailed my consultants secretary twice...

Think I have reached the end of the line with my NHS appts after being discharge...

donnabrain

•10 years ago

12 Replies

Originally diagnosed with Lupus which has now been changed to Hughes. My IGM is 114 but I have not been put on any medication-

I am wondering if I need to be on any medication. Is it only if you have had a clot that you are put on medication? any help would be appreciated. Much......

I am wondering if I need to be on any medication. Is it only if you have had a c...

JOEW

•10 years ago

9 Replies

An article off HSF charity Facebook page Strokes in the young are rising!

http://www.washingtonpost.com/national/health-science/strokes-long-on-the-decline-among-the-elderly-are-rising-among-younger-adults/2014/06/16/f1f54538-e5d9-11e

http://www.washingtonpost.com/national/health-science/strokes-long-on-the-declin...

MaryF

Administrator•10 years ago

2 Replies

Im on warfrin and my target is 3 and its not sticking at this. Does anyone else feel lightheaded when u r not target? Does this get easier??

I am new to all this so any help or advise would b very much appreciated. Thank u!!!!!!

I am new to all this so any help or advise would b very much appreciated. Thank ...

gemgemz

•10 years ago

7 Replies

Has another had problems with taking blood pressure medication?

When I have tried to take blood pressure medications like Cozaar I swell up w/fluid, I get very nervous, to the point I can't stand myself. Then I get symptoms...

When I have tried to take blood pressure medications like Cozaar I swell up w/fl...

designer16

•10 years ago

4 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for June 2014

Radio interview - The Science of the mind, including stroke recovery: Andrew Marr

Tour De France ride for Hughes Syndrome!

warfarin courses britel bones and ostporosis

part of Dr Martin Scurr's ongoing column

A post by KateH off the HSF Facebook page: Infertility and testing in pregnancy

MRI Letter

Trouble with the weather

Factor V Leiden plus high LDL cholesterol exponentially increases atherosclerosis

What causes an INR to drop after it has been normal for multiple months in a row?

Does being on Warfarin mean I will have no further problem with Hughes Syndrome?

Hello all, I was very recently diagnosed with Hughes's. Can anyone advise whether insurance companies class this as a critical illness? Ta:)

Inr all over the place on warfrin for aps resulting in vertigo symptoms. R there any other meds to help this??? Im struggling alot with this

Follow up to Appointment

Prothrombin fragment 1 + 2 blood test indicates future thrombosis or miscarriage in those w APS.

Crazy debilitating fatigue then bursts of energy?

Coming off blood thinners before birth.

A round up of articles from the UK press

Getting very anxious now.

Have any of you been diagnosed with small vessel disease as well as the Hughes. I believe this means we could develop vascular dementia .

Hi just wondering if anyone has managed to get the dreaded PIP while working part time. I have been off sick for a year and have been told I

I am curious how many, if any, are diagnosed with both factor V leiden and Hughes Syndrome? Is there a common "co-diagnosis"?

Transplant Optimisation Trial - fall out

Exercising and Horse riding with lupus anticoagulant

Stroke risk tied to cold, humidity & weather swings

Woman videos own stroke to get doctors to believe.

Blood tests

Originally diagnosed with Lupus which has now been changed to Hughes. My IGM is 114 but I have not been put on any medication-

An article off HSF charity Facebook page Strokes in the young are rising!

Im on warfrin and my target is 3 and its not sticking at this. Does anyone else feel lightheaded when u r not target? Does this get easier??

Has another had problems with taking blood pressure medication?

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