Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for November 2019

Happy Turkey Day to all the partake .

Happy Thanksgiving to all here in the States and those out there if so apply . Good excuse to eat a lot !!

Happy Thanksgiving to all here in the States and those out there if so apply . ...

jetjetjet

•5 years ago

5 Replies

Eliquis/Coumadin

Hi to you all I am new here but not new to APS. I was diagnosed with Protein S deficiency in 2008. My doctor put me on a baby aspirin a day. I had three...

Hi to you all I am new here but not new to APS. I was diagnosed with Protein S ...

jsb0410

•5 years ago

27 Replies

HAPPY BIRTHDAY Professor Graham Hughes!

Today is Professor Hughes' birthday, Happy Birthday Prof! Photograph courtesy of one of our members! MaryF

Today is Professor Hughes' birthday, Happy Birthday Prof! Photograph courtesy o...

MaryF

Administrator•5 years ago

18 Replies

Want to take advantage of all our features? Just log in!

Eloquis

Hubby hates the warfarin and found a doc willing to give him Eloquis. He was so happy while it lasted. He wound up, about 3 weeks later, with a numb face and...

Hubby hates the warfarin and found a doc willing to give him Eloquis. He was so ...

Debbiesue63

•5 years ago

35 Replies

Almost done the testing .

Went on 11/22/19 for the MRV and MRA , MRI and x-rays of Hip and pelvic bilateral . all but one test done , one of the MRA couldn't be done the...

Went on 11/22/19 for the MRV and MRA , MRI and x-rays of Hip and pelvic bila...

jetjetjet

•5 years ago

8 Replies

Hello again

Happy Sunday to everyone! Here I am back on my sofa dizziness weakness in legs I'm starting to see a pattern if I go out and drive the next 2 or 3 days I'm...

Happy Sunday to everyone! Here I am back on my sofa dizziness weakness in legs ...

Eriewa1

•5 years ago

5 Replies

Recent APS diagnosis and eye issues

Hi, I wondered if anyone might have experienced similar issues with their eyes and APS? The brief back story is that in Sept 18 aged 35, I was hospitalised...

Hi, I wondered if anyone might have experienced similar issues with their eyes ...

emma1210

•5 years ago

8 Replies

APS, pregnancy and getting the flu shot?

Hi Everyone I hope you are all well. Well, I've made it to 12 weeks and all was looking positive so far on my last scan this week - baby is measuring 12...

Hi Everyone I hope you are all well. Well, I've made it to 12 weeks and all was...

Hollyhughes

•5 years ago

9 Replies

Newbie .. follow up

So following on from my previous long post, I had my telephone consult with the lupus unit tonight so wanted to update. Apparently between the blood test...

So following on from my previous long post, I had my telephone consult with the...

Mifford

•5 years ago

9 Replies

Better from Pneumonia, but exhausted

Hi just want to say hi to everyone! Want to wish Mary and Kirstin a speedy recovery and hope you stay! Well!!! My thoughts and prayers with you always! I’m...

Hi just want to say hi to everyone! Want to wish Mary and Kirstin a speedy recov...

Debbweb01

•5 years ago

6 Replies

Parathyroid question

Hi everyone. I'm not very good at internet. I'm under care of a listed APS specialist. North East UK. Didn't see her last week but a registrar who didn't have...

Hi everyone. I'm not very good at internet. I'm under care of a listed APS spec...

Cinn987

•5 years ago

2 Replies

Hearing issues

Hi, does anyone have issues with hearing especially in noisy places. It appears to be a focusing issue as my hearing tests were all ok. Thought it may...

Hi, does anyone have issues with hearing especially in noisy places. It appears ...

Jolevans

•5 years ago

3 Replies

Low mood, Eye problems and pain in arm

Just feel the need to let off steam really. After having been diagnosed with Fuchs dystrophy a year ago I now find I have constant red eyes they are watery...

Just feel the need to let off steam really. After having been diagnosed with Fu...

Molly100

•5 years ago

3 Replies

Test results questions

Hi, I just recently found this forum and have some concerns. Over the past few years I've had very bizarre and troubling symptoms and have been to doctors...

Hi, I just recently found this forum and have some concerns. Over the past few...

Anony813

•5 years ago

9 Replies

Multivitamin

Anyone have a recommendation on a multivitamin that is okay to take with warfarin? I feel I would benefit from one especially since my hair is falling out due...

Anyone have a recommendation on a multivitamin that is okay to take with warfari...

LaciSelph

•5 years ago

9 Replies

A useful read- vitamin D

Pathogenic and Therapeutic Role of Vitamin D in Antiphospholipid Syndrome Patients...

Pathogenic and Therapeutic Role of Vitamin D in Antiphospholipid Syndrome Pati...

MaryF

Administrator•5 years ago

6 Replies

Www

If one patient had lupus SLE ....in early detection in time when first symptoms appears.... he/she live long i.e up to 30 to 40 years of time with...

If one patient had lupus SLE ....in early detection in time when first symptoms ...

bhaskar2boda

•5 years ago

5 Replies

Tell me

Any body aps patient have positive ANA test i.e at the time of aps diagnosis

bhaskar2boda

•5 years ago

4 Replies

Hai

Can aps syndrome patient have positive ANA test......and symptoms free of lupus so that why am asking question is .....in 2013 am diagnosed with acL igm...

Can aps syndrome patient have positive ANA test......and symptoms free of lupus ...

bhaskar2boda

•5 years ago

11 Replies

Can you have Sjogrens without an APS diagnosis?

I thought you had to have APS in order to have Sjögrens but i see another post as this not the case. Please educate me

I thought you had to have APS in order to have Sjögrens but i see another post a...

Wittycjt

•5 years ago

8 Replies

CoaguCheck xs testing strips

Hi to all. I do hope today is a good day! Has anyone found a place 2 get coaguCheck xs testing strips at a affordable price? If so please send me the online...

Hi to all. I do hope today is a good day! Has anyone found a place 2 get coaguC...

SoulRebel-APS

•5 years ago

16 Replies

Update after latest Guys appointment.

It maybe that I say goodbye to all here as I’m being taken off warfarin as although I am lupus anti positive in all but one blood tests both the professor and...

It maybe that I say goodbye to all here as I’m being taken off warfarin as altho...

Greenmil3

•5 years ago

9 Replies

APS and myasthenia gravis

Does anyone have antiphospholipid syndrome and myasthenia gravis. My brother has myasthenia gravis and i have APS and mctd. I realized when i recently saw him...

Does anyone have antiphospholipid syndrome and myasthenia gravis. My brother has...

loretta1106

•5 years ago

6 Replies

Medicine Reminders

Does anyone have any recommendations on an app for medication reminders?

LaciSelph

•5 years ago

17 Replies

Too sick to write part 2

Thank You Kelly that diet answers many questions! My Hemotologist never saw my foot I just told him about it and he said an allergy to Augmented! I will go see...

Thank You Kelly that diet answers many questions! My Hemotologist never saw my f...

Debbweb01

•5 years ago

4 Replies

Anyone else on apixaban

Are you still suffering blood thick days, and blood thin days? To keep it short, we all know the Sufferings of the thick and thin blood days with APS. And all...

Are you still suffering blood thick days, and blood thin days? To keep it short,...

mariamoo1

•5 years ago

9 Replies

Too sick to write

Got Pneumonia Aug 2nd and can’t seem to get back on my feet/ foot Lol... I was on antibiotics for infected shot lump again! Every time I stop either prednisone...

Got Pneumonia Aug 2nd and can’t seem to get back on my feet/ foot Lol... I was o...

Debbweb01

•5 years ago

18 Replies

Sjogrens

My blood tests were negative for sjogrens. My doctor said the lip biosy was unnecessary but I pushed him to order it. I'm glad I did because the lip biospy was...

My blood tests were negative for sjogrens. My doctor said the lip biosy was unne...

Miamigirl305

•5 years ago

11 Replies

Anyone living in Cheshire and self testing nor?

Hello everyone I have successfully self tested my inr and amended my warfarin dose for several years now. Before this I was never in range but am now nearly...

Hello everyone I have successfully self tested my inr and amended my warfarin do...

stillwaiting

•5 years ago

17 Replies

Today the day

Gynaecology appointment here I come

rach1081985

•5 years ago

6 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for November 2019

Happy Turkey Day to all the partake .

Eliquis/Coumadin

HAPPY BIRTHDAY Professor Graham Hughes!

Eloquis

Almost done the testing .

Hello again

Recent APS diagnosis and eye issues

APS, pregnancy and getting the flu shot?

Newbie .. follow up

Better from Pneumonia, but exhausted

Parathyroid question

Hearing issues

Low mood, Eye problems and pain in arm

Test results questions

Multivitamin

A useful read- vitamin D

Www

Tell me

Hai

Can you have Sjogrens without an APS diagnosis?

CoaguCheck xs testing strips

Update after latest Guys appointment.

APS and myasthenia gravis

Medicine Reminders

Too sick to write part 2

Anyone else on apixaban

Too sick to write

Sjogrens

Anyone living in Cheshire and self testing nor?

Today the day

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