Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,354 members • 10,542 posts

All posts for February 2018

Arsenic in rice-is this a concern for those on Gluten-free diets

I saw a program on TV recently that talked about the danger people on GF diets might be exposed to because of arsenic in rice. I googled "rice and pregnancy"...

I saw a program on TV recently that talked about the danger people on GF diets m...

•6 years ago

An interesting read (Thyroid issues)

I have a keen interest in Thyroid issues, and so many of us on here have one, some do not even know they have one! A lot of work needs to be done, testing is...

I have a keen interest in Thyroid issues, and so many of us on here have one, so...

Administrator•6 years ago

Platelets problem from APS Kidney failure

I’m on dialysis from APS Kidney failure. My platelet count has fallen to 47 from 170 before dialysis and kidney failure. Does anyone have a problem like this?...

I’m on dialysis from APS Kidney failure. My platelet count has fallen to 47 from...

•6 years ago

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Cardiac X Syndrome

I'm wondering if I have this. It's mentioned in the book Sticky Blood as it can be a part of APS for some and it's mentioned on The British Heart Foindation...

I'm wondering if I have this. It's mentioned in the book Sticky Blood as it can...

•6 years ago

% Oxygen Saturation & APS ?

If you read the posts you will probably know that I have had problems with AV Heart Block causing me to have a low pulse. At times as low as 19bpm. It's a...

If you read the posts you will probably know that I have had problems with AV He...

•6 years ago

HAS ANYBODY GOT A PROBLEM WITH BEING PRESCRIBED HEPARIN DUE TO A SHORTAGE ?

Hi, I was diagnosed in 2008 with APS and after several attempts with Warfarin Prof Khamashta put me on Clexane Heparin injections for life. I went to my GP for...

Hi, I was diagnosed in 2008 with APS and after several attempts with Warfarin Pr...

•6 years ago

Advise on new meds

Hi! I have been taking warfrin and hydroxcloquine for 4 yrs after bring diagnosed with APS after having my son. I have been experiencing lots of headaches,...

Hi! I have been taking warfrin and hydroxcloquine for 4 yrs after bring diagnose...

•6 years ago

Another miscarriage

I was informed by my GP that my pregnancy hormone has gone down and I'm now having my 4th miscarriage. I am taking clexane and aspirin that was prescribed for...

I was informed by my GP that my pregnancy hormone has gone down and I'm now havi...

•6 years ago

Inflammation

Hello, I am back on MTX an as such I have to have my blood checked every month. One of the reasons diagnosing my conditions is so difficult, is because my...

Hello, I am back on MTX an as such I have to have my blood checked every month. ...

•6 years ago

Lupus Anticoagulant Pregnancy

Hello, i am new to this group and I have just been diagnosed with lupus anticoagulant after having three miscarriages. I am currently five weeks pregnant and...

Hello, i am new to this group and I have just been diagnosed with lupus anticoag...

•6 years ago

Severe pain !

I have severe pain in some part of my body, this time started in left arm and now moved to left hand, cant use hand and it is extremely painful keeping me from...

I have severe pain in some part of my body, this time started in left arm and no...

•6 years ago

Inr crashed

My target inr is 4 Today self tested inr was 2 😐 take fragmine injections when inr is around 3 or below Felt unwell the last couple of days as recently prof...

My target inr is 4 Today self tested inr was 2 😐 take fragmine injections when...

•6 years ago

APS specialist recommendation for London Bridge Hospital

Hi, can anyone recommend which Doctor at London Bridge Hospital would be good for helping to get a diagnosis of APS/ Hughes Syndrome? This is for another...

Hi, can anyone recommend which Doctor at London Bridge Hospital would be good fo...

•6 years ago

Thyroid Finger Prick Testing Experiences?

Hi, I’m 49 and have had APS for five years, treated with baby aspirin and plaquenil prescribed by a rheumatologist, no nearby APS specialist. I’m currently...

Hi, I’m 49 and have had APS for five years, treated with baby aspirin and plaque...

•6 years ago

bruising around eyes

I am new to this site. i experience black discoloration around my eyes. no pain. i take feverfew as a migraine preventative and 81 mg aspirin daily. An MRI has...

I am new to this site. i experience black discoloration around my eyes. no pain....

•6 years ago

Severe Lower GI Bleed

Question: None of my three children, ages 32-38, have been tested for clotting disorders. There was no need as none of them seemed to have a problem. Now, my...

Question: None of my three children, ages 32-38, have been tested for clotting d...

•6 years ago

Unstable INR

My partner had a AVR in 2003 and has been on warfarin ever since with little to no problems. However since 2016 he has been very unstable from having elevated...

My partner had a AVR in 2003 and has been on warfarin ever since with little to ...

•6 years ago

Dr. Jill Schofield...Not Taking New Patients

I called for an appointment today and was told the disappointing news. Dr. Schofield's waitlist is 2 years long and she cannot take new patients until further...

I called for an appointment today and was told the disappointing news. Dr. Schof...

•6 years ago

Newly Diagnosed...I Think

I had a PE 2 weeks ago & now taking 30mg Xarelto. I'm 66, non-smoker, healthy, until this event, which I was told in ER was on the low scale of seriousness. My...

I had a PE 2 weeks ago & now taking 30mg Xarelto. I'm 66, non-smoker, healthy, u...

•6 years ago

Aziophrine

Aziophrine dose was recently increased from 150 mg 3 tablets to 200 mg 4 tablets daily Since then felt like I have hang over and don’t feel well at all...

Aziophrine dose was recently increased from 150 mg 3 tablets to 200 mg 4 table...

•6 years ago

Celiac disease?

Does anyone on here have this as well as aps or sle? I’ve tested positive and having the biopsy next week. Can this blood test be ‘skewed’ because I have a pre...

Does anyone on here have this as well as aps or sle? I’ve tested positive and ha...

•6 years ago