Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for July 2021

Non response from GHIC website?

Hi I recently received the newsletter from GHIC and it mentioned interest in becoming an Ambassador. I already do this for the stroke Association & APS...

Hi I recently received the newsletter from GHIC and it mentioned interest in be...

•4 years ago

Lack of appetite and sour stomach

Hello everyone, I am currently going through something strange. I have periods where food is unappealing to me. When I try to eat, I just cannot do it....

Hello everyone, I am currently going through something strange. I have periods w...

•4 years ago

Professor Hunt

I know from previous readings of people’s posts on here Professor Hunt divides opinion. I finally had a face to face and she was fantastic. She read through...

I know from previous readings of people’s posts on here Professor Hunt divides o...

•4 years ago

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Testing negative for APS

Hi I was diagnosed with APS in 2011 due to difficulties getting pregnant and since then I have been on aspirin and had yearly blood tests. My last three blood...

Hi I was diagnosed with APS in 2011 due to difficulties getting pregnant and sin...

•4 years ago

Shingles vaccineM

Many thanks to all who answered my queries about having the shingles vaccine. I had the jab last week with absolutely. NO side effects not even a sore arm !!...

Many thanks to all who answered my queries about having the shingles vaccine. I...

•4 years ago

Thought I was a bit better !

Came down to Earth the other day, when putting sun cream on my face over my glasses, looking on the bright side, at least I noticed ,mainly because I couldn’t...

Came down to Earth the other day, when putting sun cream on my face over my glas...

•4 years ago

Protein Shakes & Blood thinners

Hi everyone, had a quick question with blood thinners. I am an APS patient taking Apixiban (Elequis) blood thinner. Does anyone know if I am safe to take...

Hi everyone, had a quick question with blood thinners. I am an APS patient takin...

•4 years ago

Bleed

Banged my arm 9 days ago and now it is throbbing, been to urgent care and they did nothing, now at A&e and they think my vein has a leak , the pain is really...

Banged my arm 9 days ago and now it is throbbing, been to urgent care and they d...

•4 years ago

which covid vaccine

What vaccine should a Hughes -aps person have that is safe

What vaccine should a Hughes -aps person have that is safe

•4 years ago

Unprovoked DVT - possible APS

Hi Everyone I was diagnosed yesterday with a thrombus in a vein somewhere below my collar bone which is causing my external jugular vein to distend....

Hi Everyone I was diagnosed yesterday with a thrombus in a vein somewhere below...

•4 years ago

Joint pains and tingling sensation in hands and feet.

Hello to everyone, I am revisiting the issue of joint pains. I have been experiencing joint pains in both hands, both feet and hips as well for the past year...

Hello to everyone, I am revisiting the issue of joint pains. I have been experie...

•4 years ago

Shortness of breath

Hi, Every now and then I have periods where I feel like I'm not quite getting enough Oxygen. I haven't been able to work our any trends whenever it occurs but...

Hi, Every now and then I have periods where I feel like I'm not quite getting en...

•4 years ago

Tomorrow's Q&A with Professor Graham Hughes

Do spread the word to friends and family keen to know more:

Do spread the word to friends and family keen to know more:

Administrator•4 years ago

IGM Anti-Cardiolipin Antibodies

I am no doctor, and I am just sharing my experience which might help others. After several years of symptoms and visits to the doctor I was diagnosed with APS...

I am no doctor, and I am just sharing my experience which might help others. Aft...

•4 years ago

Acupuncture

Morning I have just got back from seeing a physio She gave me acupuncture for my painful hip just wondering if anyone’s memory seem worse afterwards, couldn’t...

Morning I have just got back from seeing a physio She gave me acupuncture for my...

•4 years ago

Interesting article from Beverley Hunt regarding DOACs in APS

Apologies, the link didn’t work … you will have to look it up ;) Ray x Direct oral anticoagulant use in patients with antiphospholipid syndrome and...

Apologies, the link didn’t work … you will have to look it up ;) Ray x Direct...

•4 years ago

Interesting article from Beverley Hunt regarding DOACs in APS

https://doi.org/10.1111/bjh.17634

https://doi.org/10.1111/bjh.17634

•4 years ago

Old clots unlikely to dissolve but planning a pregnancy soon. Has anyone got pregnant with clots still being inside them.

Hi everyone.. a quick question. I have some old clots which are unlikely to dissolve now. I am planning a pregnancy soon. I was just wondering has anyone...

Hi everyone.. a quick question. I have some old clots which are unlikely to diss...

•4 years ago

Shingles Vaccine

I have just been offered the Shingles Vaccine and have concerns about having it as it's alive vaccine as I understand people with APS should avoid live...

I have just been offered the Shingles Vaccine and have concerns about having it ...

•4 years ago

A short survey - regarding medically not yet explained symptoms (MNYES)

The James Lind Alliance Priority Setting Partnership (PSP) for Medically Not Yet Explained Symptoms (MNYES) is currently running a survey to establish research...

The James Lind Alliance Priority Setting Partnership (PSP) for Medically Not Yet...

Administrator•4 years ago

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