Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for October 2016

Visual field defects

Hello everyone I know quite a few of you have had strokes due to APS. As a result of these strokes has your visual fields been impacted? You might not realise...

Hello everyone I know quite a few of you have had strokes due to APS. As a resul...

Good4u

•8 years ago

13 Replies

Blood Thinners

In anticipation of my upcoming appointment and in an effort to better educated myself, I'm curious about oral blood thinners. Since APS is due to a build up of...

In anticipation of my upcoming appointment and in an effort to better educated m...

ehc918

•8 years ago

6 Replies

I am a survivor, I am strong, I get better every day. Life is my gift. I can do this.

Life truly is a gift, cherish it every day. Try your best to do what you want to do, you can do it💕💕🎈🎈🎈💕💕

Life truly is a gift, cherish it every day. Try your best to do what you want to...

Wittycjt

•8 years ago

2 Replies

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blood results

Hi All I had some blood tests done privately for hypothyroid (as I've been feeling so ill) the thyroid tests were all fine but surprisingly they also tested...

Hi All I had some blood tests done privately for hypothyroid (as I've been feeli...

mully

•8 years ago

3 Replies

APS and healthy lifestyle

Hi everyone, I wondered if anyone else has struggled with having a healthy lifestyle with APS? I'm really struggling - I think partly because I had a really...

Hi everyone, I wondered if anyone else has struggled with having a healthy lifes...

FlissS

•8 years ago

13 Replies

Pregnancy- Antiphospholipid antibody disorder

Hello, i was diagnosed with APLS in 2003- i was 5 months pregnant. I lost my baby due to a blood clot in my placenta, i also had a blood clot in my liver. 3...

Hello, i was diagnosed with APLS in 2003- i was 5 months pregnant. I lost my bab...

lulu83

•8 years ago

16 Replies

New APS diagnosis

Hi everyone. I've just been recently diagnosed is APS & also essential thrombocythemia (ET). I had a clot in my leg which resulted in severe long term nerve...

Hi everyone. I've just been recently diagnosed is APS & also essential thrombocy...

Emma_shall

•8 years ago

4 Replies

Dr Daniel Wallace- Los Angeles

Just secured an appointment with this rheumatologist in LA. Apparently he is good friends with Professor Hughes and I think they have similar platforms of...

Just secured an appointment with this rheumatologist in LA. Apparently he is goo...

ehc918

•8 years ago

8 Replies

Bites

I would like to know if you have had bad experiances after a bite from a mosquito, a wasp or a gadfly (breeze fly)? the latter connected with sailing in the...

I would like to know if you have had bad experiances after a bite from a mosquit...

Lure2

•8 years ago

18 Replies

APS & the gallbladder

Hi everyone, just wondering how many of you suffer gallbladder problems? Prior to "official" diagnosis in 2012 I'd had several scans to check for gallstones...

Hi everyone, just wondering how many of you suffer gallbladder problems? Prior t...

Good4u

•8 years ago

15 Replies

Problems with my head

Hi everyone I know I have not posted in awhile, but I'm having problems with migraine headaches that they think were triggered by a really really low blood...

Hi everyone I know I have not posted in awhile, but I'm having problems with mig...

pennyd2004

•8 years ago

3 Replies

Severe pains in bones and muscles

Diagnosed with APR 4 years ago have very good team in Dublin. However for past 9 weeks suffering very badly with pains in my lung, bones and muscles....

Diagnosed with APR 4 years ago have very good team in Dublin. However for past ...

RebeccaP

•8 years ago

7 Replies

Cholesterol not the culprit in coronary plaque build

Does statin Crestor now have a role in reducing bad or high LOL?

nnchin1

•8 years ago

11 Replies

Cardboard taste!

Hey guys! Hope everyone is coping well with their symptoms - just wondered if anyone else suffered from a cardboard taste at all? I started taking...

Hey guys! Hope everyone is coping well with their symptoms - just wondered if an...

addz

•8 years ago

4 Replies

beta 2 glycoprotein levels

I have had a letter from hospital that says the beta 2 glycoprotein levels are elevated at 21. Can anyone tell me what the range is? best wishes to all.

I have had a letter from hospital that says the beta 2 glycoprotein levels are e...

purple

•8 years ago

7 Replies

Just been diagnosed but not confirmed yet

Hi I'm 53 and had a year of terrible illness ranging from. severe chest pains, chronic prostatitis. temporary monocular blindness, several TIAs and a Carotid...

Hi I'm 53 and had a year of terrible illness ranging from. severe chest pains, c...

DeanJ

•8 years ago

18 Replies

Any other hope for relief?

I've had APS for over 8 years now. Aside of at least 5 episodes of DVT's / PE's, I've also had a stroke too. I've been at my prescribed INR level of 3.0-4.0...

I've had APS for over 8 years now. Aside of at least 5 episodes of DVT's / PE's,...

10yearsandcounting

•8 years ago

22 Replies

NEED DOCTOR in Southern California

I have Hughes Syndrome and have been working with my primary who has been very, very accommodating with my treatment, however she feels that my treatment needs...

I have Hughes Syndrome and have been working with my primary who has been very, ...

ehc918

•8 years ago

16 Replies

Following programmes!!

This will probably only really been relevant to uk residents as its about a TV programme. So... This week there is a week long storyline on emmerdale. Just...

This will probably only really been relevant to uk residents as its about a TV p...

Sara_A

•8 years ago

19 Replies

Further studies on gluten intolerance

https://www.eurekalert.org/pub_releases/2016-10/sh-nsl101016.php MaryF

MaryF

Administrator•8 years ago

7 Replies

APS Specialists

Hi does anyone know of any APS specialists in the Manchester area? Thanks

DebsT

•8 years ago

5 Replies

APS and consultants.

Hi I live in the Manchester area. Has anyone seen a Consultant for APS in Manchester that they would reccommend? My symptoms are mainly numbness and migraines....

Hi I live in the Manchester area. Has anyone seen a Consultant for APS in Manche...

DebsT

•8 years ago

5 Replies

Numbness in legs

Hi I was diagnosed with APS in 2011 whilst going through IVF. I have been on aspirin daily since that time. This week I got out of bed and lost the use of my...

Hi I was diagnosed with APS in 2011 whilst going through IVF. I have been on as...

DebsT

•8 years ago

39 Replies

Should I complain

I have had 2 separate unprovoked blood clots. Last year I had pulmonary embolisms and terrible pleurisy and a positive lupus anticoagulant test. The consultant...

I have had 2 separate unprovoked blood clots. Last year I had pulmonary embolism...

hebdengirl

•8 years ago

8 Replies

QUESTION: MIGRAINES

I will be making an appointment with my heme/oncologist for APS testing. I have already tEstee positive for Lupus Anticoagulant so even though I'm on warfarin,...

I will be making an appointment with my heme/oncologist for APS testing. I have ...

ZRHONDA

•8 years ago

5 Replies

Walking Gait

Has anyone else suffered or is suffering from Foot Slap or walking gait. I recently had a flare which involved pain moving up and down my left side which has...

Has anyone else suffered or is suffering from Foot Slap or walking gait. I recen...

LesJames

•8 years ago

5 Replies

Weak lupus anticoagulant? In need of help

In the past year I have miscarriaged twice before 10 weeks. Before these miscarriages I had my son without complications other then repeatedly swollen legs....

In the past year I have miscarriaged twice before 10 weeks. Before these miscar...

Oliversmum

•8 years ago

17 Replies

Azathioprine

Hi all , can anyone tell me if azathioprine is well tolerated? Are there many sideeffects and will I need regular bloods ? Just wondering , not felt well at...

Hi all , can anyone tell me if azathioprine is well tolerated? Are there many si...

Elfie1

•8 years ago

14 Replies

Avoiding error 5 on Coaguchek XS

Hi, I''ve been self testing my INR for about a month. I borrowed the machine from the Hughes Foundation and got my strips on prescription. I've managed some...

Hi, I''ve been self testing my INR for about a month. I borrowed the machine fro...

smibenj

•8 years ago

13 Replies

Itching

Just lately last 2 to 3 weeks have had terrible itching and rash on different parts of my body keeps me awake in the night .last night didn't get asleep to...

Just lately last 2 to 3 weeks have had terrible itching and rash on different pa...

Tim_Thorpe

•8 years ago

3 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for October 2016

Visual field defects

Blood Thinners

I am a survivor, I am strong, I get better every day. Life is my gift. I can do this.

blood results

APS and healthy lifestyle

Pregnancy- Antiphospholipid antibody disorder

New APS diagnosis

Dr Daniel Wallace- Los Angeles

Bites

APS & the gallbladder

Problems with my head

Severe pains in bones and muscles

Cholesterol not the culprit in coronary plaque build

Cardboard taste!

beta 2 glycoprotein levels

Just been diagnosed but not confirmed yet

Any other hope for relief?

NEED DOCTOR in Southern California

Following programmes!!

Further studies on gluten intolerance

APS Specialists

APS and consultants.

Numbness in legs

Should I complain

QUESTION: MIGRAINES

Walking Gait

Weak lupus anticoagulant? In need of help

Azathioprine

Avoiding error 5 on Coaguchek XS

Itching

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