Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,442 members•10,641 posts

All posts for July 2015

No one will help,

I was diagnosed with MS 2 years ago. According to MS neurologist, I was a slam dunk case. I am not so convinced. I have had bouts of daily headaches for years...

I was diagnosed with MS 2 years ago. According to MS neurologist, I was a slam d...

AngieRae

•10 years ago

36 Replies

Thanks to all who replied to my post re Mirena coil & heavy menstrual bleeding....

Thank you all for your replies, which I found very helpful. It turns out that my coil must have dislodged and become ineffective, hence the heavy bleeding,...

Thank you all for your replies, which I found very helpful. It turns out that m...

MrsMouseSJ

•10 years ago

5 Replies

Pulmonary Edema

Hello everyone! Does anyone have aortic insufficiency, with pulmonary edema, which is treated with diuretics? If so can they affect your INR much? My...

Hello everyone! Does anyone have aortic insufficiency, with pulmonary edema, whi...

InSpain

•10 years ago

3 Replies

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very worried,any help appreciated

Hi, I am 77yrs old and have always been healthy untill 18mths ago when I got a blood clot in my brain.Was prescribed Warfarin which did not cause side...

Hi, I am 77yrs old and have always been healthy untill 18mths ago when I got a...

doreenA3

•10 years ago

11 Replies

Rash photos

Two three weeks ago a person sent pics to us all with a rather nasty rash, looked almost like blisters within the rash. A 13 year old girl I know looks as...

Two three weeks ago a person sent pics to us all with a rather nasty rash, looke...

diane1428

•10 years ago

2 Replies

more new symptoms

Does anyone else get a "stinging" across their chests? I have had this for a week so I saw a gp today who gave me some capiscal cream to rub on it I have had a...

Does anyone else get a "stinging" across their chests? I have had this for a wee...

donnabrain

•10 years ago

6 Replies

Question about diagnostic criteria.

Following repeated pregnancy losses, I had an indeterminate result on an Antiphospholipid Syndrome Assessment (all normal except ACL IgM = 13, cut off for...

Following repeated pregnancy losses, I had an indeterminate result on an Antipho...

staplegunsarefun

•10 years ago

5 Replies

mag7

Hi ,anyone heard of progressive paraparesis its tied up with APS and all too scary.

Hi ,anyone heard of progressive paraparesis its tied up with APS and all too sca...

mag7

•10 years ago

2 Replies

Extremely heavy periods - despite interventions - any advice?

Since taking warfarin my periods have, unsurprisingly, got heavier. Last year they became extremely heavy, to the point that I was referred to a gynaecologist....

Since taking warfarin my periods have, unsurprisingly, got heavier. Last year th...

MrsMouseSJ

•10 years ago

14 Replies

Rivaroxaban/illness & pains

Hi, I've had APS since 1998 been on warfarin mostly but been on Rivaroxiban for about a year and a half. I have experienced headaches, aches in my arms and...

Hi, I've had APS since 1998 been on warfarin mostly but been on Rivaroxiban for ...

Rob_Wildboar80

•10 years ago

4 Replies

Question about blood work

My dermotolgist wanted to do bloodwork when I went in for my annual skin check. I showed her a rash that has come and gone. My results came with my liver...

My dermotolgist wanted to do bloodwork when I went in for my annual skin check. ...

Llitteken

•10 years ago

8 Replies

Should I be worried?

Hello to everyone. I am a newbie on the Hughes forum but have been a member on the Lupus forum for a few years. I would like to ask you all a question if you...

Hello to everyone. I am a newbie on the Hughes forum but have been a member on t...

esky

•10 years ago

9 Replies

Has any members been to the "Royal National Hospital for rheumatic diseases"?

I was there in 2001 where it took the consultants over a week to find I had APS and they where the best in England and had a good understanding on how to best...

I was there in 2001 where it took the consultants over a week to find I had APS ...

popshaw21

•10 years ago

3 Replies

INR Testing in France - anyone have knowledge of?

Hi Guys. I'm Lupus Anticoagulant positive, diagnosed after multiple PE 4 years ago. Taking Warfarin. Also have had AF episodes and underwent ablation 3 months...

Hi Guys. I'm Lupus Anticoagulant positive, diagnosed after multiple PE 4 years a...

struggling

•10 years ago

2 Replies

CoQ10 Ubiquinol

Hi I have a question , I have primary APS and Sjogrens and have been taking warfarin, plaquenil and statins for about 15 years. This question is with regard to...

Hi I have a question , I have primary APS and Sjogrens and have been taking warf...

Elisabeth

•10 years ago

5 Replies

APS GROUPS IN LONDON?

Hi everyone, I've been a APS sufferer for many years and I have many other medical health issues that have stopped me living a normal life. I've wanted to...

Hi everyone, I've been a APS sufferer for many years and I have many other medi...

Firefoxie007

•10 years ago

4 Replies

Side affects warfarin?

It scares me about all the side affects of all the anticoagulants out there. I tried xarelto and had major stomach pains, I have crohns and a gluten problem,...

It scares me about all the side affects of all the anticoagulants out there. I t...

determinedandstrong

•10 years ago

6 Replies

Self testing while on vacation out of the country

I live in the US, and will be travelling to Europe in one week--We are flying to London and then cruising around the British Channel Islands and making stops...

I live in the US, and will be travelling to Europe in one week--We are flying to...

mozelle

•10 years ago

13 Replies

Help needed

Hi All can any one help?? Ive just been to the because of severe hurting joints in feet ankles, wrist elbows and swelling of joints in hands. The GP has...

Hi All can any one help?? Ive just been to the because of severe hurting joint...

diane1428

•10 years ago

11 Replies

Advice needed yet again - thanks in advance :-)

Hi everyone, I'm apologising for the long winded post but I really need some fellow sufferers advice if possible please Ok so I was diagnosed 2 year ago with...

Hi everyone, I'm apologising for the long winded post but I really need some fe...

bevjane74

•10 years ago

11 Replies

Self testing

Hi Everyone - do many of you self test and regulate? How do I get approved for self testing? My INR and dosage has been consistent for over 6 months. I am...

Hi Everyone - do many of you self test and regulate? How do I get approved for s...

UKWendy

•10 years ago

13 Replies

Clexane

Do you need any INR tests while On this drug thanks x

taffydaffy

•10 years ago

4 Replies

Confused

Just been to regular RA clinic and been told I have APS.I have had mass problems with body spasms that I couldnt walk only held onto my husbands arm.Body...

Just been to regular RA clinic and been told I have APS.I have had mass problems...

Fra22-57

•10 years ago

17 Replies

Taking Fragmin whilst on Warfarin

I have been given 1ml syringes of Fragmin for use in emergency. My Consultant said to take it if my INR drops below 2.0. At the moment it's 2.7 and I feel...

I have been given 1ml syringes of Fragmin for use in emergency. My Consultant sa...

AvsG

•10 years ago

8 Replies

Trust me I'm a doctor follow up email - Awareness raised... ;)

I received this in response to emails sent last week Trust Me, I'm a Doctor: Hughes Syndrome link Alex Freeman <alex.freeman@bbc.co.uk> 19:47 (14 hours......

I received this in response to emails sent last week Trust Me, I'm a Doctor: Hu...

loppylou68

•10 years ago

10 Replies

My health

Today morning I woke up having chest pains,but the pain comes and goes..

Timon

•10 years ago

2 Replies

Random head pains

Hi everyone, happy Monday! I was wondering if anyone else gets these? Really sudden and sharp pains in the head that come and go, and rarely in the same place....

Hi everyone, happy Monday! I was wondering if anyone else gets these? Really sud...

minnime63

•10 years ago

13 Replies

Help?

Hi I'm 23 years old and live in Sussex I was diagnosed when I was 21....I have a 10 month old little boy and I am struggling. I spend all day trying to fight...

Hi I'm 23 years old and live in Sussex I was diagnosed when I was 21....I have a...

Jazz3914

•10 years ago

14 Replies

Joint pains

Hi all I haven't posted on her for a while but things are getting gradually worse for me. All my joints hurt, ankles, knees, elbows and wrists. Wonder if I...

Hi all I haven't posted on her for a while but things are getting gradually wors...

ledlegs

•10 years ago

3 Replies

Is this a symptom of APS?

Hello everyone, I hope you are all well? I am really struggling with cold night sweats, waking up in the morning soaked through. I've also lots a lot of...

Hello everyone, I hope you are all well? I am really struggling with cold night...

anniesensi

•10 years ago

24 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for July 2015

No one will help,

Thanks to all who replied to my post re Mirena coil & heavy menstrual bleeding....

Pulmonary Edema

very worried,any help appreciated

Rash photos

more new symptoms

Question about diagnostic criteria.

mag7

Extremely heavy periods - despite interventions - any advice?

Rivaroxaban/illness & pains

Question about blood work

Should I be worried?

Has any members been to the "Royal National Hospital for rheumatic diseases"?

INR Testing in France - anyone have knowledge of?

CoQ10 Ubiquinol

APS GROUPS IN LONDON?

Side affects warfarin?

Self testing while on vacation out of the country

Help needed

Advice needed yet again - thanks in advance :-)

Self testing

Clexane

Confused

Taking Fragmin whilst on Warfarin

Trust me I'm a doctor follow up email - Awareness raised... ;)

My health

Random head pains

Help?

Joint pains

Is this a symptom of APS?

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