Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,349 members • 10,537 posts

All posts for September 2014

Leg swelling and pain, also constant headache

I am not sure if any of this is related to the antiphsopholipid diagnosis I was given a couple years ago or not. But does anyone else ever have this happen? My...

I am not sure if any of this is related to the antiphsopholipid diagnosis I was ...

becca10

•10 years ago

22 Replies

Great Book

If you haven't read it by now, please read "The Autoimmune Epidemic," by Donna Jackson Nakazawa. Chapter ONE features our condition!!! The whole book is very...

If you haven't read it by now, please read "The Autoimmune Epidemic," by Donna J...

Christin

•10 years ago

3 Replies

Many of us with Hughes Syndrome, and or a variety of autoimmune suffer with Thyroid problems

Many of us are told our levels are normal, the TSH test is not known for it's reliability! Many of us also have allergies to medication. In the UK it is a...

Many of us are told our levels are normal, the TSH test is not known for it's re...

MaryF

Administrator•10 years ago

1 Reply

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Tetanus?

I have come across the following link:http://healthimpactnews.com/2013/tetanus-vaccine-causes-a-new-disease-known-as-antiphospholipid-syndrome/ Does anyone...

I have come across the following link:http://healthimpactnews.com/2013/tetanus-v...

LesJames

•10 years ago

18 Replies

Small hard lump just below my first join on right index finger?

Hiya - no idea if it is APS linked, but a small hard lump has appeared in my right hand. Am feeling fairly symptomatic at the moment with stiff joints and...

Hiya - no idea if it is APS linked, but a small hard lump has appeared in my rig...

Bonnie39

•10 years ago

7 Replies

Dabigatran Trial

Hi all, I found out yesterday, after 18 months, that my APS is my primary condition which is good news in a way. My consultant at Northampton Hospital has...

Hi all, I found out yesterday, after 18 months, that my APS is my primary cond...

MASuk10

•10 years ago

2 Replies

Aps aftershave 8 years how it happened

Hi I have aps for the last 8 years and it appeared after braking my foot want to know if any one got it the same way just because. Of trauma.

Hi I have aps for the last 8 years and it appeared after braking my foot want to...

Chbassan

•10 years ago

8 Replies

Everton 14

I had test for apls first test posative second test for abnormal anti bodies normal what does this mean

I had test for apls first test posative second test for abnormal anti bodies no...

Mojo55

•10 years ago

7 Replies

Touching base...

Good morning everyone. It has been a few weeks since I logged onto the site to give an update. I have been to OHSU two times this last month, traveling to...

Good morning everyone. It has been a few weeks since I logged onto the site to ...

beccafullcircle

•10 years ago

9 Replies

So peeved off!!!!!

I have now (Friday last week) had my third heart attack and both my cardiologist and heamotolagist both agree I need a home testing kit! But the NHS don't pay...

I have now (Friday last week) had my third heart attack and both my cardiologist...

Jomack

•10 years ago

5 Replies

Bullying in the NHS, press release from BACP

Issued: 25th September 2014 by BABCP Board 'BULLYING CULTURE' IN NHS MENTAL HEALTH SERVICES PUTTING VULNERABLE PATIENTS AT RISK Vulnerable patients are...

Issued: 25th September 2014 by BABCP Board 'BULLYING CULTURE' IN NHS MENTAL HE...

MaryF

Administrator•10 years ago

APS and severe back pains

I've was diagnosed with APS about 8-9 years ago,I'm not bad enough to need Warfarin so instead I take a daily dose of Steroids, Aspirin, blood pressure meds...

I've was diagnosed with APS about 8-9 years ago,I'm not bad enough to need Warfa...

Tomcat

•10 years ago

7 Replies

Diagnosis

Hi there, I have just had my third miscarriage confirmed. My first was at 9 weeks the others just over 5 weeks. I'm feeling very low and at a loss to...

Hi there, I have just had my third miscarriage confirmed. My first was at 9 wee...

willow3

•10 years ago

12 Replies

Any advice if have severe d & v attack - what will this do to my INR and warfarin levels?

Dx with APS and ? SLE a uear aho, been on drig cocktail for 10 months but have picked up a nasty d and v bug. Suspect I have lost morning doses including 200mg...

Dx with APS and ? SLE a uear aho, been on drig cocktail for 10 months but have p...

Bonnie39

•10 years ago

8 Replies

Good news

I have been told day that I can b sterilised before Nov 19th so happy nw, gynaecologist agreed my medical history stands out and understands my family complete

I have been told day that I can b sterilised before Nov 19th so happy nw, gynaec...

rach1081985

•10 years ago

6 Replies

An article from The Daily Telegraph/Thyroid and the importance on not relying on TSH test

An informative article here and quite rightly the very hard working charity Thyroid UK get a timely mention, many of us with Thyroid issues are members of...

An informative article here and quite rightly the very hard working charity Thyr...

MaryF

Administrator•10 years ago

3 Replies

heparin dosage in pregnancy

Hi again. I need your advice and experience with APS and pregnancy treatment. In 6 week of my pregnancy i got positive lupus anticoagulant test and also in 11...

Hi again. I need your advice and experience with APS and pregnancy treatment. In...

Glassart

•10 years ago

8 Replies

GPs may no longer be able to prescribe Clexane

Tonight I received a worrying call from a GP who was annoyed I had never been to see her for blood tests and a consultation about my condition, primary APS. I...

Tonight I received a worrying call from a GP who was annoyed I had never been to...

MLNC

•10 years ago

6 Replies

Problem solving or nearly

Just wondering if we should write a list of things that helps us to remember, I will start 1. Say out load when I have turned things off 2. Write on my phone...

Just wondering if we should write a list of things that helps us to remember, I ...

daisyd

•10 years ago

1 Reply

I've been offered the flu jab now im on warfarin but im a bit unsure of having it done.

I have been told that you can have bad side effects from it. Anyone got any advice xx

I have been told that you can have bad side effects from it. Anyone got any advi...

Hidden

•10 years ago

10 Replies

Severe memory issues/brain fog?

Does anyone have severe memory issues and/or brain fog? I have brain fog regularly (during regular flares and especially during major fares). Sometimes it's...

Does anyone have severe memory issues and/or brain fog? I have brain fog regula...

Tranquility1

•10 years ago

22 Replies

Feeling deflated...

So I saw my rheumatologist yesterday. It's been a month since he found that I had APS and told me to take baby aspirin. I also take another blood thinner (non...

So I saw my rheumatologist yesterday. It's been a month since he found that I ha...

ehc918

•10 years ago

11 Replies

Confused

Well today I had my follow up rheumatologists appointment. My latest blood results have come back negative for Aps but my vitamin d was a little low, so I have...

Well today I had my follow up rheumatologists appointment. My latest blood resul...

ccurrey79

•10 years ago

7 Replies

Medication Win!

Just goes to show, you don't ask you don't get! My INR invariably goes haywire whenever I travel, get sick, am tired, am flaring (Lupus), change my exercise...

Just goes to show, you don't ask you don't get! My INR invariably goes haywire ...

jojo-lianne

•10 years ago

7 Replies

Starting Plaquenil for the first time

I now have my Plaquenil tablets but I'm a bit anxious about the side effects. I have been told to take one 200mg tablet daily. I thought it may be best to take...

I now have my Plaquenil tablets but I'm a bit anxious about the side effects. I ...

AvsG

•10 years ago

17 Replies

For those who was discharged from St Thomas's in London

After a long process of making a complaint to St Thomas's, about my discharge from the Lupus Unit, by a certain doctor who I have never met, and after nearly...

After a long process of making a complaint to St Thomas's, about my discharge f...

bernieembleton

•10 years ago

21 Replies

INR Self Testing

After some good replies on my last post I thought I'd ask peeps opinions on self testing. So Guys and Gals how do you go about it? 1. Do you buy or rent...

After some good replies on my last post I thought I'd ask peeps opinions on self...

MASuk10

•10 years ago

18 Replies

Starting to get a bit fed up now!

Heya every people's, After being diagnosed in November 2013 with dvt a string of blood tests later and it turns out I have Hughes, lupus, rheumatoid arthritis...

Heya every people's, After being diagnosed in November 2013 with dvt a string o...

bevjane74

•10 years ago

7 Replies

Warfarin users and muscle strains / tears

Hi all, I recently had a slight tear of my groin which led to referred pain in my lower back and left gluteal. I had chiropractic treatment on my back to...

Hi all, I recently had a slight tear of my groin which led to referred pain in...

MASuk10

•10 years ago

7 Replies

Life Vs. Pain

Just a small rant, I need to vent a little! I'm starting to get seriously annoyed with my stupid body at the moment! I really don't know what the heck else...

Just a small rant, I need to vent a little! I'm starting to get seriously annoy...

jojo-lianne

•10 years ago

6 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for September 2014

Leg swelling and pain, also constant headache

Great Book

Many of us with Hughes Syndrome, and or a variety of autoimmune suffer with Thyroid problems

Tetanus?

Small hard lump just below my first join on right index finger?

Dabigatran Trial

Aps aftershave 8 years how it happened

Everton 14

Touching base...

So peeved off!!!!!

Bullying in the NHS, press release from BACP

APS and severe back pains

Diagnosis

Any advice if have severe d & v attack - what will this do to my INR and warfarin levels?

Good news

An article from The Daily Telegraph/Thyroid and the importance on not relying on TSH test

heparin dosage in pregnancy

GPs may no longer be able to prescribe Clexane

Problem solving or nearly

I've been offered the flu jab now im on warfarin but im a bit unsure of having it done.

Severe memory issues/brain fog?

Feeling deflated...

Confused

Medication Win!

Starting Plaquenil for the first time

For those who was discharged from St Thomas's in London

INR Self Testing

Starting to get a bit fed up now!

Warfarin users and muscle strains / tears

Life Vs. Pain

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