Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for December 2016

A New Year

I want to wish everyone a Happy New and Healthy 2017! I am so happy that this site exists and that I can be here among all these wonderful people and for the...

I want to wish everyone a Happy New and Healthy 2017! I am so happy that this si...

Lure2

•8 years ago

29 Replies

Inr crashed

Went back to work wensday . Self tested thursday 2.9 have to take fragmine injection if below 3 . My target Inr is 4 . Told to take 10mg and retest Friday...

Went back to work wensday . Self tested thursday 2.9 have to take fragmine inje...

Tim_Thorpe

•8 years ago

12 Replies

Rash after taking BP meds.

Here is a picture of the rash I developed on the second day of taking the BP med Lisinopril. I stopped the meds for fear of an allergic reaction. What do you...

Here is a picture of the rash I developed on the second day of taking the BP med...

blizzard2014

•8 years ago

11 Replies

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High blood pressure

I have been having bouts with really high blood pressure lately. I have been having this for a long time though. I have had three separate readings from my GP...

I have been having bouts with really high blood pressure lately. I have been hav...

blizzard2014

•8 years ago

40 Replies

Twitter? How to

Trying to follow Prof Hunt amongst others on twitter. I am signed up but not sure how to follow and or tweet individuals or participate in discussions. I have...

Trying to follow Prof Hunt amongst others on twitter. I am signed up but not sur...

Wittycjt

•8 years ago

6 Replies

Misled and Upset

So I had my appointment with Dr Daniel Wallace in Los Angeles. He is an associate of Dr Hughes as they are both Lupus specialists. From the Hughes support...

So I had my appointment with Dr Daniel Wallace in Los Angeles. He is an associat...

ehc918

•8 years ago

15 Replies

Question about Nausea, and non-wafarin treatment options for APS

Kersten, Mary F, and aPNotSoFab and Luis- I had problems two weeks ago w/ bladder. ( painful cramping with urination- bladder itself- not urethra- not UTI)...

Kersten, Mary F, and aPNotSoFab and Luis- I had problems two weeks ago w/ bladd...

KellyInTexas

Administrator•8 years ago

8 Replies

INR Testing and local protocols

Having moved from the south coast up to Hull the protocols here are so different it would be interesting to hear what protocols are in place in different...

Having moved from the south coast up to Hull the protocols here are so different...

judes

•8 years ago

5 Replies

Confusing Thyroid results

I was treated for Graves 5 years before my APS diagnosis. The radiologist and endocrinologist treating me decided to calculate out a dose of RAI to destroy...

I was treated for Graves 5 years before my APS diagnosis. The radiologist and en...

Mair

•8 years ago

3 Replies

Hughes syndrome and painfull bladder syndrome

Hello. Anyone have Hughes syndrome and urinary problems? I have problems about 10 years from pain in the bladder, and about two months i have been diagnosed...

Hello. Anyone have Hughes syndrome and urinary problems? I have problems about 1...

skoll1975

•8 years ago

7 Replies

APS and chickenpox

Hi all, Just a quickie. We have small children visiting soon and they've just contracted chickenpox. I had it many moons ago but would it be best to...

Hi all, Just a quickie. We have small children visiting soon and they've just co...

MASuk10

•8 years ago

5 Replies

Eye Eye

Hello, I hope many of you had a relatively pain free Christmas. I have developed a painful eye, which my wife tells me is a small spot on the eyelid. She has...

Hello, I hope many of you had a relatively pain free Christmas. I have developed...

LesJames

•8 years ago

2 Replies

To all

Ha All hope you all have a very special day tomorrow-- Big hugs-- just got home and pretty tired-- Brain not functioning well { whats new HA} It's 11:36...

Ha All hope you all have a very special day tomorrow-- Big hugs-- just got h...

jetjetjet

•8 years ago

10 Replies

MRI scan

Had major stroke 2011 . But not had MRI since 2013 just recently had operation in sept so have recently had a new MRI that has shown since last MRI in 2013 I...

Had major stroke 2011 . But not had MRI since 2013 just recently had operation i...

Tim_Thorpe

•8 years ago

11 Replies

A grateful merry new health.

would like to say many thanks to you all for the kindness and support you have all given me through out this year.i don't know how I would have coped with this...

would like to say many thanks to you all for the kindness and support you have a...

dawnzy

•8 years ago

3 Replies

Happychristmas

I hope everybody has a good christmas and a happy new year. God yul to Kerstin in Stockholm (ithink i got that right).all the best Elfie

I hope everybody has a good christmas and a happy new year. God yul to Kerstin i...

Elfie1

•8 years ago

5 Replies

INR 4 still having daily migraines

I have been having chronic migraines again, my rhuemy and Neuro are not sure why, my Lupus is quiet at the moment I am off the prednisone and methotrexate and...

I have been having chronic migraines again, my rhuemy and Neuro are not sure why...

edgewater100

•8 years ago

11 Replies

My wonderful Christmas news.

I saw the cardiologist today to get the results of my TOE. As I'm recovering from my surgery, apparently my heart is also and won't need heart surgery in the...

I saw the cardiologist today to get the results of my TOE. As I'm recovering fro...

Ozchick

•8 years ago

12 Replies

Living in Hell

Has anyone else had their bladder fail? In addition to this horrible post concussion headache. I no have to wear a catheter bag. They don't know if my badder...

Has anyone else had their bladder fail? In addition to this horrible post concus...

ZRHONDA

•8 years ago

9 Replies

Electric foot massager: helpful?

Wanted to get some opinions on this product: https://www.medmassager.com/content/medmassager-foot-massager-mmf07 It supposedly helps with circulation, leg...

Wanted to get some opinions on this product: https://www.medmassager.com/content...

Holley

•8 years ago

1 Reply

Little bit of advice pretty please.

OK we know it's Xmas I'm on the night shift for a couple weeks. I am ill can't get appointment. Nose running sore chest I think I have a chest infection? I...

OK we know it's Xmas I'm on the night shift for a couple weeks. I am ill can't g...

molly1969

•8 years ago

7 Replies

Well my trial will soon be over and feel no different ... can anyone tell me why !!!

gd morning lovelies been on fragmin 10000 for 5 weeks now and still got banging migraines, bouts of dizzy spells and generally feel YUK ... small blisters type...

gd morning lovelies been on fragmin 10000 for 5 weeks now and still got banging ...

jilly50

•8 years ago

8 Replies

Increasing activity increases clotting?

I have an epal in the States with APS and Sjogrens. She is currently finding that she is clotting all over the place (nearly lost a finger recently) and that...

I have an epal in the States with APS and Sjogrens. She is currently finding th...

Coppernob

•8 years ago

4 Replies

Update on itchy skin continued! Some Questions!

Hi All! I hope and pray Y'All are enjoying this Holiday Season! I have some good news! I've been approved for a new leg! After an appeal the decision was...

Hi All! I hope and pray Y'All are enjoying this Holiday Season! I have some good...

Debbweb01

•8 years ago

4 Replies

Tested positive and then negative for APS

Hi I have tested positive for cardiolipin antibodies for the last 6 years. However, my last blood test was perfectly normal. Can this happen? My...

Hi I have tested positive for cardiolipin antibodies for the last 6 years. Howe...

DebsT

•8 years ago

23 Replies

Confused newbie.

Hi, folks. I already have Graves and Reynards and now the doc thinks I have Hughes..more the merrier.. I learned more about Graves from fellow sufferers...

Hi, folks. I already have Graves and Reynards and now the doc thinks I have Hu...

Pink_shrimp

•8 years ago

9 Replies

Antiplatelet vs anticoagulant therepy

Just began taking Eliquis (anticoagulant) for Afib. As a result was told to stop Plavix (antiplatelet) and 81 mg aspirin. Plavix had stopped migranes in the...

Just began taking Eliquis (anticoagulant) for Afib. As a result was told to stop...

Wx_Doc

•8 years ago

20 Replies

Floppy foot

Hi, I have had what I would call a flare of my condition, where my right foot is floppy and slaps the floor when I walk. It gets worse when I have walked a bit...

Hi, I have had what I would call a flare of my condition, where my right foot is...

LesJames

•8 years ago

19 Replies

Hughs syndrome Having A raised INR

My venous INR reading yesterday was 6.2 , I am due to have my Gallbladder removed in January but at this present time I'm feeling very uncomfortable in my...

My venous INR reading yesterday was 6.2 , I am due to have my Gallbladder remove...

Hidden

•8 years ago

11 Replies

wanting some advice

HI I was wondering if anyone could help me, was looking up the name Dr Eliane Baguley and it lead me to you, interestaly after reading several of your post, my...

HI I was wondering if anyone could help me, was looking up the name Dr Eliane Ba...

deniseann

•8 years ago

3 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for December 2016

A New Year

Inr crashed

Rash after taking BP meds.

High blood pressure

Twitter? How to

Misled and Upset

Question about Nausea, and non-wafarin treatment options for APS

INR Testing and local protocols

Confusing Thyroid results

Hughes syndrome and painfull bladder syndrome

APS and chickenpox

Eye Eye

To all

MRI scan

A grateful merry new health.

Happychristmas

INR 4 still having daily migraines

My wonderful Christmas news.

Living in Hell

Electric foot massager: helpful?

Little bit of advice pretty please.

Well my trial will soon be over and feel no different ... can anyone tell me why !!!

Increasing activity increases clotting?

Update on itchy skin continued! Some Questions!

Tested positive and then negative for APS

Confused newbie.

Antiplatelet vs anticoagulant therepy

Floppy foot

Hughs syndrome Having A raised INR

wanting some advice

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