Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,351 members • 10,539 posts

All posts for May 2013

Positive news :-)

Just wanted to share with everyone some positive news, especially as I have seen a recent post about the fear of losing one's job - I did lose my job, after 1...

Just wanted to share with everyone some positive news, especially as I have seen...

Lesley_D

•11 years ago

8 Replies

Raising money for Hughes syndrome foundation - is there any branded items to sell?

hello everyone, my sister is holding a small concert for her flute pupils and always gives the proceeds to charity. this year she has decided to give the money...

hello everyone, my sister is holding a small concert for her flute pupils and al...

kateb81

•11 years ago

3 Replies

Hi everyone, im new

Found this website today, and had to join as I havnt been able to find any other kind of support anywhere, anyway i'm from the north east of england and was...

Found this website today, and had to join as I havnt been able to find any other...

jessie05

•11 years ago

9 Replies

Want to take advantage of all our features? Just log in!

I am now Blogging our experience

As I posted earlier, Derek had a major CAPS event in October last year. He now has Addison's along with APS We have found people outside the Addison's...

As I posted earlier, Derek had a major CAPS event in October last year. He now ...

Tiggercat

•11 years ago

7 Replies

Should us Huggies be eating coconut oil?

I love the stuff and use it for all sorts but I was just reading some advertorial and started to wonder if we should be eating it: "Amongst other nutrients,...

I love the stuff and use it for all sorts but I was just reading some advertoria...

Coppernob

•11 years ago

5 Replies

New here.

Hi everyone.....Ive just joined after seeing your site on a google search. I recently underwent major surgery after a clot was behind my knee prohibiting...

Hi everyone.....Ive just joined after seeing your site on a google search. I ...

Hidden

•11 years ago

10 Replies

Curious about blog removal.

The daily email contained a link to a blog which has been removed. I read it yesterday and posted, this is the first site I've posted on so I'm a bit worried...

The daily email contained a link to a blog which has been removed. I read it yes...

Hidden

•11 years ago

3 Replies

Small blood blisters underneath nails - Ever had this?

Hi, I have an INR of 4.7, and the last couple of days have had small blood blisters appear underneath my nails which are sore. I have informed my...

Hi, I have an INR of 4.7, and the last couple of days have had small blood blist...

SammyJ

•11 years ago

4 Replies

Blood clot?

Hi everyone. I have a small patch just below my knee to the left slightly that's painful. I've suffered 2 major blood clots as many of you will know but I'm...

Hi everyone. I have a small patch just below my knee to the left slightly that's...

Charli84

•11 years ago

15 Replies

Apeal for Support. ACSMA (AntiCoagulation Self-Monitoring Alliance Survey to Feed Back to National Decision Makers

ACSMA is launching a nationwide survey to gauge access to INR self-monitoring and gain accurate information about the extent of the issues around...

ACSMA is launching a nationwide survey to gauge access to INR self-monitoring an...

warfarin1

•11 years ago

2 Replies

Staying pregnant after a stillbirth at 27 weeks.

Hello i just said hello and goodbye to my sweet baby boy carter who was stillborn at 27 weeks. I am 204 pounds, and was on a prophylactic dose of lovenox. (80...

Hello i just said hello and goodbye to my sweet baby boy carter who was stillbor...

arubey

•11 years ago

22 Replies

6 miscarriages. 1st positive anti coagulant test 2nd negative.

I have suffered 6 miscarriages and was referred to the recurrent miscarriage clinic where I tested positive for the lupus anticoagulant and was therefore...

I have suffered 6 miscarriages and was referred to the recurrent miscarriage cli...

BillyMiMa

•11 years ago

6 Replies

Pain and tenderness over ribs on right side. Anyone else experienced this?

I am on warfarin (since stroke in 2008) and plaquenil (for about 6mths). Over the last couple of days I have had pain and tenderness over my ribs on the right...

I am on warfarin (since stroke in 2008) and plaquenil (for about 6mths). Over t...

Yodel

•11 years ago

9 Replies

Feeling ridiculously light-headed, any suggestions?

Hi All For the last few days (maybe weeks) I have been feeling really light headed. I am in hospital for bloods tomorrow and for an appointment on Thursday...

Hi All For the last few days (maybe weeks) I have been feeling really light h...

Hidden

•11 years ago

13 Replies

has anyone thought of SURROGACY, instead of going through another miscarriage?

Skyllark

•11 years ago

8 Replies

Prickly skin starting plaquenil??

I've been on plaquenil 3 days, prescribed by Prof K. Since starting it, I've had rally prickly skin, especially towards the end of the day. Now I realise it's...

I've been on plaquenil 3 days, prescribed by Prof K. Since starting it, I've had...

Paleosooze

•11 years ago

3 Replies

APS Testing question

Hi all, Have been diagnosed with Hemiplegia Migraines and my Neurologist is now telling me to see a hematologist to have further testing. Thank you to Lynn...

Hi all, Have been diagnosed with Hemiplegia Migraines and my Neurologist is n...

svanhecke

•11 years ago

2 Replies

AntiCoagulation Europe needs your help with major new survey. Please take time to complete and thanks to all those who have already done so.

Just getting this to the top of the blogs again because we desperately need your views. We need your help with our major new survey Please help us by...

Just getting this to the top of the blogs again because we desperately need your...

warfarin1

•11 years ago

4 Replies

Adrenal insufficiency question for everyone who may have it....

Hi Everyone.... Wondering how many of you with APS also have adrenal insufficiency? I've found a few links on this in doing some research but not a...

Hi Everyone.... Wondering how many of you with APS also have adrenal insuffic...

Leigha

•11 years ago

5 Replies

Why your INR target range is what it is (or should be) but no mention of Hughes Syndrome/APS, Lupus or Sjögrens

British Society for Haematology recommended therapeutic intervals. Prophylaxis of deep venous thrombosis (DVT), including high risk surgery:...

British Society for Haematology recommended therapeutic intervals. ...

laserlight

•11 years ago

Be the first to reply

Now just on heparin 100mg due to procedure on thursday i get confused as ehat is ideal level

Because of procedure told to just take heparin and leave warfarin until after all of my ops over. What is the ideal inr on heparin i had tia whilst the haem...

Because of procedure told to just take heparin and leave warfarin until after al...

daisy11

•11 years ago

3 Replies

Hi Everyone, Normally just a lurker lol! Does anybody else find that their symptoms improve when their INR is higher ?.

I've just convinced my Consultant to raise my inr range as i feel more normal when it is at a higher level!, it took some time to get him to believe me and he...

I've just convinced my Consultant to raise my inr range as i feel more normal wh...

kalin1977

•11 years ago

13 Replies

Question about INR

Hi, I have just had my first INR test before going on Warfrin. I started my first one tonight . My starting point was 1 would I expect my INR to go up on...

Hi, I have just had my first INR test before going on Warfrin. I started my firs...

Tonkawoman69

•11 years ago

8 Replies

Do anyone suffer from Hemiplegic Migraines?

svanhecke

•11 years ago

18 Replies

Does anyone have Raynauds and Carpal Tunel with the APLS?

63_castle

•11 years ago

15 Replies

Could be sacked next Saturday due to having to much time off sick

Has anyone else had this problem with there work?

noodlesrita123

•11 years ago

9 Replies

APS and anemia

Who suffers from anemia (mild or severe)? I became anemic back in April, but my levels (wbc rbc, hgb) have dropped into the danger zone this month. My...

Who suffers from anemia (mild or severe)? I became anemic back in April, but my...

momtomany

•11 years ago

3 Replies

Hi all....Beginning to feel better and mentally stonger....

These last 2 weeks have been hell,Thanks for all your good wishes and kind and helpful comments. The chest infection which was a nasty one and difficult to...

These last 2 weeks have been hell,Thanks for all your good wishes and kind and h...

popshaw21

•11 years ago

17 Replies

Thought I would write something positive out of something negative

Hi everyone I'm fairly new to this forum. I've had a really bad few months, as I mentioned before I lost a set of identical twins because of a placenta blood...

Hi everyone I'm fairly new to this forum. I've had a really bad few months, as I...

Hidden

•11 years ago

7 Replies

Hypersensitivity - do other people feel as if their body is becoming more intolerant and sensitive to everyday things.

I could write a long list of things which affect me and I try to avoid, and the reactions include getting tight chested and wheezy, feeling nauseous, watering...

I could write a long list of things which affect me and I try to avoid, and the ...

viv112

•11 years ago

5 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for May 2013

Positive news :-)

Raising money for Hughes syndrome foundation - is there any branded items to sell?

Hi everyone, im new

I am now Blogging our experience

Should us Huggies be eating coconut oil?

New here.

Curious about blog removal.

Small blood blisters underneath nails - Ever had this?

Blood clot?

Apeal for Support. ACSMA (AntiCoagulation Self-Monitoring Alliance Survey to Feed Back to National Decision Makers

Staying pregnant after a stillbirth at 27 weeks.

6 miscarriages. 1st positive anti coagulant test 2nd negative.

Pain and tenderness over ribs on right side. Anyone else experienced this?

Feeling ridiculously light-headed, any suggestions?

has anyone thought of SURROGACY, instead of going through another miscarriage?

Prickly skin starting plaquenil??

APS Testing question

AntiCoagulation Europe needs your help with major new survey. Please take time to complete and thanks to all those who have already done so.

Adrenal insufficiency question for everyone who may have it....

Why your INR target range is what it is (or should be) but no mention of Hughes Syndrome/APS, Lupus or Sjögrens

Now just on heparin 100mg due to procedure on thursday i get confused as ehat is ideal level

Hi Everyone, Normally just a lurker lol! Does anybody else find that their symptoms improve when their INR is higher ?.

Question about INR

Do anyone suffer from Hemiplegic Migraines?

Does anyone have Raynauds and Carpal Tunel with the APLS?

Could be sacked next Saturday due to having to much time off sick

APS and anemia

Hi all....Beginning to feel better and mentally stonger....

Thought I would write something positive out of something negative

Hypersensitivity - do other people feel as if their body is becoming more intolerant and sensitive to everyday things.

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