Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

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All posts for September 2011

migraines :(

Wether I am having a migraine every morning for 4 days now! is because of my low INR or is it because of the disapointment of our trip we were supposed to have...

Wether I am having a migraine every morning for 4 days now! is because of my low...

Suzypawz

•13 years ago

23 Replies

Do people often have to receive blood transfusions?

It is my husband who is afflicted with Hughes/APS. He seems to be getting progressively weaker, and requiring more transfusions. Though I am an R.N - the...

It is my husband who is afflicted with Hughes/APS. He seems to be getting progr...

milliken2

•13 years ago

7 Replies

fed up with low inr

I thought I was really getting somewhere after three stable months and now thanks to the food poisoning episode I am all over the place again. Last Friday it...

I thought I was really getting somewhere after three stable months and now thank...

panda60

•13 years ago

5 Replies

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Me and My Dog Max

HI everyone, I was diagnosed with Hughes earlier this year. I have a fantastic friend in my Dog Max...he is a German Shepherd crossed with a Dingo. (yes I am...

HI everyone, I was diagnosed with Hughes earlier this year. I have a fantastic...

Mystynzl

•13 years ago

5 Replies

Still having trouble getting Gp to prescribe the Plaquenil!!!!! Aaaaargh!!!!

Hi all, Twice now have been to St Thomas`s and two different consultants recommended I be started on Plaquenil. One a lupus specialist and the other last...

Hi all, Twice now have been to St Thomas`s and two different consultants rec...

jessielou

•13 years ago

8 Replies

PRADAXA V WARFARIN

Hi does anyone out there know the difference between pradaxa and warfarin? Ive been told to go on warfarin but ive heard a few people on about pradaxa and know...

Hi does anyone out there know the difference between pradaxa and warfarin? Ive b...

emmaj

•13 years ago

8 Replies

Is there anyone out there near Seattle,Wa? I need to find any Doctor's who know about this...

LisaWA

•13 years ago

3 Replies

Pregnancy related APS

I am a newbe to the site but very glad to have found it. Having had 6 pregnancies and only 1 baby i was diagnosed with APS but only in pregnancy ( which i now...

I am a newbe to the site but very glad to have found it. Having had 6 pregnancie...

Rbpw

•13 years ago

4 Replies

Has anyone had a successful pregnancy after being diagnosed with APS.

Rbpw

•13 years ago

8 Replies

Be careful if you are self-testing......

A bit of warning to anyone thinking about using a Coaguchek XS to monitor INR. If you have tested positive for lupus antibodies the machine tends to give false...

A bit of warning to anyone thinking about using a Coaguchek XS to monitor INR. I...

travelnut

•13 years ago

15 Replies

Does anybody know if theres a link between cupping of the discs and optical nerve damage in APS patients?

Hi all - I had a stroke a couple of years ago and although it took two years to diagnose, and a cateract to add to the equation my opthalmic consultant says...

Hi all - I had a stroke a couple of years ago and although it took two years to ...

emmaj

•13 years ago

4 Replies

Staffordshire/Derbyshire area group leader!

Whoop whoop!!! :) Watch out...it looks like I'm a group leader!! I've just recieved an email off Kate saying she's informing everyone in...

Whoop whoop!!! :) Watch out...it looks like I'm a group leader!! ...

Suzypawz

•13 years ago

5 Replies

knew inr was low again!

For the last few days I knew my INR was low!! I have been extra clumsy, slurring, right hand/arm very cold, slow, etc. I've been to the gym...

For the last few days I knew my INR was low!! I have been extra clumsy, slurr...

Suzypawz

•13 years ago

13 Replies

DLA

Hi all - thanks for your advice the other day - I hope what ive found may help others. I contacted my local council and they are sending an officer round from...

Hi all - thanks for your advice the other day - I hope what ive found may help o...

emmaj

•13 years ago

4 Replies

Confused and worried

I was diagnosed with APS after having 3 miscarriages and raised Igm levels of 21. Apart from the miscarriages I feel fine, so Dr Khamashta said I have...

I was diagnosed with APS after having 3 miscarriages and raised Igm levels of 21...

HWickers

•13 years ago

12 Replies

St thomas's. Hughes consultant. Positive appointment.

Hi all, I've been st thomas's. Hughes clinic. The consultant was lovely, started on plaquenil and vit d with calcium, nobody noticed before that vit d level...

Hi all, I've been st thomas's. Hughes clinic. The consultant was lovely, start...

jessielou

•13 years ago

19 Replies

Is it common to have weak nails when you are on clexane injection?

ClareSteggles

•13 years ago

5 Replies

I lost both my legs to Hughes Syndrome.

I became a double below knee amputee after a late diagnosis of Hughes Syndrome. If the diagnosis had been made sooner, I would have been put on Warfarin and...

I became a double below knee amputee after a late diagnosis of Hughes Syndrome. ...

Carol-Barnsley

•13 years ago

35 Replies

Relief for medication side effects?

I've been prescribed slow release, 7 day, 5mg/hr 'Transdermal Bupreorphine’ patches to relive chronic back pain which I started on Saturday. My back pain has...

I've been prescribed slow release, 7 day, 5mg/hr 'Transdermal Bupreorphine’ pat...

SuzanneJ

•13 years ago

4 Replies

Funny man!

Here are a few links to view Tim Minchin for some healthy laughs!! On a earlier post it was said to have a laugh as it was good for you & to cope with pain...

Here are a few links to view Tim Minchin for some healthy laughs!! On a earli...

Suzypawz

•13 years ago

9 Replies

Losing weight!

Hello to all, today I have got my thinking into gear and I'm going to lose weight. I only have 7 stones to lose. I weigh 17 stone and I'm 5ft 7. Anyone fancy...

Hello to all, today I have got my thinking into gear and I'm going to lose weigh...

Hanna

•13 years ago

17 Replies

Pradaxa and Xarelto

I am currently on Pradaxa, (been lnearly 2 weeks now) and it seems to be working fairly well for me so far. My hands usually cold and very red with white...

I am currently on Pradaxa, (been lnearly 2 weeks now) and it seems to be working...

Hidden

•13 years ago

5 Replies

Hospital Reviews

Hi All, This is just a gentle reminder to ask you all to fill in a review of the hospitals (on the site) you have been involved in with your treatmnet and...

Hi All, This is just a gentle reminder to ask you all to fill in a review of...

paddyandlin

•13 years ago

1 Reply

Apple a day 'keeps strokes away'

Ok i think i am going to start liking apples again just thought you may be intrested see link below but have copied article as well. paddy...

Ok i think i am going to start liking apples again just thought you may be intre...

paddyandlin

•13 years ago

2 Replies

I have hughes but mild hemophilia as well. does anyone else have this or heard of this?

lovemyheart

•13 years ago

5 Replies

Last day at work today.. feels like I let APS win! :(

I was so proud of myself a couple of months ago when I reduced my hours at work and gave 8 weeks notice until I would leave completely- I was putting me first...

I was so proud of myself a couple of months ago when I reduced my hours at work ...

Rebecca_H

•13 years ago

13 Replies

I just had to post this!

I was doing some reaserch and i cam across this information and it did make me laugh so it may work lol. I have copied the text at the bottom so those...

I was doing some reaserch and i cam across this information and it did make me l...

paddyandlin

•13 years ago

9 Replies

New appointment went rubbish

Well we visited a blood man at Sheffield hallamshire hospital and he has tested me again and said he can't find APS! He has said we can have 40mg of clexane...

Well we visited a blood man at Sheffield hallamshire hospital and he has tested ...

Hanna

•13 years ago

20 Replies

dla advice too

I have been clinically diagnosed having 'probable' aps and anticardiolipin antibodies have shown up in pregnancy but dissapeared after pregnancy, which is...

I have been clinically diagnosed having 'probable' aps and anticardiolipin antib...

emmaj

•13 years ago

10 Replies

any poeple in north eastern u.s. with aps

havent heard of any people in north eastern u.s. having any exprience with any form of aps [ hughes - sydrome ] in my area . would like to hear from...

havent heard of any people in north eastern u.s. having any exprience with any...

jetjetjet

•13 years ago

42 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for September 2011

migraines :(

Do people often have to receive blood transfusions?

fed up with low inr

Me and My Dog Max

Still having trouble getting Gp to prescribe the Plaquenil!!!!! Aaaaargh!!!!

PRADAXA V WARFARIN

Is there anyone out there near Seattle,Wa? I need to find any Doctor's who know about this...

Pregnancy related APS

Has anyone had a successful pregnancy after being diagnosed with APS.

Be careful if you are self-testing......

Does anybody know if theres a link between cupping of the discs and optical nerve damage in APS patients?

Staffordshire/Derbyshire area group leader!

knew inr was low again!

DLA

Confused and worried

St thomas's. Hughes consultant. Positive appointment.

Is it common to have weak nails when you are on clexane injection?

I lost both my legs to Hughes Syndrome.

Relief for medication side effects?

Funny man!

Losing weight!

Pradaxa and Xarelto

Hospital Reviews

Apple a day 'keeps strokes away'

I have hughes but mild hemophilia as well. does anyone else have this or heard of this?

Last day at work today.. feels like I let APS win! :(

I just had to post this!

New appointment went rubbish

dla advice too

any poeple in north eastern u.s. with aps

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