Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for April 2012

Getting horrible pains in my lower back

For a long while now I occasionaly get these horrendous pains in my lower back, they're usually on my right side and always in the rough area of my kidneys....

For a long while now I occasionaly get these horrendous pains in my lower back, ...

Tomcat

•13 years ago

7 Replies

Anyone get Sharp Stabbing pains in the head (at random intervals)

From time to time I get really painfull stabbing pains in my head, they don't last long (few seconds at most) but they really sting, anyone else had pains like...

From time to time I get really painfull stabbing pains in my head, they don't la...

Tomcat

•13 years ago

68 Replies

Eye movement problem

Hiya Just wondering if anyone else has problems moving their eyes from left to right as this causes blurred vision and pain? Also choking and reduced movement...

Hiya Just wondering if anyone else has problems moving their eyes from left to ...

Allyson

•13 years ago

5 Replies

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13 year old son with possible Hughes

Hiya, I have hughes syndrome and have been diagnosed for 6 years now. Tom, my youngest son, 13, has had livedo for ever really but of late has had chest pain,...

Hiya, I have hughes syndrome and have been diagnosed for 6 years now. Tom, my y...

Allyson

•13 years ago

2 Replies

HEARING LOSS

Well my INR range is 3-4.5 and the last couple of days felt tired etc checked myself and it is 3.2 but have an appt in Haem tomorrow, but noticed my hearing...

Well my INR range is 3-4.5 and the last couple of days felt tired etc checked my...

daisy11

•13 years ago

8 Replies

Had the surgical breast biopsy Friday

I had the biopsy Friday and I am happy to report NO clotting problems...or bleeding problems!!!! I was SO relieved. The night of the procedure I was home...

I had the biopsy Friday and I am happy to report NO clotting problems...or bleed...

pumpkincake

•13 years ago

8 Replies

Our 1st Staffordshre meeting! 28/04/12.

We had our 1st Staffordshire meeting! :) We met at The Stanhope Arms as organized, unfortunetly quite a few people had texed or emailed me to say they can't...

We had our 1st Staffordshire meeting! :) We met at The Stanhope Arms as organiz...

Suzypawz

•13 years ago

10 Replies

Soo upset

Feel so so sad my grandad died this morning ge had a fall few week ago and ended up hacing bleed on brain wgich caused a stroke and basicly left him with brain...

Feel so so sad my grandad died this morning ge had a fall few week ago and ended...

kezebabe

•13 years ago

12 Replies

I just have to do this: We are 1 member off 700 in our community and I fly off in the early hours for one week in Eastern Europe.

So... although this is a bit early... no doubt we will get member number 700 when I am in mid air! so here you are, some fireworks to celebrate;...

So... although this is a bit early... no doubt we will get member number 700 whe...

MaryF

Administrator•13 years ago

4 Replies

hi all

should i b concerned my inr is 6.4 well out ov range !!!!!!!!!!!!!!!! i am extremely tired n been seen sick a few times....... myy inr has been fluctuatin 4...

should i b concerned my inr is 6.4 well out ov range !!!!!!!!!!!!!!!! i am ext...

rach1081985

•13 years ago

14 Replies

Itchy Skin

Hi every one. Is an itchy skin anything to do with LA/APS. It feels like something is crawling on my skin, I keep looking for rashes but there is none....

Hi every one. Is an itchy skin anything to do with LA/APS. It feels like som...

Stannington-lad

•13 years ago

16 Replies

Could my APS be the reason that I catch anything that's going around?

My haematologist has told me that she believes that I could well have had APS since birth. All my life I've suffered out of proportion with viruses and...

My haematologist has told me that she believes that I could well have had APS si...

struggling

•13 years ago

6 Replies

Exercise (again)

Going back to my question about exercise I spoke to mmy GP this morning. He is quite happy to send me to physio and with a recommendation that they start me...

Going back to my question about exercise I spoke to mmy GP this morning. He is q...

margaretjo

•13 years ago

7 Replies

Check this out re fibromyalgia - big thank you to kjay for the lead...

http://www.fibromyalgiaresearch.org/

kathyD64

•13 years ago

5 Replies

INR Testing

Hi to all I have been reading on site about others with INR testing. My question is:- Do you have to be on Warfarin to have your INR checked? Thank you...

Hi to all I have been reading on site about others with INR testing. My ques...

Stannington-lad

•13 years ago

3 Replies

A MAJOR BREAK THROUGH!!!!!

Hello everyone, I was diagnosed with APS last year...its not related to Lupis . Well i had been unable to work as my condition was so un predictable. Long...

Hello everyone, I was diagnosed with APS last year...its not related to Lupis...

Mystynzl

•13 years ago

9 Replies

An article of today's papers, which i will also upload on Lupus UK

http://www.guardian.co.uk/business/2012/apr/27/drug-company-nice-lupus-reject Mary F

http://www.guardian.co.uk/business/2012/apr/27/drug-company-nice-lupus-reject ...

MaryF

Administrator•13 years ago

2 Replies

inr ranges

St Thomas' set my inr range at 3 - 4 and the clinic try to keep it around 3.5, I was ok with that but now that I also have fibromyalgia find that around 4 is...

St Thomas' set my inr range at 3 - 4 and the clinic try to keep it around 3.5, ...

panda60

•13 years ago

6 Replies

blue hand!

I often have a bluish coloured left hand and a pink right hand, does anyone thoughts or experiences of similar strange look?

I often have a bluish coloured left hand and a pink right hand, does anyone thou...

purple

•13 years ago

8 Replies

Stressssss

So so soooooo stressed im stuck in warrington hospital with no fags im dyin for a cigg its sooo not fair xx

So so soooooo stressed im stuck in warrington hospital with no fags im dyin for ...

kezebabe

•13 years ago

10 Replies

How many of you have just APS without diagnosis of Lupus? Just wondering as I don't have Lupus but do have serious APS.

77tiger05

•13 years ago

20 Replies

Is tiredness part of having blood clot?

Hi all, 8 weeks ago i was dx with a blood clot in my left leg in my calf, since then my tiredness as got worse sleeping all time ,i also have fibro which i've...

Hi all, 8 weeks ago i was dx with a blood clot in my left leg in my calf, since...

julie66

•13 years ago

4 Replies

Fibromyalgia is it a real condition or just a "label' to suggest we have mental health issues?

I feel so angry/upset/frustrated by differing medical & non medical opinions of the condition fibromyalgia. I would love to have a poll to see how many of us...

I feel so angry/upset/frustrated by differing medical & non medical opinions of ...

kathyD64

•13 years ago

13 Replies

Need spinal surgery...has anyone had it when you have been on long term coumadin or anticoagulation. Pretty risky..

pumpkincake

•13 years ago

11 Replies

Meeting with an Mp! oh & a pic' of the newspaper article!!!

Here is a pic' of the article that went in my local paper.....I've scaled it next to a 10p....pathetic size!!! I got told it would be a large article with...

Here is a pic' of the article that went in my local paper.....I've scaled it nex...

Suzypawz

•13 years ago

36 Replies

Im in agony :(

Aww had this horrid pain for few days but last night it hit a peak and all day my lower tummy hips sides n back are killing me its drivin me mad just wanna...

Aww had this horrid pain for few days but last night it hit a peak and all day m...

kezebabe

•13 years ago

7 Replies

New guidelines for GP's for diagnosis of migraines and headaches, which may help our friends and relatives! with other types of headaches!

This is an up to date article. A further article more specifically towards Hughes Syndrome will come later on The Telegraph....

This is an up to date article. A further article more specifically towards Hugh...

MaryF

Administrator•13 years ago

6 Replies

Tiredness

Ok so ive been really tired for a long time but its not just tyred im always exausted and i dont even have to do anything i sleep loadssss n when i wake up...

Ok so ive been really tired for a long time but its not just tyred im always exa...

kezebabe

•13 years ago

20 Replies

Exercise

Hi, My main problems over the last 12 months coz of PEs is shortness of breathe, The least exersion and i just cant breathe, however Ive made a decision today...

Hi, My main problems over the last 12 months coz of PEs is shortness of breathe,...

margaretjo

•13 years ago

10 Replies

How does your fatigue feel?

Sounds daft, I know, but how does your tirdeness fel? For me it's lik e lking though mud and as if I want to just put my very heavy head down and never lift...

Sounds daft, I know, but how does your tirdeness fel? For me it's lik e lking t...

Eliza_E

•13 years ago

11 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for April 2012

Getting horrible pains in my lower back

Anyone get Sharp Stabbing pains in the head (at random intervals)

Eye movement problem

13 year old son with possible Hughes

HEARING LOSS

Had the surgical breast biopsy Friday

Our 1st Staffordshre meeting! 28/04/12.

Soo upset

I just have to do this: We are 1 member off 700 in our community and I fly off in the early hours for one week in Eastern Europe.

hi all

Itchy Skin

Could my APS be the reason that I catch anything that's going around?

Exercise (again)

Check this out re fibromyalgia - big thank you to kjay for the lead...

INR Testing

A MAJOR BREAK THROUGH!!!!!

An article of today's papers, which i will also upload on Lupus UK

inr ranges

blue hand!

Stressssss

How many of you have just APS without diagnosis of Lupus? Just wondering as I don't have Lupus but do have serious APS.

Is tiredness part of having blood clot?

Fibromyalgia is it a real condition or just a "label' to suggest we have mental health issues?

Need spinal surgery...has anyone had it when you have been on long term coumadin or anticoagulation. Pretty risky..

Meeting with an Mp! oh & a pic' of the newspaper article!!!

Im in agony :(

New guidelines for GP's for diagnosis of migraines and headaches, which may help our friends and relatives! with other types of headaches!

Tiredness

Exercise

How does your fatigue feel?

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