Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,354 members • 10,542 posts

All posts for August 2023

To see a neurologist or aps dr at lupus centre?

I have had a problem with a movement disorder for a few yrs now. I seen a local neurologist who don't think my movement disorder could be related to aps, why i...

I have had a problem with a movement disorder for a few yrs now. I seen a local ...

•8 months ago

My APS journey

Please feel free to listen to this podcast which Joel Nelson of The Chronic Pain club hosts . You can find out about my 17 year journey to diagnosis and how I...

Please feel free to listen to this podcast which Joel Nelson of The Chronic Pain...

•8 months ago

Migraine Stick

Hi Again This is vegan and has been tested here in the USA for being safe during pregnancy It is about the size of a tube of lipstick so easy to bring along....

Hi Again This is vegan and has been tested here in the USA for being safe durin...

•8 months ago

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migraine stick

A Foundation here in the us sent me one in the mail and I have found it to be a wonder I think about 10 & and it I keep in the fridge I don’t know why I...

A Foundation here in the us sent me one in the mail and I have found it to be a...

•8 months ago

New Booster

Hi! Was wondering if anyone has information on the upcoming booster. I had 3 Phizers and got Covid3 times. I have to return to work -/and boosters and RSV are...

Hi! Was wondering if anyone has information on the upcoming booster. I had 3 Ph...

•8 months ago

need help I’m back

hi it’s Debbie is Mary stlll posting! I have APS for over 8 years that I know about! Could never be regulated on warfarin! I was put on Lovenox/Enexoparin 8...

hi it’s Debbie is Mary stlll posting! I have APS for over 8 years that I know ab...

•8 months ago

When is the best time to take warfarin?

I have been prescribed warfarin but wasn't told what time of day to take it. Is it better morning or evening. I have to take 8mg for the 1st two days and then...

I have been prescribed warfarin but wasn't told what time of day to take it. Is ...

•9 months ago

Travel Insurance for pre-existing conditions

Hi Could any of you recommend a reliable Company to use for Travel Insurance and pre-existing conditions.

Hi Could any of you recommend a reliable Company to use for Travel Insurance ...

•9 months ago

Rituximab treatment

Has anyone done Rituximab treatment in Canada? If so how many treatments did you do… and how did it go? What hospital did you do it in, and what doctor did...

Has anyone done Rituximab treatment in Canada? If so how many treatments did you...

•9 months ago

doctors in canada

does anyone know of any good doctors that specialize in APS. Thank you to all who reply.

does anyone know of any good doctors that specialize in APS. Thank you to all w...

•9 months ago

ashwagandha any one?

i ve had one holistic doc say it’s okay and others are unfamiliar with it, so I would like to hear from someone with APS who has taken it. Please don’t tell...

i ve had one holistic doc say it’s okay and others are unfamiliar with it, so I ...

•9 months ago

up date

hi I will try and not write to much The nerve pain in my leg, I wrote about months ago, was caused by my hip Now going to have a hip replacement, followed...

hi I will try and not write to much The nerve pain in my leg, I wrote about mo...

•9 months ago

flu symptoms with aps / stroke history

it’s my first time getting flu since my stroke a year ago. As an aps (and stroke) patient from my understanding of the condition, I am not immunosuppressed....

it’s my first time getting flu since my stroke a year ago. As an aps (and str...

•9 months ago

Tooth Extraction

I’ve just been told that I need a tooth extracted and am supposed to be flying on Saturday. My dentist is getting very wound up about me being on...

I’ve just been told that I need a tooth extracted and am supposed to be flying o...

•9 months ago