Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,354 members • 10,542 posts

All posts for January 2022

Doctors who know Hughes and its comorbidity

Hi Especially to Kelly in West Texas I am in NJ with APS and all those usual add ons like Lupus but -I also have Hemophilia B and Porphyria. I had Dr.Erkan...

Hi Especially to Kelly in West Texas I am in NJ with APS and all those usual a...

•2 years ago

Advice

Hi wonder if anyone can offer any advice I was prescribed warfarin (life long) by Proff D'cruz and prophylactic Heparin if INR falls below 2.5 I self test...

Hi wonder if anyone can offer any advice I was prescribed warfarin (life long) b...

•2 years ago

Fatigue - How would you describe it?

I’ve been discussing with friends what fatigue is - here’s my description. Im interested to hear how others describe the fatigue they experience. Fatigue is...

I’ve been discussing with friends what fatigue is - here’s my description. Im in...

•2 years ago

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Being undiagnosed by St Thomas's?

Hi everyone. Not been around for ages. Am popping on because it's now my turn to face possibly being undiagnosed I am worrying because I have received a...

Hi everyone. Not been around for ages. Am popping on because it's now my turn to...

•2 years ago

Headaches With APS

Obviously I Suffer from APS , I Know From The Past When My INR Been on Lower Side Can Suffer From Headaches , Just Wondering If Any Of The APS Followers In...

Obviously I Suffer from APS , I Know From The Past When My INR Been on Lower ...

•2 years ago

Neurological symptoms

APS patients with neurological issues. Looking to hear treatment plans for patients also suffering from neurological issues. Any meds, treatment that has...

APS patients with neurological issues. Looking to hear treatment plans for patie...

Byourownadvocate

•2 years ago

INR Testing

For those taking Coumadin, when you have INR checked, are you doing finger stick or vein draw. Also, I came across a medical company that supplies an INR...

For those taking Coumadin, when you have INR checked, are you doing finger stick...

Byourownadvocate

•2 years ago

covid vaccine

So here I am unvaccinated (I'm not antivax at all just terrified)I have had excruciating facial pain Trigeminal neuralgia So severe lost 3 stone Having...

So here I am unvaccinated (I'm not antivax at all just terrified)I have had excr...

•2 years ago

Fantastic News

Finally some good news after a truly nightmarish year (sorry so long winded please see previous posts) After ending up in hospital I finally got a referral to...

Finally some good news after a truly nightmarish year (sorry so long winded plea...

•2 years ago

Have you been discharged from Tommies/Guys in last 18 months

Curious how many patients have been discharged and had all aps related meds taken away since pandemic started..even stating in some cases they never had aps to...

Curious how many patients have been discharged and had all aps related meds take...

•2 years ago

APS and COVID Vaccine thoughts

Hello I’m new here. And recently been told after having APS for over 26 years that I no longer have it. That my Critical Care Provider didn’t perform the...

Hello I’m new here. And recently been told after having APS for over 26 years th...

•2 years ago

Statin

Had my yearly review with my doctor today over the phone Now she wants me to double up my dose of atorvastatin from 40 mg to 80 mg and said since I had a...

Had my yearly review with my doctor today over the phone Now she wants me to do...

•2 years ago

Microclots, APS, Long Covid

I hope you all had a nice Christmas and I wish you a Happy New Year. I was sent this link by a friend (after being very ill again this week) and found it very...

I hope you all had a nice Christmas and I wish you a Happy New Year. I was sent ...

•2 years ago

Do I need a specialist?

I have been diagnosed with APS following a stroke at age 40. My care is managed by a stroke consultant at a local hospital. I have minimal change disease of my...

I have been diagnosed with APS following a stroke at age 40. My care is managed ...

Patientlyoptimistic

•2 years ago