Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for January 2013

My Atos report

Got a nice New Year present of the papers that will be sent off to the tribunal court for my appeal to go into the ESA support group instead of work related...

Got a nice New Year present of the papers that will be sent off to the tribunal ...

panda60

•11 years ago

8 Replies

Aspergillus anyone?

Following my bronchoscopy last week I do now know that I have aspergillus, though I don't yet know which strain, or whether it's invasive or an aspergilloma....

Following my bronchoscopy last week I do now know that I have aspergillus, thoug...

Coppernob

•11 years ago

4 Replies

CLOT IN ARM DESPITE WARFARIN AND HEPARIN

Hello well yesterday all day at hospital having scan on arm where discovered a clot have to up the warfarin, they say must have happended when warfarin inr...

Hello well yesterday all day at hospital having scan on arm where discovered a c...

daisy11

•11 years ago

7 Replies

Want to take advantage of all our features? Just log in!

Hi everyone,I have just spent a week in hospital fighting phuemonia which I had in both lungs.

I was in the ICU unit for 3 days and was very close to death,The treatment i recieved in the ICU unit was brilliant and i can't thank the nurses enough.When i...

I was in the ICU unit for 3 days and was very close to death,The treatment i rec...

popshaw21

•11 years ago

8 Replies

Does anybody know whether INR levels are afftected by the weather?

My INR has dropped below it's target range and my diet has been consistent.

didiz

•11 years ago

10 Replies

Bruising on clopidogrel - should I be concerned?

Hi all. I was diagnosed last month by St Thomas's and discharged straight to my GP, on the recommendation of taking aspirin, as I've had no clots (borderline...

Hi all. I was diagnosed last month by St Thomas's and discharged straight to my ...

Paleosooze

•11 years ago

9 Replies

Fungal lung infection?

I had a bronchoscopy last week. The consultant found she couldn't get into my right main bronchus because there "was a huge mass of phlegm, sputum and...

I had a bronchoscopy last week. The consultant found she couldn't get into my r...

Coppernob

•11 years ago

5 Replies

APS in Spain

Hi Everyone. I was due to go to the London Bridge Clinic this month but unfortunately I am too ill to make the journey :( So my question is has anyone ever...

Hi Everyone. I was due to go to the London Bridge Clinic this month but unfortu...

InSpain

•11 years ago

11 Replies

My story - I have just found i have APS

Hi - I have recently found out that i have APS. This has taken 12mths to get this result. In my first pregnancy they found a PE in my lungs at 32 weeks. I was...

Hi - I have recently found out that i have APS. This has taken 12mths to get thi...

Wenz15

•11 years ago

5 Replies

Skin necrosis? Unsure whether to medical opinion about wound on arm.

Hi I noticed a tiny wound on arm when getting up couple of day ago. It puzzled me. Looked as if someone with tiny finger nails had made a neat crescent moon...

Hi I noticed a tiny wound on arm when getting up couple of day ago. It puzzled ...

putterbunneh

•11 years ago

13 Replies

Close call yesterday

had been having a problem with low inr's that were not coming up - haveing trouble getting my pcp to increase warfarin above 5's- yesterday morning felt great...

had been having a problem with low inr's that were not coming up - haveing troub...

jetjetjet

•11 years ago

12 Replies

Hi, Being tested for Type 2 Diabetes. Take warfarin and other meds. I also itch mainly around my hips. Any help?

MaryH

•11 years ago

1 Reply

Anyone have similar symptoms and having trouble getting diagnosed?

My boyfriend has been having issues since he was younger. In the past muscle cramps had been his main issue and since he was little he would get sick a lot....

My boyfriend has been having issues since he was younger. In the past muscle cr...

Kfrancese

•11 years ago

6 Replies

I am awake again..

with.. burning feet most nights.. use to be occasional ..now most nights very tired and feed up.. any one else with APS suffering..?? have searched web..not...

with.. burning feet most nights.. use to be occasional ..now most nights very ...

Kuluvalley

•11 years ago

7 Replies

Support and Info for members

Hi All, Realise I not been on here much but thought would repost this as it seams to be useful for people (for those seen it already sorry)...

Hi All, Realise I not been on here much but thought would repost this as it ...

paddyandlin

•11 years ago

6 Replies

Where has my concentration gone?

I seem to be really struggling the last couple of weeks with my concentration levels. My short term memory is also a bit of a mess. I can walk into a room and...

I seem to be really struggling the last couple of weeks with my concentration le...

Glitterwitch

•11 years ago

31 Replies

Plaquenil battle won :)

Well I had a long debate with the chemist who blamed me being given quinoric on the GP. It seems they have to give the generic version where possible but coud...

Well I had a long debate with the chemist who blamed me being given quinoric on ...

Jade

•11 years ago

7 Replies

Hi all- WEll a new year ???????

Late December- ,had some tests done, CT chest ,lower abdomen, and groin area's-- ultra sounds of left lower extremities and all upper exstremities. 2009 had...

Late December- ,had some tests done, CT chest ,lower abdomen, and groin area's-...

jetjetjet

•11 years ago

8 Replies

Consultant Follow Up

Hi Everyone. I wrote to you all earlier this year re my pending visit to a consultant and what to ask - well, I went to see her (expected to see Dr Bruce but...

Hi Everyone. I wrote to you all earlier this year re my pending visit to a cons...

Missdaisy

•11 years ago

5 Replies

Endometrial Biopsy

Hi there. Just off for yet another Endometrial Biopsy. I am really nervous this time, not too sure why! Wish me luck! xxx

Hi there. Just off for yet another Endometrial Biopsy. I am really nervous thi...

InSpain

•11 years ago

3 Replies

How many of you are seronegative APS or also have sneddons syndrome?

Just curious about how those of you who are considered seronegative APS got a diagnosis or even got a doctor to listen to you. I just got my labs back and they...

Just curious about how those of you who are considered seronegative APS got a di...

Jen_1984

•11 years ago

5 Replies

Plaquenil should my script be Plaquenil?

I am to try plaquenil again and GP is happy. My script said hydroxychloroquine which is right but the pills I have been given say quinoric. I was expecting...

I am to try plaquenil again and GP is happy. My script said hydroxychloroquine w...

Jade

•11 years ago

8 Replies

Bioidentical hormone replacement therapy

When one of my docs suggested adding a topical progesterone cream to help me through perimenopause, I agreed, gave it a whirl, and learned to love that cream!...

When one of my docs suggested adding a topical progesterone cream to help me thr...

GinaD

•11 years ago

18 Replies

skin problems

Hi I am new here. I was diagnosed with APS after suffering a potentially fatal Pulmanory Embulism. One of my work colleagues had a daughter aged 26 who had...

Hi I am new here. I was diagnosed with APS after suffering a potentially fat...

happiness45

•11 years ago

6 Replies

flutuating INR

oN WARFARIN AND MANY OTHER MEDICATION INCLUDING HEPARIN SHOULD I FALL BELOW 3. oVER THE LAST COUPLE OF WEEKS IT HAS BEEN UP AND DOWN, AND DON'T I KNOW IT...

oN WARFARIN AND MANY OTHER MEDICATION INCLUDING HEPARIN SHOULD I FALL BELOW 3. ...

daisy11

•11 years ago

9 Replies

newsletter article

This is an article that Kate asked me to write for the next newsletter. I thought I would post it here too. It's a bit long winded but may be useful to anyone...

This is an article that Kate asked me to write for the next newsletter. I thoug...

Stella

•11 years ago

6 Replies

Portacath

Does any body have a Portacath fitted to receive treatment and/or take blood due to poor venus access?

Does any body have a Portacath fitted to receive treatment and/or take blood due...

MrsBL

•11 years ago

4 Replies

What to do during suspected flare-up?

I'm busily blaming myself for being too ill to function, just now. Specialist is ordering tests, scans & bloods etc, but thinks I'm experiencing a post-viral...

I'm busily blaming myself for being too ill to function, just now. Specialist is...

putterbunneh

•11 years ago

15 Replies

Clopidogrel - what dose should I be started on?

Being newly diagnosed and not coping with aspirin because of my delicate stomach, I'm going to discuss clopidogrel with my GP this morning. The consultant (who...

Being newly diagnosed and not coping with aspirin because of my delicate stomach...

Paleosooze

•11 years ago

5 Replies

DVT

Can anyone tell me what a DVT feels like , and did you know you had one?

Hollylewis

•11 years ago

8 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for January 2013

My Atos report

Aspergillus anyone?

CLOT IN ARM DESPITE WARFARIN AND HEPARIN

Hi everyone,I have just spent a week in hospital fighting phuemonia which I had in both lungs.

Does anybody know whether INR levels are afftected by the weather?

Bruising on clopidogrel - should I be concerned?

Fungal lung infection?

APS in Spain

My story - I have just found i have APS

Skin necrosis? Unsure whether to medical opinion about wound on arm.

Close call yesterday

Hi, Being tested for Type 2 Diabetes. Take warfarin and other meds. I also itch mainly around my hips. Any help?

Anyone have similar symptoms and having trouble getting diagnosed?

I am awake again..

Support and Info for members

Where has my concentration gone?

Plaquenil battle won :)

Hi all- WEll a new year ???????

Consultant Follow Up

Endometrial Biopsy

How many of you are seronegative APS or also have sneddons syndrome?

Plaquenil should my script be Plaquenil?

Bioidentical hormone replacement therapy

skin problems

flutuating INR

newsletter article

Portacath

What to do during suspected flare-up?

Clopidogrel - what dose should I be started on?

DVT

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