Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,354 members • 10,542 posts

All posts for May 2020

Thrombosis U.K. Webinar with Dr.Hunt

At about 14 minutes in, she addresses the question regarding risk with COVID and very honestly says she doesn’t know for sure. I found it helpful. The...

At about 14 minutes in, she addresses the question regarding risk with COVID and...

TwoH

•4 years ago

11 Replies

They say I’m a high risk and cannot go out yet.

But I’ve got APS, Lupus, Liver failure which is now under control, Under active Thyroid, plus a few other issues. But none of these affect my breathing etc. So...

But I’ve got APS, Lupus, Liver failure which is now under control, Under active ...

Teanna

•4 years ago

9 Replies

Morning Clots

Hi everyone hope you are keeping as well as can be expected and safe. Some mornings I have been waking up with small clots in my mouth there has been no mouth...

Hi everyone hope you are keeping as well as can be expected and safe. Some morni...

AlisonT2

•4 years ago

16 Replies

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Covid 19

Because I have Hughes syndrome if I catch covid 19 will I be more susceptible to sever illness and clotting

Because I have Hughes syndrome if I catch covid 19 will I be more susceptible to...

Ainsmay68

•4 years ago

8 Replies

APS specialist near Manchester UK recommendations?

Hi I have APS and I am on warfarin for life. However I don’t have a specialist and I find GP’s just don’t know what it is so they go vague and don’t take it...

Hi I have APS and I am on warfarin for life. However I don’t have a specialist a...

Bobbydoodle

•4 years ago

2 Replies

Looking for recommendation on the UK specialists accessible to me

Hi all, Thanks to this group I've been able to locate APS specialists within an hour and a half travel from where I live and was wondering if any of you could...

Hi all, Thanks to this group I've been able to locate APS specialists within an ...

gazaeee

•4 years ago

12 Replies

APS and covid19

Hi all, I’ve just been reading the BBC news article about the new information surrounding covid and blood clotting and sticky blood. These appear to be major...

Hi all, I’ve just been reading the BBC news article about the new information su...

Christine7

•4 years ago

15 Replies

Any alternatives to Warfarin ?

Hi all. Just wanted to ask if there were alternatives to Warfarin if you have APS? I was told Apixaban and at least one other don't work for us and read long...

Hi all. Just wanted to ask if there were alternatives to Warfarin if you have AP...

gazaeee

•4 years ago

16 Replies

Fatigue and tiredness any advice

Hi all, Been feeling really fatigued and wanted to ask if this is common for APS or DVT/PE? Would love to know if anything can be done to stop/improve it?

Hi all, Been feeling really fatigued and wanted to ask if this is common for APS...

gazaeee

•4 years ago

36 Replies

Why are my legs are getting worse due to the veins (ASP).

My legs are so black up to the knees & I was supposed to have a doplar March just gone. I’m now finding that both my feet I can no longer stretch, there is no...

My legs are so black up to the knees & I was supposed to have a doplar March ju...

Teanna

•4 years ago

14 Replies

Thrombophillia

Thank you Holly Heski for your explanation.I have triple positive APS with two venous clots. I didn't realize APS came under that umbrella term, stupid, of......

Thank you Holly Heski for your explanation.I have triple positive APS with two v...

Zamalek

•4 years ago

1 Reply

How to increase INR naturally?

How can I increase my INR naturally? Many have said people with APS feel better with higher INRs but my therapeutic range has not been adjusted from the usual...

How can I increase my INR naturally? Many have said people with APS feel better ...

gazaeee

•4 years ago

44 Replies

Pruning and sensitivity/numbness of fingertips

Hi all, Please all you APS sufferers , do any /all /some of you suffer with pruning in your fingertips also changes in sensitivity, sometimes a little...

Hi all, Please all you APS sufferers , do any /all /some of you suffer with pr...

Sevenstar

•4 years ago

9 Replies

Thrombophillia

Please could someone explain the difference between thrombophillia and Antiphospholipid syndrome? and the differing risk factors for forming clots? Thanks you

Please could someone explain the difference between thrombophillia and Antiphos...

Zamalek

•4 years ago

1 Reply

Two positive tests

Hi everyone, I had an antiocardiolipin test come back positive in January and one come back a weak positive 37 yesterday but docs have said no to thinning my...

Hi everyone, I had an antiocardiolipin test come back positive in January and on...

Danni789

•4 years ago

9 Replies

Coronavirus Experience with APS

This is all anecdotal (i.e. my experience), but it may be of interest. I have primary APS (stroke, DVT, kidney clots, cerebral infarcts). INR = 3-4 +...

This is all anecdotal (i.e. my experience), but it may be of interest. I have pr...

Hidden

•4 years ago

18 Replies

Statins and APS

Hi again guys , sorry I have another question! I have primary APS , touch wood as yet no clots etc and I had read statins are good for people with APS . My...

Hi again guys , sorry I have another question! I have primary APS , touch wood ...

Sevenstar

•4 years ago

25 Replies

Could I ask for a little support? Today is the day I have the 5th miscarriage.

Hello Everyone, I came across this forum with a broken heart. I was diagnosed APS (single positive) 5 years after my DVT+non-fatal PE and 4 miscarriages. This...

Hello Everyone, I came across this forum with a broken heart. I was diagnosed A...

Stillsomehopes

•4 years ago

22 Replies

I’m confused about blood clots in this pandemic Covid virus. I’ve got APS & on a blood thinner 2 injections daily, am I not likely to get it

Is sticky blood (that’s the medical term that medical team) good or not for APS sufferers?

Is sticky blood (that’s the medical term that medical team) good or not for APS ...

Teanna

•4 years ago

10 Replies

VeganWorld & Covid

I am a bit confused. Are you saying Beverley Hunt said keeping a high INR is too dangerous in her opinion?

I am a bit confused. Are you saying Beverley Hunt said keeping a high INR is too...

Zamalek

•4 years ago

4 Replies

As more is learned about the novel coronavirus, the way it works becomes better understood.

As more is learned about the novel coronavirus, the way it works becomes better understood. This recent Washington Post video details the way it tricks the...

As more is learned about the novel coronavirus, the way it works becomes better ...

lupus-support1

Administrator•4 years ago

3 Replies

Self Testing INR with Coagucheck - Off by set amount or totally random?

I just read that the Coagucheck may give inaccurate results for APS :( Does anyone know if it's usually out by a set amount or totally random? Pretty pointless...

I just read that the Coagucheck may give inaccurate results for APS :( Does anyo...

gazaeee

•4 years ago

24 Replies

APS and HRT

Hi there, I would love to hear from any body who has APS and who is, or has been on transdermal HRT. I am speaking with a menopause specialist tomorrow, as my...

Hi there, I would love to hear from any body who has APS and who is, or has been...

Honeymonster

•4 years ago

19 Replies

Safe INR testing

6 weeks ago I went to gp for INR tests. Gp rang and advised not to go in again for 6 weeks as it wasn't safe for me. Rang yesterday as I'm overdue. I've been...

6 weeks ago I went to gp for INR tests. Gp rang and advised not to go in again f...

Cinn987

•4 years ago

7 Replies

Enox side effect some

Hi everyone, New here. I’ve been on Enox since Dec and my breathing has been dreadful, can’t walk two paces without getting severely out of breath. I was put...

Hi everyone, New here. I’ve been on Enox since Dec and my breathing has been dre...

roxx1

•4 years ago

1 Reply

Strategies for keeping vitamin K intake constant

Hi all, I would love to know how many of you are able to maintain relatively constant K intakes for consistent INR? I've been on Warfarin for around 11 weeks...

Hi all, I would love to know how many of you are able to maintain relatively con...

gazaeee

•4 years ago

8 Replies

Hello, I'm new here.

Hi, everyone. I'm new to the forum and want to say hi. I had my pulmonary emboli in Aug. 2018 and was formally diagnosed with APS about a year and a half...

Hi, everyone. I'm new to the forum and want to say hi. I had my pulmonary emboli...

niloreid2

•4 years ago

10 Replies

Advice

Hi there , please can anyone recommend an APS specialist in the Warwickshire area? Also , as I'm quite new to this can anyone help me with some weird symptoms...

Hi there , please can anyone recommend an APS specialist in the Warwickshire are...

Sevenstar

•4 years ago

10 Replies

APS Specialist in or close to Berkshire

Hello, Does anyone know of any large hospital with an APS specialist in or close to Berkshire?

Hello, Does anyone know of any large hospital with an APS specialist in or clos...

gazaeee

•4 years ago

1 Reply

Possible symptomes of APS or Warfarin?

Hi all. I'm new to all of this and really struggling to understand and manage my anxiety. I was diagnosed with a DVT and PE 10 weeks ago and was placed on...

Hi all. I'm new to all of this and really struggling to understand and manage m...

gazaeee

•4 years ago

37 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for May 2020

Thrombosis U.K. Webinar with Dr.Hunt

They say I’m a high risk and cannot go out yet.

Morning Clots

Covid 19

APS specialist near Manchester UK recommendations?

Looking for recommendation on the UK specialists accessible to me

APS and covid19

Any alternatives to Warfarin ?

Fatigue and tiredness any advice

Why are my legs are getting worse due to the veins (ASP).

Thrombophillia

How to increase INR naturally?

Pruning and sensitivity/numbness of fingertips

Thrombophillia

Two positive tests

Coronavirus Experience with APS

Statins and APS

Could I ask for a little support? Today is the day I have the 5th miscarriage.

I’m confused about blood clots in this pandemic Covid virus. I’ve got APS & on a blood thinner 2 injections daily, am I not likely to get it

VeganWorld & Covid

As more is learned about the novel coronavirus, the way it works becomes better understood.

Self Testing INR with Coagucheck - Off by set amount or totally random?

APS and HRT

Safe INR testing

Enox side effect some

Strategies for keeping vitamin K intake constant

Hello, I'm new here.

Advice

APS Specialist in or close to Berkshire

Possible symptomes of APS or Warfarin?

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