Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,354 members • 10,542 posts

All posts for December 2021

Maximum INR levels according to country patient resides in

I've been reading today's posts about INR levels. I live in the US, where the medical community sets a "healthy" maximum INR for APS at 3.5. I feel best...

I've been reading today's posts about INR levels. I live in the US, where the...

•2 years ago

Prednisone and efficacy of Vaccine

Merry Christmas to All I’ve read a couple of medical articles that indicates, even at a low dose of prednisone, the vaccine is not nearly as effective, than...

Merry Christmas to All I’ve read a couple of medical articles that indicates, e...

•2 years ago

Second TEE procedure

Is it normal for my new Cardiologist to want me to have a second TEE procedure after having one 7 years ago? I had the first one because tests showed that I...

Is it normal for my new Cardiologist to want me to have a second TEE procedure a...

•2 years ago

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Tested Positive Will it Affect my INR?

Tested positive for covid. Only mild symptoms so far. I have APS and Lupus SLE. I take warfarin, hydroxychloroquine and vitamin D. My question is will it...

Tested positive for covid. Only mild symptoms so far. I have APS and Lupus SLE....

•2 years ago

M E R R Y C H R I S T M A S

Festive greetings to you all and wishing you a fantastically happy and healthy Christmas break xx

Festive greetings to you all and wishing you a fantastically happy and healthy C...

Administrator•2 years ago

Higher INR = better control??

Does anyone have any clinical info that supports better outcomes (less clotting, less brain fog, feel better) with higher INRs? I see consistent posting that...

Does anyone have any clinical info that supports better outcomes (less clotting,...

•2 years ago

Plasmapheresis treatments

Just received my 5th treatment. Doc saying not seeing the results they expected. Anyone else have this Tx and can give me idea, how many, when you saw results?...

Just received my 5th treatment. Doc saying not seeing the results they expected....

Byourownadvocate

•2 years ago

Coming off Apixaban

I have been on Apixaban 5mg twice a day for 6 months now due to me having a pulmonary embolism due to being bed bound with covid. I’m due to come off my...

I have been on Apixaban 5mg twice a day for 6 months now due to me having a pulm...

•2 years ago

Sudden onset headaches

I have primary APS but have never made a blood clot. I have survived bleeding out and multiple organ failure. I take Propranolol 20mg twice daily for migraine....

I have primary APS but have never made a blood clot. I have survived bleeding ou...

•2 years ago

Gut health and APS

Hi, I was reading an article relating to gut health and APS by a doctor in New York. I contacted his practice and got a reply with this link that you may find...

Hi, I was reading an article relating to gut health and APS by a doctor in New Y...

•2 years ago

My Moment of Flakiness

I had a WEIRD experience two days ago: I got in my car to go shopping, started the engine as normal, but I could NOT get the car out of Park (this is an...

I had a WEIRD experience two days ago: I got in my car to go shopping, started ...

•2 years ago

Dementia Clinic

Hi all been a while so here’s what’s happened recently (I think over last year but can’t be sure with my memory) . Anyhow am now under a yearly check up with...

Hi all been a while so here’s what’s happened recently (I think over last year b...

•2 years ago

Ramipril

Hi, I have APS on warfarin and just started ramipril for high blood pressure. My question is I am having the side effect of pins and needles since starting the...

Hi, I have APS on warfarin and just started ramipril for high blood pressure. My...

•2 years ago

A new discovery for potential treatment!

Light at the end of the blood thinner treatment tunnel? Just read this today:...

Light at the end of the blood thinner treatment tunnel? Just read this today:.....

•2 years ago

Can anyone tell me how to delete a post I made which was incorrect

I was talking about APS in Australia

I was talking about APS in Australia

•2 years ago

New to the “club”

Hi everyone. I am here today because I was just recently diagnosed with APS. Triple positive with high levels. This is hard for me to accept and I am very...

Hi everyone. I am here today because I was just recently diagnosed with APS. Tr...

•2 years ago

Mount S. new doctor from Yale

specialists nyc could you please repost contact info ty

specialists nyc could you please repost contact info ty

•2 years ago

Arvind says APLS experts on every continent

Arvind in a chat session said there is an APLS expert on every continent. Who is it in Australia can anyone help me or give me his contact?

Arvind in a chat session said there is an APLS expert on every continent. Who i...

•2 years ago

Link to Symposium or Recording

I also did not receive a link. Maybe it did not travel across the pond. Is there still access and is it possible to view a recording Thank You Susan....

I also did not receive a link. Maybe it did not travel across the pond. Is ther...

•2 years ago

Moderna Vaccine & APS

Taking my first Covid Vaccine.. Moderna tomorrow. Thoughts, reactions, how long did side effects if any last.

Taking my first Covid Vaccine.. Moderna tomorrow. Thoughts, reactions, how long...

GirlfromTennessee

•2 years ago

Pregnancy and APS

Hi all..anyone with APS had a successful pregnancy with only baby aspirin throughout pregnancy or no treatment at all? I’ve read so many different stories and...

Hi all..anyone with APS had a successful pregnancy with only baby aspirin throug...

•2 years ago