Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for November 2020

Covid vaccination

Hi all, Interesting to note that the Pfizer vaccine may be rolled out shortly. Does anyone know if it's OK to take it if you have APS and compromised immune...

Hi all, Interesting to note that the Pfizer vaccine may be rolled out shortly. D...

•4 years ago

My Experience with COVID

Hi all - I know there have been some questions and curiosities around how covid affects those with APS. I had it so I thought I’d share my experience. I’m 34...

Hi all - I know there have been some questions and curiosities around how covid ...

•4 years ago

Clotting screen.

Due to some difficulties obtaining a decent blood sample for a private b12 test, I asked my Gp for a clotting screen. I collected a paper copy yesterday....

Due to some difficulties obtaining a decent blood sample for a private b12 test,...

•4 years ago

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Happy Birthday Professor Graham Hughes

Happy Birthday to Prof, who is 80 today! Thank you to Suzanne J, for the lovely photos! MaryF

Happy Birthday to Prof, who is 80 today! Thank you to Suzanne J, for the lovely...

Administrator•4 years ago

Not home yet

Well what a to do I’ve been having still not home I was in supported housing for intensive physio etc Both the OT and physio were concerned that I was...

Well what a to do I’ve been having still not home I was in supported housing f...

•4 years ago

Covid Postive and APS + ITP

Hi everyone unfortunately I have bad news , my mum got admitted to hospital with covid 19 and has been there since Tuesday, me and my dad feel sick and took a...

Hi everyone unfortunately I have bad news , my mum got admitted to hospital with...

JohnnySouthside

•4 years ago

Referral recommendations - Guys, UCLH or John Radcliff

Hi All, After a bunch of symptoms that have had me going back and forth to my local doctors, the GP has agreed to refer me to the hospital of my choosing. He...

Hi All, After a bunch of symptoms that have had me going back and forth to my lo...

•4 years ago

Blood test results

Hello, On warfarin indefinitely for APLS/Hughes syndrome I had some blood test results and I could do with some translation if anyone has the time please: ALT...

Hello, On warfarin indefinitely for APLS/Hughes syndrome I had some blood test ...

•4 years ago

Slightly raised ALT

Hi All, Hematologist wrote back on some bloods I had recently. He said I had a 'Slightly raised ALT of 46' but has not recommended any action. I think it is...

Hi All, Hematologist wrote back on some bloods I had recently. He said I had a '...

•4 years ago

Home, not yet

Thank you all for your messages of support I do read them all. I’m not quite home from hosp, currently in a supporting housing flat. It’s designed to give...

Thank you all for your messages of support I do read them all. I’m not quite ho...

•4 years ago

Hydroxychloroquine and Primary APS

Hi All, I am new to this wonderful group. Diagnosed in January with triple positive APS after a large dvt. The attached link below is a recent study on use...

Hi All, I am new to this wonderful group. Diagnosed in January with triple posi...

•4 years ago

Bluma

It’s complete and utter exhaustion ever associated with APS? I don’t have a reason to be in touch with my Nuro all that often and he has given me something...

It’s complete and utter exhaustion ever associated with APS? I don’t have a reas...

•4 years ago

Public Speaking not always the best....

I have noticed a brain fog creeping into my life. I can’t always find the right word or phrase. Is there any medication or treatment for this. (APS for 8...

I have noticed a brain fog creeping into my life. I can’t always find the right...

•4 years ago

British Society for Haematology COVID article

APS antibodies associated with blood clotting in COVID-19 https://b-s-h.org.uk/about-us/news/autoantibodies-may-contribute-towards-covid-related-blood-clots/

APS antibodies associated with blood clotting in COVID-19 https://b-s-h.org.uk/...

•4 years ago

Warfarin (Coumadin) Success?

I'm currently on Xarelto, but investigating whether or not folks who take Warfarin/Coumadin get relief from APS-associated symptoms -- like tinnitis, memory...

I'm currently on Xarelto, but investigating whether or not folks who take Warfar...

•4 years ago

Pain in upper back

Hi can anyone help I hurt my stomach in my desk pulled my chair in too fast! That was bad enough but today I have a high intensity pain in my upper back...

Hi can anyone help I hurt my stomach in my desk pulled my chair in too fast! T...

•4 years ago

Pinky and Perky

Pinky and Perky having a nap

Pinky and Perky having a nap

•4 years ago

Hosp pt4

Well what a weird couple of weeks I’ve been having, there is a week that i have no recall about whatsoever. As my lad would say that’s a week your not going to...

Well what a weird couple of weeks I’ve been having, there is a week that i have ...

•4 years ago

APS proven: Scientists Have Uncovered the Likely Cause of a Serious COVID-19 Symptom: Blood Clotting

https://apple.news/ATamuFhw_S6SIgKmlqlvjog So what does this mean for us?

https://apple.news/ATamuFhw_S6SIgKmlqlvjog So what does this mean for us?

•4 years ago

Question and Answer professor Hughes

Thank you, just watched this really good as usual, would recommend it thank you

Thank you, just watched this really good as usual, would recommend it thank you

•4 years ago

Bleeding when you poo

Bleeding when you poo, not consitpated and balance

Bleeding when you poo, not consitpated and balance

•4 years ago

Hosp pt3

Well, here was me looking positive and ready to go home and then crash! Straight to HDU massive gunge/ yucky stuff all over left lung and not much use in right...

Well, here was me looking positive and ready to go home and then crash! Straight...

•4 years ago