Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

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All posts for December 2018

2019

I’d like to wish everyone a happy, prosperous and healthy new year. May we meet doctors who listen and understand us and give the correct treatment. I’m...

I’d like to wish everyone a happy, prosperous and healthy new year. May we meet...

judes

•5 years ago

8 Replies

Looking for an APS specialist in the San Francisco Bay area

Hi Everyone! I have been suffering from POTS for over 7 years, and have had various ANA and C4 complement blood tests come back borderline over the years as...

Hi Everyone! I have been suffering from POTS for over 7 years, and have had vari...

annabanana23

•5 years ago

2 Replies

HAPPY XMAS

Hi all just wishing you a merry xmas and happy new year , only just diagnosed with APS will post my 2year journey after xmas . be good everyone and if you...

Hi all just wishing you a merry xmas and happy new year , only just diagnosed wi...

dexters

•5 years ago

7 Replies

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Scary Update on a thread of mine

I thought I would update you all on my original thread, though not the update I would have liked to give....

I thought I would update you all on my original thread, though not the update I ...

LupusKaren

•5 years ago

12 Replies

Christmas is here

I would like to take this time to wish all my fellow SLUDGE BLOODS a VERY HAPPY AND JOYFUL CHRISTMAS and HOLIDAY SEASON . Wishing a safe and pain and...

I would like to take this time to wish all my fellow SLUDGE BLOODS a VERY HAPP...

jetjetjet

•5 years ago

11 Replies

Wishing everybody on here a very Merry Christmas

Dear everybody, hoping you all have a wonderful Christmas break...... https://www.youtube.com/watch?v=RVguSWYwSsA MaryF

Dear everybody, hoping you all have a wonderful Christmas break...... https://w...

MaryF

Administrator•5 years ago

7 Replies

Warfarin and Altitude

I recently enquired about warfarin and altitude as I was thinking of completing the Everest Base Camp Walk in November '19. Sorry to say that my...

I recently enquired about warfarin and altitude as I was thinking of completing ...

rogergorman

•5 years ago

2 Replies

Worrier

Reaching out Iam relaxing and out of blues start to feel funny When i stand or walk feel shakey Have palpitations for no reason

Reaching out Iam relaxing and out of blues start to feel funny When i stand or w...

morro

•5 years ago

5 Replies

Aorta valve replacement

It is getting closer to when I'll have to get my aorta valve replaced. Besides having my hematologist draw up a bridging plan, is there anything else that I...

It is getting closer to when I'll have to get my aorta valve replaced. Besides ...

msins

•5 years ago

5 Replies

How long does the medication take to work?

Hi all. I have finally got an agreement from the specialist to start treatment for Serro-negative APS. I hopefully get the prescription in the new year. I am...

Hi all. I have finally got an agreement from the specialist to start treatment f...

Skatingonthinice

•5 years ago

4 Replies

Inquiry Regarding Antiphospholipid Syndrome

Greetings! I've just joined this community and one of my main reasons for being here is to know more about the aforementioned topic above. I know this may come...

Greetings! I've just joined this community and one of my main reasons for being ...

Adrian_The_Sci_Guy

•5 years ago

2 Replies

P o t S

Has anyone on here got POTS ? X

amy1808

•5 years ago

15 Replies

Anemia due to hemicolectomy causing malabsorbtion

Looking for help please. Had a hemicolectomy last December and since then I have needed three blood transfusions due to low HB levels. Can anyone help me and...

Looking for help please. Had a hemicolectomy last December and since then I hav...

GHLowHB

•5 years ago

1 Reply

APS diagnosed July 2018 - still unwell

Hello to Everyone Just enquiring on behalf of my brother in Australia who has been diagnosed with APS and is now on Warfarin which he commenced in July/August...

Hello to Everyone Just enquiring on behalf of my brother in Australia who has be...

johnchoe

•5 years ago

14 Replies

Difficulty getting air/ breathing in APS

Hi All I am still in the tricky position of trying to diagnose if I have APS following a heart attack in July. One thing that I noticed at the time, right...

Hi All I am still in the tricky position of trying to diagnose if I have APS fol...

zoedavies1

•5 years ago

2 Replies

Side effects inr too high

For the last few months my inr is out of control. I SHOULD SIT BETWEEN 3.2 to 3.5 (unrealistic I know) yet I keep hoping. I have multiple medical issues...

For the last few months my inr is out of control. I SHOULD SIT BETWEEN 3.2 to 3...

Sanpap

•5 years ago

6 Replies

Professor Graham Hughes' Monthly Blog - December 2018

https://ghic.world/self-help/blog/december-2018?fbclid=IwAR1S81Vb3VlWFKHxMOCFkRrxyERegZJA7VUz3_egWP5E2nnMfRo0N5paaBk MaryF

https://ghic.world/self-help/blog/december-2018?fbclid=IwAR1S81Vb3VlWFKHxMOCFkRr...

MaryF

Administrator•5 years ago

24 Replies

A gentle reminder regarding about looking after ourselves in cold weather/NHS link

https://www.nhs.uk/live-well/healthy-body/keep-warm-keep-well/ Mary F

MaryF

Administrator•5 years ago

2 Replies

Rare disease patient cards?

Hello Everyone! I went for my very first Haematology appointment this week and I have left feeling pretty positive - for the first time in ages I feel I am...

Hello Everyone! I went for my very first Haematology appointment this week and I...

Lorraine08

•5 years ago

5 Replies

Memory

Hi guys , does anybody get really bad short term memory loss . Some days I frighten myself how bad it can get x

Hi guys , does anybody get really bad short term memory loss . Some days I frigh...

amy1808

•5 years ago

23 Replies

APS and links to other conditions

I don’t post often, others have more knowledge than I, but do read all the posts. I’ve read a lot recently about other conditions and the link to APS. My...

I don’t post often, others have more knowledge than I, but do read all the posts...

judes

•5 years ago

11 Replies

APS and cervical cancer

Hi All, haven't posted for ages but now have a question. I have had a 'borderline changes' smear result and have read that people with an autoimmune disease is...

Hi All, haven't posted for ages but now have a question. I have had a 'borderlin...

debatwistow

•5 years ago

5 Replies

Antithrombin

Hi everybody. I had 2 pregnancy loss at 17 weeks and 26 weeks, so I did "anti cardio G" and "lupus anticoagulant antibody". These test were negative but...

Hi everybody. I had 2 pregnancy loss at 17 weeks and 26 weeks, so I did "anti c...

sadina

•5 years ago

2 Replies

A useful paper on Epilepsy and Hughes Syndrome/APS

https://www.ncbi.nlm.nih.gov/pubmed/27225212 MaryF

MaryF

Administrator•5 years ago

3 Replies

Lupus Anticoagulant second test positive.

Hello, New to all of this. On 10/12 I tested high (20) for Hexagonal Phospholipid Neutral, and high (27) for Anticardiolipin Ab, IGM. My APTT was high (30.6)....

Hello, New to all of this. On 10/12 I tested high (20) for Hexagonal Phospholip...

Purpleblood

•5 years ago

2 Replies

Hemiplegic migraine

I fell ill after having a migraine I presented with stroke like symptoms still left with no left leg or arm movement. Speech and face better. Has anyone with...

I fell ill after having a migraine I presented with stroke like symptoms still ...

Ash0507

•5 years ago

34 Replies

positive ANA negative anticoagulant test

I haven't been to a doc in a while but was told a number of years ago based on DSDNA test with numbers of 1000 to 1? I recently went to a new doctor and my...

I haven't been to a doc in a while but was told a number of years ago based on D...

phantomkirby

•5 years ago

4 Replies

Chin and lip numbness after dental implant surgery

Has anyone had the above symptoms after dental implants and if so did it go away and after how long

Has anyone had the above symptoms after dental implants and if so did it go away...

Bluebagger

•5 years ago

1 Reply

Could there be a connection between APS and Enlarged Heart?

I'm 58 with APS. At Dr visit last week (regular physical), he said my chest x-ray showed an Enlarged Heart. I'm sceduled for a battery of tests later in the...

I'm 58 with APS. At Dr visit last week (regular physical), he said my chest x-ra...

zonker

•5 years ago

6 Replies

Reflexology and warfarin?

I have APS and take Warfarin and Aspirin (Fragmin when INR too low) I've been asked to be a case study for a friend training in Reflexology. Does anyone know...

I have APS and take Warfarin and Aspirin (Fragmin when INR too low) I've been a...

AvsG

•5 years ago

4 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for December 2018

2019

Looking for an APS specialist in the San Francisco Bay area

HAPPY XMAS

Scary Update on a thread of mine

Christmas is here

Wishing everybody on here a very Merry Christmas

Warfarin and Altitude

Worrier

Aorta valve replacement

How long does the medication take to work?

Inquiry Regarding Antiphospholipid Syndrome

P o t S

Anemia due to hemicolectomy causing malabsorbtion

APS diagnosed July 2018 - still unwell

Difficulty getting air/ breathing in APS

Side effects inr too high

Professor Graham Hughes' Monthly Blog - December 2018

A gentle reminder regarding about looking after ourselves in cold weather/NHS link

Rare disease patient cards?

Memory

APS and links to other conditions

APS and cervical cancer

Antithrombin

A useful paper on Epilepsy and Hughes Syndrome/APS

Lupus Anticoagulant second test positive.

Hemiplegic migraine

positive ANA negative anticoagulant test

Chin and lip numbness after dental implant surgery

Could there be a connection between APS and Enlarged Heart?

Reflexology and warfarin?

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