Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

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All posts for May 2016

Article

http://www.dailymail.co.uk/health/article-147126/DIY-doctor-tests-blood-clots-minutes.html MaryF

http://www.dailymail.co.uk/health/article-147126/DIY-doctor-tests-blood-clots-mi...

MaryF

Administrator•8 years ago

6 Replies

Following my previous posts....now undiagnosed

Following my previous posts where i was told to see a local rheumy after all this time of being treated in london 'following new management'... i have hit a...

Following my previous posts where i was told to see a local rheumy after all th...

emmaj

•8 years ago

10 Replies

Hughes Syndrome and Aspirin in the news

New Study:...

MaryF

Administrator•8 years ago

3 Replies

Want to take advantage of all our features? Just log in!

Suggestions for compression stockings for summer?

It's almost 90 degrees here in Washington DC. I went without my stockings for two days and am paying for it. Any brands you like or tips would be helpful....

It's almost 90 degrees here in Washington DC. I went without my stockings for tw...

Holley

•8 years ago

4 Replies

Tinnitus from plaquenil

Hello , I suffer from rheumatoid arthritis and I take Plaquenil already 3 months , began me tinnitus in my right ear a week ago . Only a week later I was...

Hello , I suffer from rheumatoid arthritis and I take Plaquenil already 3 months...

Hidden

•8 years ago

2 Replies

Cluster seizures driving me crazy.

Anyone else out there who suffers with Deja-vu type seizures? if so please let me know what treatment you have had to cope with this strange Phenomenon.

Anyone else out there who suffers with Deja-vu type seizures? if so please let m...

popshaw21

•8 years ago

4 Replies

Dorset APS Support Group

Hi All I live in Gillingham, darkest north Dorset (UK) and would like to set up a support group for APS sufferers in this part of the world. I would love to...

Hi All I live in Gillingham, darkest north Dorset (UK) and would like to set up ...

BillyBean

•8 years ago

7 Replies

Hi

Hi everyone, I am Ana and I just discovered that I suffer from Hughes syndrome after a DVT. It is being hard and I am happy to find a group like this to...

Hi everyone, I am Ana and I just discovered that I suffer from Hughes syndrome a...

anaastgal

•8 years ago

2 Replies

I'm back but oh so tired of it all

I am so tired and just now realize how much involvement that this illness causes my entire body. I recently, and again since December have spent more time in...

I am so tired and just now realize how much involvement that this illness causes...

dar58

•8 years ago

3 Replies

Too much going on.

I am 55 yrs old and going through alot in my life. In 2012 it started with phnewmonia and at that time I found out my sugar was way too high went into a coma...

I am 55 yrs old and going through alot in my life. In 2012 it started with phnew...

Angeleyez

•8 years ago

4 Replies

Me again, so what I thought were panic attacks were TIA's

After yesterday's call from Dr Robinson; my Haematologist at St T's it transpires I've been suffering recurrent TIA's. I'd assumed they were nasty panic...

After yesterday's call from Dr Robinson; my Haematologist at St T's it transpire...

Herbs77

•8 years ago

6 Replies

Travel Insurance

Where is the best place to get one trip insurance and what roughly is the price ?

Where is the best place to get one trip insurance and what roughly is the price ...

Hamy

•8 years ago

6 Replies

Reminder

Hi for those of us in the UK, if you have that spare minute, go on NHS Choices and rate the services you use, easy to make a profile, you do NOT have to use...

Hi for those of us in the UK, if you have that spare minute, go on NHS Choices ...

MaryF

Administrator•8 years ago

Be the first to reply

Is anyone using enoxaparin inj. Only for APS?

Dr is willing to put me on enoxaparin every 12 hrsand take me off of warfarin, I will still maintain my low dose aspirin , as well as, plaquinil, any...

Dr is willing to put me on enoxaparin every 12 hrsand take me off of warfarin, I...

Wittycjt

•8 years ago

7 Replies

If I don't have Hughes/lupus, would a Hughes/lupus specialist still look into other possibilities, e.g. mixed connective tissue disease?

Hi, If I don't have Hughes/lupus, would a Hughes/lupus specialist still look into other possibilities, e.g. mixed connective tissue disease (of which I also...

Hi, If I don't have Hughes/lupus, would a Hughes/lupus specialist still look int...

Spicer21

•8 years ago

8 Replies

Feeling frustrated

Went to see my professor yesterday , told him of a few incidents I have had , fell down stairs last week and fell on Friday and banged my heads, ended up in...

Went to see my professor yesterday , told him of a few incidents I have had , fe...

amy1808

•8 years ago

14 Replies

Hustoric blood clot found in cerebellum

Hi guys, after an MRI on my brain I saw Dr Robinson at St Thomas' yesterday and it turns out i have an old blood clot in th back of my brain which means i once...

Hi guys, after an MRI on my brain I saw Dr Robinson at St Thomas' yesterday and ...

Herbs77

•8 years ago

1 Reply

Should I be under the care of a specialist?

Hi, I was diagnosed with APS 6 years ago following several miscarriages. I did see a blood specialist at the time for a very brief meeting where I was giving a...

Hi, I was diagnosed with APS 6 years ago following several miscarriages. I did s...

Caroline03

•8 years ago

7 Replies

Colonoscopy yet again

Had colonoscopy last week.agony.Original doctor I saw prior to it wanted me to continue warfarin n said if any treatment needed duri g procedure I would have...

Had colonoscopy last week.agony.Original doctor I saw prior to it wanted me to c...

Fra22-57

•8 years ago

9 Replies

I had Lymes disease twice and a flu shot prior to being diagnosed w/ APS. Anyone else?

Trying to find a connection prior to diagnosis. Anything, anyone?

Wittycjt

•8 years ago

6 Replies

Weight loss and APS

Hi .. My son, had another mini stroke last November which will be his 11th. He will be 56 on Friday and had the first stroke at the age of 30. Due to the...

Hi .. My son, had another mini stroke last November which will be his 11th. He...

Zimmer

•8 years ago

3 Replies

Iron deficiency

Vitamin b12 deficiency is it common with people who suffer with aps symdrome and if so what do I need to do about it

Vitamin b12 deficiency is it common with people who suffer with aps symdrome and...

Tim_Thorpe

•8 years ago

3 Replies

Ear problems anyone?

Hi all! I've suffered from tinnitus for years - mostly when I've been run down or ill but it's been constant for the last two. I now get a rushing sound when I...

Hi all! I've suffered from tinnitus for years - mostly when I've been run down o...

minnime63

•8 years ago

37 Replies

SEARCHING FOR A DOCTOR IN NORTHERN CALIFORNIA, (OR POSSIBLY ANYWHERE IN CALIFORNIA)

Hi everyone, I have been searching for a doctor in Northern California who knows something about APS and I am failing. Doctors who say they "know", don't. I am...

Hi everyone, I have been searching for a doctor in Northern California who knows...

Mikki54

•8 years ago

16 Replies

Hemoglobin test

Does anyone know where I can get a hemoglobin test here in Kinsale, Ireland? On vacation for a month and need to have it checked. Must keep it below 14....

Does anyone know where I can get a hemoglobin test here in Kinsale, Ireland? On ...

Kinsalelady

•8 years ago

7 Replies

Throat swollen

They said I have severe case of GERD! Plus a couple of spots! Ome side of my throat is much larger than the other and because it's so very swollen there are...

They said I have severe case of GERD! Plus a couple of spots! Ome side of my thr...

Debbweb01

•8 years ago

8 Replies

It's not just a clotting disorder

Thought I'd share one of the charity's infographics with you all.

Hidden

•8 years ago

4 Replies

Adelaide, Australia- APS specialists?

I have an appointment with Dr. Fiona Goldblatt on the 4th of November but my symptoms are quite severe and incapacitating, hence I can’t imagine waiting for...

I have an appointment with Dr. Fiona Goldblatt on the 4th of November but my sym...

adelaide

•8 years ago

5 Replies

Self testing

Where can I get a INR self testing kit from? I don't think of GPs will fund it 😏

Where can I get a INR self testing kit from? I don't think of GPs will fund it �...

Iinca123

•8 years ago

16 Replies

rivaroxaban And APS.

Hi. Can anyone tell me if they have been taking rivaroxaban at all, for APS? How have you felt on it and has it improved your health? And is there an...

Hi. Can anyone tell me if they have been taking rivaroxaban at all, for APS? H...

Ally7

•8 years ago

15 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for May 2016

Article

Following my previous posts....now undiagnosed

Hughes Syndrome and Aspirin in the news

Suggestions for compression stockings for summer?

Tinnitus from plaquenil

Cluster seizures driving me crazy.

Dorset APS Support Group

Hi

I'm back but oh so tired of it all

Too much going on.

Me again, so what I thought were panic attacks were TIA's

Travel Insurance

Reminder

Is anyone using enoxaparin inj. Only for APS?

If I don't have Hughes/lupus, would a Hughes/lupus specialist still look into other possibilities, e.g. mixed connective tissue disease?

Feeling frustrated

Hustoric blood clot found in cerebellum

Should I be under the care of a specialist?

Colonoscopy yet again

I had Lymes disease twice and a flu shot prior to being diagnosed w/ APS. Anyone else?

Weight loss and APS

Iron deficiency

Ear problems anyone?

SEARCHING FOR A DOCTOR IN NORTHERN CALIFORNIA, (OR POSSIBLY ANYWHERE IN CALIFORNIA)

Hemoglobin test

Throat swollen

It's not just a clotting disorder

Adelaide, Australia- APS specialists?

Self testing

rivaroxaban And APS.

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