Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for July 2012

Now... we are 900 members!

I know we have a struggle getting there sometimes, but we get there in the end. http://www.youtube.com/watch?v=lFLpwRMS00g Mary F x

I know we have a struggle getting there sometimes, but we get there in the end. ...

MaryF

Administrator•13 years ago

15 Replies

Best way to give birth?

Hi all, im new to the site. I was diagnosed with HS in October 2011 after 8 miscarriages. Im now nearly 26 weeks pregnant taking aspirin and 10,000 units of...

Hi all, im new to the site. I was diagnosed with HS in October 2011 after 8 misc...

katrinahug03

•13 years ago

10 Replies

ATOS AND PANORAMA VIEWED LAST NIGHT VERY DISTURBING

I am under assessment again since being placed in the support group in November 2011, this is really worrying in particular after suffering many TIAS daily,...

I am under assessment again since being placed in the support group in November ...

traceylou

•13 years ago

7 Replies

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Health Status

Hey guys, how are things going with you... First of all, I'd like to thank you all for answering my questions and for the support you've been given me. I have...

Hey guys, how are things going with you... First of all, I'd like to thank you a...

BrazilianBade

•13 years ago

3 Replies

Headaches

I was diagnosed with APS about a year ago and I am on just a aspirin regimen and I take plaquenil. For the last week I have had constant headaches and can't...

I was diagnosed with APS about a year ago and I am on just a aspirin regimen and...

nicolebarks

•13 years ago

8 Replies

i have recently been diagnosed with HS. Has anyone else suffered edema in the hands and feet also sore joints. Sometimes hard to walk

252525

•13 years ago

17 Replies

Pregnancy and medication related question

Hi everyone I'm just after a little help about medication that you've been on whilst pregnant. I have an appointment at a saint mary's hospital in london in...

Hi everyone I'm just after a little help about medication that you've been on wh...

kateb81

•13 years ago

5 Replies

Bleeding in eye

Hi I went for my regular check to the optican on saturday and was told 9eventually ) I have a bleed in my right eye. I have been having a pain occasionaly but...

Hi I went for my regular check to the optican on saturday and was told 9eventual...

margaretjo

•13 years ago

7 Replies

Still waiting for scan!

Hi all, an update on how it's been going................I'm still hanging on....just! As my last post had last said I went to A+E......& they did no...

Hi all, an update on how it's been going................I'm still hanging on.......

Suzypawz

•13 years ago

25 Replies

Re heparin

Hi I was just wondering how many of you are on heparin if you haven't had a clot . And do you think this is something we should be on regardless if we haven't...

Hi I was just wondering how many of you are on heparin if you haven't had a clot...

Moonbug

•13 years ago

5 Replies

Thank You and update

Firstly many thanks to all all answered my question on biopsies and Clexane. I had a lung CT scan back in December that showed a small lesion that was...

Firstly many thanks to all all answered my question on biopsies and Clexane. ...

judes

•13 years ago

4 Replies

How long for a referral?

Hi everyone I was diagnosed with APS at St Mary's, Paddington in 1993/94 after suffering 3 concurrent miscarriages, I went on to have a further 2 as my...

Hi everyone I was diagnosed with APS at St Mary's, Paddington in 1993/94 afte...

michg

•13 years ago

7 Replies

Strange discolouration on lower legs

A few days ago I suddenly noticed that lower legs had gone a bit purply/bluey colour but what was really strange were all the small areas, about the size of a...

A few days ago I suddenly noticed that lower legs had gone a bit purply/bluey co...

Squeezer

•13 years ago

10 Replies

Update From Oz.

Hi, Everyone. Just an update from us and our daughter on what's been happening here. She recently [2 weeks ago] returned from an extended stay in St Vincents...

Hi, Everyone. Just an update from us and our daughter on what's been happening ...

WayneL

•13 years ago

6 Replies

Thanks...

I just wanted to say a big thank you to all of you who have already completed the Exercise and APS survey. We have had a great response and some very positive...

I just wanted to say a big thank you to all of you who have already completed th...

travelnut

•13 years ago

6 Replies

Where can I get info to share with my doctor about keeping my INR HIGHER. She wants it at 2.5, and I feel better at 3.5. Any links/articles?

iwantsimple

•13 years ago

3 Replies

What is your INR target? My doc is saying 2.5-3.0, but I felt 10 times better when it was what she considered too high (3.8).

iwantsimple

•13 years ago

4 Replies

does any1 knw

does any1 knw if weather effects inr levels as mine always seems 2 dip in rainy windy weather

does any1 knw if weather effects inr levels as mine always seems 2 dip in rainy ...

rach1081985

•13 years ago

5 Replies

ESA

Well ive finally finished my questionaire and its in the post.. a big sigh of relief... Feel better ive done my part now its out of my hands, expect the nexxt...

Well ive finally finished my questionaire and its in the post.. a big sigh of re...

sharonap

•13 years ago

10 Replies

Frustrated with Hemo and Neurologist.....

Haven't posted my results with both doctors as was vastly disappointed and needed to just sit with it all for awhile. Now guess need to vent! Neurologist,...

Haven't posted my results with both doctors as was vastly disappointed and neede...

Leigha

•13 years ago

10 Replies

Please your suggestions? An odd trip to the fish and chip shop?

Ok...I drive to the fish and chip shop (about 2 km). Walk in,give my order then sit and wait. Then next thing I know there is a man sitting next to me...

Ok...I drive to the fish and chip shop (about 2 km). Walk in,give my order then...

Mystynzl

•13 years ago

8 Replies

I have recently began having sharp stabbing pain near my right temple. I was in the ER for possible TIA when this began. Any suggestions?

I went to the ER for memory problems, personality changes, decreased strength right side, vision in my right eye is different, my head feeling funny and right...

I went to the ER for memory problems, personality changes, decreased strength ri...

Adagirl

•13 years ago

11 Replies

Clexane and biopsys

I am due to have a lung biopsy in a couple of weeks, anyone any idea of the protocols for starting stopping Clexane? I'd like to have some idea before I...

I am due to have a lung biopsy in a couple of weeks, anyone any idea of the prot...

judes

•13 years ago

4 Replies

ATOS: Channel 4 Dispatches 8 pm Monday 30th July

This will be worth a watch! http://www.guardian.co.uk/society/2012/jul/27/disability-benefit-assessors-film Please consider SIGNING and SHARING these two...

This will be worth a watch! http://www.guardian.co.uk/society/2012/jul/27/dis...

MaryF

Administrator•13 years ago

8 Replies

Anyone out there that has just primary APS with off the charts ANA?

Are you concerned because the ANA is so high that you are just waiting for a diagnosis of another autoimmune disease?

Are you concerned because the ANA is so high that you are just waiting for a dia...

jean48

•13 years ago

2 Replies

I got my nose pierced and had no bleeding at all.

jean48

•13 years ago

5 Replies

Anybody know a good Rheumy in Leicester area?

Any recommendations much appreciated many thanks

traceylou

•13 years ago

7 Replies

Dragging myself up!! AGAIN!!!!

Hi all, Where to start, today I fell/passed out in bathroom, kids fetched dad, I came round pretty quick, but lost speech, gained a few more pretty bruises...

Hi all, Where to start, today I fell/passed out in bathroom, kids fetched dad, ...

jessielou

•13 years ago

12 Replies

Prof Hughes' July blog

- July 2012 Another record! April, May, June wettest ever! And even July – at least for most of July. However, this week the sun has come out as we...

- July 2012 Another record! April, May, June wettest ever! And even July – ...

Hidden

•13 years ago

6 Replies

Can i wax my legs while on warfarin?

I am on warfarin and my inr is stable at the moment, so i was just wondering if there would be a risk of bleeding if i waxed my legs?

I am on warfarin and my inr is stable at the moment, so i was just wondering if ...

emilycarr11

•13 years ago

4 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for July 2012

Now... we are 900 members!

Best way to give birth?

ATOS AND PANORAMA VIEWED LAST NIGHT VERY DISTURBING

Health Status

Headaches

i have recently been diagnosed with HS. Has anyone else suffered edema in the hands and feet also sore joints. Sometimes hard to walk

Pregnancy and medication related question

Bleeding in eye

Still waiting for scan!

Re heparin

Thank You and update

How long for a referral?

Strange discolouration on lower legs

Update From Oz.

Thanks...

Where can I get info to share with my doctor about keeping my INR HIGHER. She wants it at 2.5, and I feel better at 3.5. Any links/articles?

What is your INR target? My doc is saying 2.5-3.0, but I felt 10 times better when it was what she considered too high (3.8).

does any1 knw

ESA

Frustrated with Hemo and Neurologist.....

Please your suggestions? An odd trip to the fish and chip shop?

I have recently began having sharp stabbing pain near my right temple. I was in the ER for possible TIA when this began. Any suggestions?

Clexane and biopsys

ATOS: Channel 4 Dispatches 8 pm Monday 30th July

Anyone out there that has just primary APS with off the charts ANA?

I got my nose pierced and had no bleeding at all.

Anybody know a good Rheumy in Leicester area?

Dragging myself up!! AGAIN!!!!

Prof Hughes' July blog

Can i wax my legs while on warfarin?

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