Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for July 2014

MRI Update

Good Evening. I posted recently about my MRI brain scan in April. I received the report and disk of my scan today. Looking at the scan was a little strange to...

Good Evening. I posted recently about my MRI brain scan in April. I received the...

crista1

•11 years ago

26 Replies

Blood Clotting Disorders and Lupus??

I have Systemic Lupus as well as Protein C Deficiency and Factor 5 Leiden Mutation. Lately along with other typical Lupus symptoms I have been experiencing...

I have Systemic Lupus as well as Protein C Deficiency and Factor 5 Leiden Mutati...

Hidden

•11 years ago

14 Replies

Question about treatment

I was blessed 3 weeks ago with a healthy baby girl after years of heartache due to undiagnosed Hughes. I was on aspirin and heparin in pregnancy. I've seen a...

I was blessed 3 weeks ago with a healthy baby girl after years of heartache due ...

Hopingforababy

•11 years ago

13 Replies

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Moving video by APS patient

Hi All With MaryF away, I thought I'd post this over from the charity's Facebook page. This link points to a moving YouTube video made by Emilie-Mai...

Hi All With MaryF away, I thought I'd post this over from the charity's Faceboo...

Hidden

•11 years ago

2 Replies

Taking new anticoagulants

Been offered Warfarin for AF . Had Tia and found leaky heart valve Does anyone know if possible to try new anticoagulants with this type of heart problem I've...

Been offered Warfarin for AF . Had Tia and found leaky heart valve Does anyone ...

janenenis

•11 years ago

3 Replies

Endurance Sport - muscle recovery?

Hi folks, I have APS and have been on Warfarin now for 9 years. I managed to become a really good ultra-distance runner in 2010, though have been struggling...

Hi folks, I have APS and have been on Warfarin now for 9 years. I managed to b...

Sharon1976

•11 years ago

17 Replies

Exotic Travel Advice please

Hi All Advice please: I am going travelling for 6 weeks at the end of the years, it's my transplanted kidney, Kevin's 10th birthday!! I'm going to Botswana,...

Hi All Advice please: I am going travelling for 6 weeks at the end of the year...

Hidden

•11 years ago

20 Replies

Plaquenil

I have been on plaquenil for about ten weeks now, although they have helped some of my symptom's my stomach is painful & my bowel is now in over drive & a...

I have been on plaquenil for about ten weeks now, although they have helped some...

Jillymo

•11 years ago

30 Replies

APS

I was diagnosed with APS about 20 years ago and have been on Warfarin for 25 years now. I have had a problem with my feet for over 2 years now. It hurts...

I was diagnosed with APS about 20 years ago and have been on Warfarin for 25 yea...

ledlegs

•11 years ago

8 Replies

Does anyone experience hairloss on warfarin.

I have noticed in last few weeks more comes out when washed or combed. I read it was a side effect but nurse said it wad nothing to worry about xx

I have noticed in last few weeks more comes out when washed or combed. I read it...

Hidden

•11 years ago

14 Replies

Claim that blood thinners for pregnant women don't work- except for those with APS

I am always a tad untrusting of press reports, particularly the daily mail, but here is one that may be of interest to our lady members....

I am always a tad untrusting of press reports, particularly the daily mail, but ...

tim47

•11 years ago

3 Replies

Off camping for a few days, so I will only be on here part time!

Hi guys.... I am not disappearing, merely having a change of scene in a field with rather a lot of teenagers, at a music and dance camp - laptop tethered to...

Hi guys.... I am not disappearing, merely having a change of scene in a field wi...

MaryF

Administrator•11 years ago

6 Replies

Banged thigh on warfarin what to do please. Thanks

Yesterday I banged the front of my thigh on a bike handle. Give it a right ole whack like when you bang ur forearm on a doorhandle. Anyway I am on Warfarin...

Yesterday I banged the front of my thigh on a bike handle. Give it a right ole w...

jowill71

•11 years ago

11 Replies

APTR actin FSL ratio test

Can anyone tell me what this blood test is - daughter had previous positive test of 1.23 (<1.16) which was re-tested at 1.13. Not one of the Hughes Syndrome...

Can anyone tell me what this blood test is - daughter had previous positive test...

floss112

•11 years ago

1 Reply

A very sad story, and a clear picture

http://www.dailymail.co.uk/health/article-2700577/Dizzy-spells-warn-deadly-blood-clot-And-not-just-long-flights-risk-Chrissy-23-died-taking-Pill.html MaryF

http://www.dailymail.co.uk/health/article-2700577/Dizzy-spells-warn-deadly-blood...

MaryF

Administrator•11 years ago

11 Replies

Possible APS & intermittent sudden severe breathlessness

My daughter has had two positive lupus anticoagulant tests, followed by a negative one - lots of symptoms but fortunately no confirmed clots. Although GP was...

My daughter has had two positive lupus anticoagulant tests, followed by a negati...

floss112

•11 years ago

4 Replies

Professor Graham Hughes June 2014 Blog

I have just received a copy of our latest book, Sjögren’s Syndrome in Clinical Practice. Produced with colleagues Dr Shirish Sangle and Dr Simon Bowman, it is...

I have just received a copy of our latest book, Sjögren’s Syndrome in Clinical P...

MaryF

Administrator•11 years ago

4 Replies

Driving and life insurance

I was reading information on a website reagarding APS, it explained that there is only one company in the UK who is willing to offer life insurance to people...

I was reading information on a website reagarding APS, it explained that there i...

Dee121

•11 years ago

7 Replies

Bruising after ankle swelling

Good afternoon everyone. I posted last week about the swelling of my ankle. Yesterday a bruise had appeared on the top of my ankle, an inch by an inch across,...

Good afternoon everyone. I posted last week about the swelling of my ankle. Yest...

crista1

•11 years ago

10 Replies

A great reply regarding a Thyroid patient from Dr Martin Scurr

Many of us with Hughes Syndrome/APS have Thyroid problems, many of us are told we do not, due to the way the tests are done and relied upon! Also at times the...

Many of us with Hughes Syndrome/APS have Thyroid problems, many of us are told w...

MaryF

Administrator•11 years ago

8 Replies

specialist in Ky

does anyone know of a knowledgable APS specialist in the USA in the Kentucky area?

does anyone know of a knowledgable APS specialist in the USA in the Kentucky ar...

ChelleLynn

•11 years ago

3 Replies

Inr low for 3 weeks--below 2.0

Started Warfarin in March and have a target range of 2-3 and have APS. I was doing well for several weeks then fell below 2.0 for two weeks then in range...

Started Warfarin in March and have a target range of 2-3 and have APS. I was do...

loretta1106

•11 years ago

14 Replies

Clexane heparine

I have been change from xarelto to clexane 15000ul a day, they say i will improve with my neurology problems ( migrains, headache, lost memory, spams,,some...

I have been change from xarelto to clexane 15000ul a day, they say i will impro...

salva76

•11 years ago

9 Replies

Global APS Score

Hi all - I have been doing quite a bit of research on APS recently. After suffering a partial occlusion of a vein in my head, they ran a ton of bloodwork....

Hi all - I have been doing quite a bit of research on APS recently. After su...

Hidden

•11 years ago

23 Replies

one positive test one negative

I was diagnosed with APS in 2002 then tested negative recently does anyone know how this is possible/

I was diagnosed with APS in 2002 then tested negative recently does anyone know ...

ChelleLynn

•11 years ago

4 Replies

Stroke

Hi I am writing his on behalf of my wife who has lost the ability to communicate after suffering a stroke during the may bank holiday a year ago. Jo had a...

Hi I am writing his on behalf of my wife who has lost the ability to communicate...

brianfairchild

•11 years ago

13 Replies

Medical advice on pregnancy induction for APS

Well I've made it to 36 weeks of pregnancy and am due to go to my last consultants appointment this week. There are lots of examples of women with APS being...

Well I've made it to 36 weeks of pregnancy and am due to go to my last consultan...

Bat_friend

•11 years ago

4 Replies

Official: I am NOT imagining symptoms. I DID have a stroke at 31.

For years and years I have struggled with symptoms. This time last year my neurologist spoke with a thrombotologist about the scars from my stroke and many...

For years and years I have struggled with symptoms. This time last year my neuro...

Bonnie39

•11 years ago

19 Replies

Liver mass?

Hello everyone, as you may know from my posts, I have APS and have struggled with many challenges such as PE, DVT and other challenges that come with Hughes....

Hello everyone, as you may know from my posts, I have APS and have struggled wit...

beccafullcircle

•11 years ago

12 Replies

Had a good few days...then...

Hello everyone, with all your posts I went ahead and bumped up the Warfarin as my doctor said not too and had almost a full week of so much more energy, less...

Hello everyone, with all your posts I went ahead and bumped up the Warfarin as m...

beccafullcircle

•11 years ago

18 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for July 2014

MRI Update

Blood Clotting Disorders and Lupus??

Question about treatment

Moving video by APS patient

Taking new anticoagulants

Endurance Sport - muscle recovery?

Exotic Travel Advice please

Plaquenil

APS

Does anyone experience hairloss on warfarin.

Claim that blood thinners for pregnant women don't work- except for those with APS

Off camping for a few days, so I will only be on here part time!

Banged thigh on warfarin what to do please. Thanks

APTR actin FSL ratio test

A very sad story, and a clear picture

Possible APS & intermittent sudden severe breathlessness

Professor Graham Hughes June 2014 Blog

Driving and life insurance

Bruising after ankle swelling

A great reply regarding a Thyroid patient from Dr Martin Scurr

specialist in Ky

Inr low for 3 weeks--below 2.0

Clexane heparine

Global APS Score

one positive test one negative

Stroke

Medical advice on pregnancy induction for APS

Official: I am NOT imagining symptoms. I DID have a stroke at 31.

Liver mass?

Had a good few days...then...

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