Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,442 members•10,641 posts

All posts for November 2015

Some good news

My GP has confirmed that I was normal on the cardiolipin test so that is a huge positive. I haven't had the third test yet though. She is checking my vit d...

My GP has confirmed that I was normal on the cardiolipin test so that is a huge ...

linagirl

•9 years ago

5 Replies

Fab news for type 1 diabetics today

The telegraph have featured An article explaining that by injecting back in immunity cells to t1 diabetics they can force the pancreas to restore insulin...

The telegraph have featured An article explaining that by injecting back in immu...

linagirl

•9 years ago

4 Replies

Xarelto

Today i started on blood thinner and I'm on xarelto. Anyone who knows about it? I did ask my GP why I didn't get this after all my test and the didn't wanted...

Today i started on blood thinner and I'm on xarelto. Anyone who knows about it? ...

murphylotte

•9 years ago

21 Replies

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Dr. Situnayake

Has anyone seen Dr S? Just wondered what your experience was?

linagirl

•9 years ago

4 Replies

Looking for a great hematologist in Houston, Texas

If someone knows of a great hematologist in houston texas it would be greatly appreciated. I have an appointment with a rheumatologist on January 19th that's...

If someone knows of a great hematologist in houston texas it would be greatly ap...

determinedandstrong

•9 years ago

5 Replies

Manchester Specialist - Dr Thachil (haematology) at Manchester Royal Infirmary

I just wanted to share what I can only describe as an amazingly positive experience. I had my TIA in February, APS was first diagnosed in April and I was...

I just wanted to share what I can only describe as an amazingly positive experie...

SheRidesAUnicorn

•9 years ago

15 Replies

nerve conduction study says no peripheral neuropathy?!

Hello nice people! I'm in the UK.... I have quite a complex health history which at the moment is confusing even the professionals so any extra help or past...

Hello nice people! I'm in the UK.... I have quite a complex health history which...

Hidden

•9 years ago

3 Replies

Hughes Syndrome Study

My name is Harriet and I am an undergraduate psychology student at Birkbeck, University of London. I am undertaking a study about Hughes Syndrome as part of...

My name is Harriet and I am an undergraduate psychology student at Birkbeck, Uni...

Harriet70

•9 years ago

16 Replies

Any Information

Hey I finally found out which lupus I have and it's lupus anticoagulant also known has Hughes syndrome. Was wondering if anyone knew the best sites to find out...

Hey I finally found out which lupus I have and it's lupus anticoagulant also kno...

Hidden

•9 years ago

6 Replies

My story

Hello I am 41 and a few weeks ago had a funny turn at work which I think was a reactive hypoglycaemic turn. However my doc thought it may be a stroke and sent...

Hello I am 41 and a few weeks ago had a funny turn at work which I think was a r...

linagirl

•9 years ago

19 Replies

HAPPY BIRTHDAY Professor Graham Hughes

Happy Birthday to Professor Hughes today! Wishing him all the best from our forum! Hoping that wherever he is today.... that somewhere a celebration is...

Happy Birthday to Professor Hughes today! Wishing him all the best from our for...

MaryF

Administrator•9 years ago

23 Replies

Stiff eye

Hello - from time to time over the last few weeks I have had an odd sensation in right eye - as though the muscles around my my eye socket and top of cheek...

Hello - from time to time over the last few weeks I have had an odd sensation in...

NicBay

•9 years ago

8 Replies

Getting used to APS

Went into St Thomas' hospital in July because I was very breathless. They discovered several large clots in my lungs. After several months of tests I have now...

Went into St Thomas' hospital in July because I was very breathless. They discov...

blods

•9 years ago

12 Replies

Got my Thyroid Results

My TSH is 0.84 (standard range listed as 0.35-4.0) My Free T4 is 1.0 (standard range listed as 0.8-1.5) These look to be in the normal range to me, but I've...

My TSH is 0.84 (standard range listed as 0.35-4.0) My Free T4 is 1.0 (standard r...

bassetpup

•9 years ago

2 Replies

Seronegative APS

Hi, just been to see my Rhumatologist this morning and I was pretty nervous. I been ill for 2 1/2 years and never really got to the bottom of why. I've always...

Hi, just been to see my Rhumatologist this morning and I was pretty nervous. I b...

strawberry69

•9 years ago

10 Replies

Newly Diagnosed

Hi I'm Debbie from Long Island, New York, USA! I'm a very happy-go-lucky person ! I don't take "NO," for an answer! Although I'm now 62, it's taken me most of...

Hi I'm Debbie from Long Island, New York, USA! I'm a very happy-go-lucky person ...

Debbweb01

•9 years ago

12 Replies

Seeing my Neurologist

Hi guys, Next Sunday (26th Nov) I'm seeing my neurologist for my results of my MRI scan I had done back in October. Since that scan I've had a period of...

Hi guys, Next Sunday (26th Nov) I'm seeing my neurologist for my results of m...

JoJo0405

•9 years ago

8 Replies

HELP !!!! Although I've got APS, but I've got an another PE???

I've had APS for many years. I've also have a stent in my groin for which I had a CT scan a few months ago to make sure it was still doing its job and it was...

I've had APS for many years. I've also have a stent in my groin for which I had ...

Firefoxie007

•9 years ago

24 Replies

Is this hereditary

Hi I'm Nanny23 my sister was recently diagnosed withAPS! Shud I also be tested!

Nanny23

•9 years ago

8 Replies

A round up of articles from the press

1. http://www.dailymail.co.uk/health/article-3326062/Could-WALNUTS-prevent-heart-attack-Two-handfuls-day-lowers-cholesterol-helps-prevent-heart-disease.html...

1. http://www.dailymail.co.uk/health/article-3326062/Could-WALNUTS-prevent-hea...

MaryF

Administrator•9 years ago

2 Replies

Can I take iron supplements?

I have APS. I am on Warfarin and statins. Can I take iron supplements?

Hidden

•9 years ago

3 Replies

Getting tested for thyroid

Hi Everyone, I know there have been many posts on here related to thyroid issues and testing. I just emailed my doctor about some recent weight gain I've...

Hi Everyone, I know there have been many posts on here related to thyroid issue...

bassetpup

•9 years ago

15 Replies

Plaquenil

Hi there, has anyone had any trouble recently getting plaquenil from pharmacies in the uk? Several pharmacies in my area have told me it's discontinued and...

Hi there, has anyone had any trouble recently getting plaquenil from pharmacies ...

Gerardina

•9 years ago

8 Replies

APS with no painkillers

I am on this site and read about all the pain everybody have. I have only a little pain from Artros (according to my Rheumatologist) in my thumbs. I do...

I am on this site and read about all the pain everybody have. I have only a litt...

Lure2

•9 years ago

28 Replies

Only four days left to give feedback on the NHS

This was kept rather quiet, if you are in the UK do consider filling it in....

MaryF

Administrator•9 years ago

4 Replies

Neurologist Vs. Hematologist

Any help I can get with this would be great! I have heard a lot on here about finding an APS Specialist but what kind of Dr would be an APS Specialist?! I have...

Any help I can get with this would be great! I have heard a lot on here about fi...

candicer

•9 years ago

12 Replies

Hi Kerstin!

Hi Kerstin! So sorry I didn't know I was in Clair's site so sorry! Now I know! I have been recently diagnosed with APS and also have another blood problem,...

Hi Kerstin! So sorry I didn't know I was in Clair's site so sorry! Now I know! I...

Debbweb01

•9 years ago

8 Replies

Headaches and aps

Hi! Does anyone else get headaches that start in the day and get really bad at night and you feel sick too. I have started to get these and wondered if its an...

Hi! Does anyone else get headaches that start in the day and get really bad at n...

gemgemz

•9 years ago

14 Replies

A new paper on Hughes Syndrome/APS and the Kidney

Via HSF Facebook page: An helpful article has been written by APS experts looking at how the kidneys can be affected by both lupus and APS. It's really...

Via HSF Facebook page: An helpful article has been written by APS experts loo...

MaryF

Administrator•9 years ago

not getting any better

Hi all I am newly diagnosed and am in sunny Queensland Australia. I had several pulmonary embolisms end of December last year and they only got diagnosed at...

Hi all I am newly diagnosed and am in sunny Queensland Australia. I had several...

suntap

•9 years ago

10 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for November 2015

Some good news

Fab news for type 1 diabetics today

Xarelto

Dr. Situnayake

Looking for a great hematologist in Houston, Texas

Manchester Specialist - Dr Thachil (haematology) at Manchester Royal Infirmary

nerve conduction study says no peripheral neuropathy?!

Hughes Syndrome Study

Any Information

My story

HAPPY BIRTHDAY Professor Graham Hughes

Stiff eye

Getting used to APS

Got my Thyroid Results

Seronegative APS

Newly Diagnosed

Seeing my Neurologist

HELP !!!! Although I've got APS, but I've got an another PE???

Is this hereditary

A round up of articles from the press

Can I take iron supplements?

Getting tested for thyroid

Plaquenil

APS with no painkillers

Only four days left to give feedback on the NHS

Neurologist Vs. Hematologist

Hi Kerstin!

Headaches and aps

A new paper on Hughes Syndrome/APS and the Kidney

not getting any better

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