Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,442 members•10,641 posts

All posts for May 2023

Covid Booster for the over 75's.

Does anyone know if there are any vaccines to ne avoided for APS patients, i.e. previously Astra Zenica, or are they all supposedly ok for us according to......

Does anyone know if there are any vaccines to ne avoided for APS patients, i.e. ...

•2 years ago

For Those Of You Exclusively On Enoxaparin Injections- I Have A Question 🙋‍♀️

How often is your hematologist drawing your afXa levels?

How often is your hematologist drawing your afXa levels?

Administrator•2 years ago

APS and Clear Cell Renal Cell Carcinoma - Partial Nephrectomy

Hello friends witg APS- Have any of you been diagnosed with Clear Cell Renal Cell Carcinoma? A tumor was found, randomly, when I had a screening for pain....

Hello friends witg APS- Have any of you been diagnosed with Clear Cell Renal Ce...

•2 years ago

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Will b12 injection interfere with chorea/movement disorder?

I'm thinking of have the b12 injection as my fatigue levels are crippling me. I'm not deficient but on the lower end of the numbers. So I thought this may make...

I'm thinking of have the b12 injection as my fatigue levels are crippling me. I'...

•2 years ago

Blood Clots

I started having random bruising on my legs. Then, my veins started to become thick and buldging out of my leg. I emailed my doctor & sent him pictures of my...

I started having random bruising on my legs. Then, my veins started to become th...

•2 years ago

consultant doubting diagnosis of APS

After 3 strokes and a questionable 4th that we were told was a migraine episode but definitely affected cognition and even more reduced left side movements, a...

After 3 strokes and a questionable 4th that we were told was a migraine episode ...

•2 years ago

misdiagnosed ?

Hello. My name is Lynn. Eleven years ago, after 2 late miscarriages (17 weeks) and several stroke like episodes I was diagnosed with Primary Antiphospholipid...

Hello. My name is Lynn. Eleven years ago, after 2 late miscarriages (17 weeks) ...

•2 years ago

Bruising

I still easily bruise, especially in my legs. It is hard to get a quick appointment with my hematologist. It is small bruising. It only hurts when I touch it....

I still easily bruise, especially in my legs. It is hard to get a quick appointm...

•2 years ago

Erythritol has been linked to blood clotting, stroke, heart attack and death

Purified stevia leaf extracts (Truvia, PureVia, others) use this artificial sweetener and I was wondering how this would affect those on blood thinners, like...

Purified stevia leaf extracts (Truvia, PureVia, others) use this artificial swee...

•2 years ago

Doing the rounds of doctors again.

Early last month I went to Japan and met my daughter who's living over there. As we set off I was getting quite short of breath and my daughter (who is a...

Early last month I went to Japan and met my daughter who's living over there. A...

•2 years ago

Is it common to get chronic nose bleeds with aps?

Just wondering as my father has been getting nose bleeds constantly lately. They've tried to cauterize (no joy) they've put a camera up the nose to try and see...

Just wondering as my father has been getting nose bleeds constantly lately. They...

•2 years ago