Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,352 members • 10,541 posts

All posts for May 2015

A round up of related health articles from the press

1, http://www.dailymail.co.uk/health/article-3102318/Girl-13-thought-headache-collapsed-stroke-left-PARALYSED.html 2,...

1, http://www.dailymail.co.uk/health/article-3102318/Girl-13-thought-headache...

MaryF

Administrator•9 years ago

1 Reply

APS and Steroids

Need some help here. My lupus has been out of control for about 6 months now with no one really able to help. Rheumy just tells me he is always on hand though...

Need some help here. My lupus has been out of control for about 6 months now wi...

diane1428

•9 years ago

4 Replies

Question re diagnosis

Hi, Mary kindly told me about this group. I have no idea if I have Hughes but am keen to get it checked out in case it explains my 2 yr + constant headache and...

Hi, Mary kindly told me about this group. I have no idea if I have Hughes but am...

jasperc163

•9 years ago

7 Replies

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APS, adeno/endo or something else?

Hello. I'm APS positive and have adenomyosis, with various symptoms. However, two weeks ago I ended up in a&e with heart attack symptoms . Tests showed it was...

Hello. I'm APS positive and have adenomyosis, with various symptoms. However, t...

janeingirona

•9 years ago

9 Replies

Poor sleep, horrible headaches, muscle cramping in legs

If anyone has any suggestions as to what might help with making me sleep at night, I will be forever grateful. I have been having problems for quite a long...

If anyone has any suggestions as to what might help with making me sleep at nigh...

becca10

•9 years ago

20 Replies

Positive Acl tests, but asymptomatic. Aspirin or clopidogrel for primary pevention?

Hello everyone ! I have positive blood tests for lupus but except the skin I dont have any significant symptoms. Recently I tested positive for Acl and anti b2...

Hello everyone ! I have positive blood tests for lupus but except the skin I don...

Bobo_j

•9 years ago

7 Replies

Central Retinal Vein Occlusion

Is there anyone on the Forum who has CRVO or BRVO (branch retinal vein occlusion). I was diagnosed by Prof.Khamashta 7 years ago, after my first BRVO. I have...

Is there anyone on the Forum who has CRVO or BRVO (branch retinal vein occlusion...

Zamalek

•9 years ago

12 Replies

Article raised most awareness ... so far

Hi All For those of you who don't follow the charity on Facebook or Twitter, here's the link to the BT.com article which has reached over 50,000 people so...

Hi All For those of you who don't follow the charity on Facebook or Twitter, he...

Hidden

•9 years ago

9 Replies

Pain from internal bleeding

Hello I hope you are all going well and having a nice week. I fall in my bathtube 3 weeks ago, and I had/have an internal bleeding in the leg. I was in...

Hello I hope you are all going well and having a nice week. I fall in my batht...

david1970

•9 years ago

3 Replies

Diagnosed 18 years ago

Has anyone ever heard of someone being diagnosed with Hughes syndrome but not receiving any treatment whatsoever ?

Has anyone ever heard of someone being diagnosed with Hughes syndrome but not re...

tracydavies

•9 years ago

22 Replies

diffuse bone marrow change

I have had Lupus and Hughes Syndrome for the last 30 years.About a year ago I was diagnosed bone marrow change in my left knee and after several MRI...

I have had Lupus and Hughes Syndrome for the last 30 years.About a year ago I wa...

tild-e

•9 years ago

3 Replies

Insurance

Going to Turkey end of June and looking for travel insurance anyone know of a good company. Got Aps and on warfarin Thanks in advance Kristian

Going to Turkey end of June and looking for travel insurance anyone know of a go...

Magoowood

•9 years ago

7 Replies

Low Magnesium effects on warfarin .

How is warfarin effected when magnesium is low ?

silemoran

•9 years ago

2 Replies

Root Canal

I'm 9 months post of being diagnosed with APS. I actually had a stroke & this is how my APS was found. I was perfectly healthy or at least I thought. With...

I'm 9 months post of being diagnosed with APS. I actually had a stroke & this i...

GirlfromTennessee

•9 years ago

30 Replies

Missing too much work

Hi, I have learned so much from everyone's posts. This blog is the best and such a great resource. I think my APS may be acting up again...Been off work for 7...

Hi, I have learned so much from everyone's posts. This blog is the best and suc...

Raking223

•9 years ago

35 Replies

Some Advice?

Hi, was hoping i could get a little advice. I'm a 24 year old male living in the UK, unfortunately have been off work for the past couple of years with some...

Hi, was hoping i could get a little advice. I'm a 24 year old male living in th...

Rams5989

•9 years ago

2 Replies

I am willing to take part in a trial testing the effects of runny fried eggs.

As long as they are extra large organic with really yellow yolks....... Just thought I would share...

As long as they are extra large organic with really yellow yolks....... Just th...

overnighthearingloss

•9 years ago

5 Replies

Tetanus vaccine and hughes

Hi I was wondering if there was a confirmed association between hughes syndrome and tetanus vaccine boostrix as I have come happened upon some articles of an...

Hi I was wondering if there was a confirmed association between hughes syndrome ...

AINS

•9 years ago

2 Replies

APS and Kidney problems

Hi Everyone - Is there a connection between Hughes and kidney problems? If so how do these problems present and what do you do? Thanks Wendy

Hi Everyone - Is there a connection between Hughes and kidney problems? If so h...

UKWendy

•9 years ago

2 Replies

Questions regarding Labs

I was diagnosed with APS 2 years ago and I am taking Warfarin 4 mg and a 81 mg ASA daily. I live in Central Texas and have had great difficulty finding a...

I was diagnosed with APS 2 years ago and I am taking Warfarin 4 mg and a 81 mg A...

csue2

•9 years ago

9 Replies

Migraine symptoms/preventative meds

The most recent doc I've seen thinks most of my neurological symptoms are migraine related, even though the pain is usually very mild or nonexistent. I have...

The most recent doc I've seen thinks most of my neurological symptoms are migrai...

mylafont

•9 years ago

13 Replies

Not sure how to reply

Hi ,I had a message from amandajane76 but I can't seem to reply. What do I need to write in the (recipient) space? I also have another problem, when I open...

Hi ,I had a message from amandajane76 but I can't seem to reply. What do I need ...

Elfie1

•9 years ago

3 Replies

Long term side effects of warfarin

Hi All, I am 29 years old and been on Warf for past 2 years as treatment for Hughes (had 2 DVTs and 1 PE in the past)..I would really like to know what could...

Hi All, I am 29 years old and been on Warf for past 2 years as treatment for Hu...

Aps4Life

•9 years ago

21 Replies

New member - Xarelto anticoagulant

Hi! I was diagnosed with APS after a pulmonary embolism about a year ago and taking the newer anticoagulant Xarelto. Anyone out there on the same meds? Just...

Hi! I was diagnosed with APS after a pulmonary embolism about a year ago and ta...

Fire_fly

•9 years ago

19 Replies

plaquenil and hydroxychloroquine hoax

just received word that the medicine is available for 25 dollars. some person who shall remain nameless at this time tried to collect extra money for this and...

just received word that the medicine is available for 25 dollars. some person wh...

packerfan

•9 years ago

3 Replies

Electric shock update.

Hi guys, Just a quick update on my electric shock I posted a few weeks ago. The blood tests came back negative for Vitamin B12 deficiency and my GP...

Hi guys, Just a quick update on my electric shock I posted a few weeks ago. ...

JoJo0405

•9 years ago

2 Replies

sinusitis

Does having APS cause it to take a long time to get over illnesses or heal from minor cuts or injuries? I've been ill with sinus issues for over a month, even...

Does having APS cause it to take a long time to get over illnesses or heal from ...

mylafont

•9 years ago

15 Replies

plaquenil

any one having difficulty finding or getting plaquenil or hydroxychlor (generic) to treat your dizziness from aps. very difficult to find here in the US cost...

any one having difficulty finding or getting plaquenil or hydroxychlor (generic)...

packerfan

•9 years ago

23 Replies

Study: Recovery from Chronic Demyelination by Thyroid Hormone Therapy

2008 study. I am not sure there is any profit potential in this for pharmaceutical companies to be enticed to followup on this....

2008 study. I am not sure there is any profit potential in this for pharmaceutic...

Tranquility1

•9 years ago

3 Replies

Pip Refused

Hi everybody, sorry I haven't posted for months but I haven't been in the 'right mind frame' . As it says in the name of the posting,I have been turned down (...

Hi everybody, sorry I haven't posted for months but I haven't been in the 'right...

Totallysick

•9 years ago

9 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for May 2015

A round up of related health articles from the press

APS and Steroids

Question re diagnosis

APS, adeno/endo or something else?

Poor sleep, horrible headaches, muscle cramping in legs

Positive Acl tests, but asymptomatic. Aspirin or clopidogrel for primary pevention?

Central Retinal Vein Occlusion

Article raised most awareness ... so far

Pain from internal bleeding

Diagnosed 18 years ago

diffuse bone marrow change

Insurance

Low Magnesium effects on warfarin .

Root Canal

Missing too much work

Some Advice?

I am willing to take part in a trial testing the effects of runny fried eggs.

Tetanus vaccine and hughes

APS and Kidney problems

Questions regarding Labs

Migraine symptoms/preventative meds

Not sure how to reply

Long term side effects of warfarin

New member - Xarelto anticoagulant

plaquenil and hydroxychloroquine hoax

Electric shock update.

sinusitis

plaquenil

Study: Recovery from Chronic Demyelination by Thyroid Hormone Therapy

Pip Refused

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