Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,351 members • 10,539 posts

All posts for March 2013

how do u know?

i was reading some commets about warfrin and self testing. iv only been on warfrin since last september so its still new. how doas a person know when its high...

i was reading some commets about warfrin and self testing. iv only been on warfr...

chapman

•11 years ago

1 Reply

Do you have LOW Platelets or does your platelets BOUNCE low to normal?

On this past Wednesday the doctor had blood drawn for a CBC and my platelets were low at 47. So more was drawn on Friday for a re-check. My platelets bounce...

On this past Wednesday the doctor had blood drawn for a CBC and my platelets wer...

Hidden

•11 years ago

6 Replies

Peoples experiences of self-testing needed for the AntiCoagulation Self-Monitoring Campaign (ACSMA)

Hi everyone we need your help. The ACSMA website is up and running but we need peoples stories of self-testing to put on the site. They can be...

Hi everyone we need your help. The ACSMA website is up and runnin...

warfarin1

•11 years ago

11 Replies

Want to take advantage of all our features? Just log in!

HAPPY EASTER

Happy Easter to all you people of our world-------------------- :-)STITCHES

jetjetjet

•11 years ago

4 Replies

Had a funny Saturday walking lol

Today trying to take my daughter somewhere in the village and would my left leg work properly no, did not have the power or know how to work it today, my right...

Today trying to take my daughter somewhere in the village and would my left leg ...

KarenOR

•11 years ago

9 Replies

meetings?

me again!! doas anyone know about the meetings for hughes sydrom in london and where,when? are there more than one a year. thanks stacey.

me again!! doas anyone know about the meetings for hughes sydrom in london and ...

chapman

•11 years ago

2 Replies

heart raceing (why)

hi all.every morning when i get up (930 ish) i go down stairs i do my morning routine which is open curtains make a cuppa put the tv on then sit down and...

hi all.every morning when i get up (930 ish) i go down stairs i do my morning r...

chapman

•11 years ago

13 Replies

It takes 2-3 days for Warfarin/Coumadin adjustments to affect my INR. How long does it take for a bowl of green vegetables to affect INR?

iwantsimple

•11 years ago

21 Replies

I'm back

Everything went well some problems -kidney's not draining-but we mastered that- after some discomfort----- stayed an extra night - Things i won't take for...

Everything went well some problems -kidney's not draining-but we mastered that-...

jetjetjet

•11 years ago

13 Replies

Fatigue help!!!

Hi guys Well since my first appointment with Karen Breen things have not improved she feel there is an underlying problem other than APS she Is querying...

Hi guys Well since my first appointment with Karen Breen things have not imp...

Dann

•11 years ago

3 Replies

lifes ups and downs

good news, my docter finding out why its taking so long to see a aps specilist. bad news is that my husband has ended our marriage,mostly due to my illnesses....

good news, my docter finding out why its taking so long to see a aps specilist. ...

chapman

•11 years ago

25 Replies

Communication! Isn't it a good thing?

Well, my Duke orthopedist's office has answered my questions. Hooray! ! And so today I was equipped with a list of what the orthopedist plans to inject...

Well, my Duke orthopedist's office has answered my questions. Hooray! ! And s...

GinaD

•11 years ago

Be the first to reply

Considering self-monitoring. Who's doing it? Your experience? Please share!

iwantsimple

•11 years ago

17 Replies

How long do you get at a Tommy's appointment? And hot chocs...

Seeing Prof K at Tommy's next Friday. I've seen him privately before but this will be my first NHS appt with him. About how long can I expect the appointment...

Seeing Prof K at Tommy's next Friday. I've seen him privately before but this w...

Coppernob

•11 years ago

5 Replies

Retirement

Haven't posted on here for a while. Today is my last official day of work as I'm retiring on ill health grounds from my job as a teaching assistant. It's sad...

Haven't posted on here for a while. Today is my last official day of work as I'...

janekins

•11 years ago

10 Replies

Did a blood thinner (not aspirin) help with your shortness of breath?

Hidden

•11 years ago

5 Replies

Did a blood thinner (not aspirin) help your brain with memory, thinking, sluggishness, reading comprehension or with processing things?

Hidden

•11 years ago

5 Replies

Charity run by my son for Hughes

Hello to everyone, I would like to introduce you to my son Kris, who is doing the 'tough mudder" (one of the most difficult assault courses in the UK) see this...

Hello to everyone, I would like to introduce you to my son Kris, who is doing th...

Lesley_D

•11 years ago

10 Replies

Required by neurologist I went to a psychiatrist, She said: ......

After been told I was "depressive", "anxious" and almost crazy because of telling my doctors I had brain fog and concentration problems....at the end, I went...

After been told I was "depressive", "anxious" and almost crazy because of tellin...

swirl

•11 years ago

10 Replies

Hello,not blogged for a while! and WELCOME any new members from over the last few weeks!

Hi - just a quick one to say hello, not written much for a while. and this partly to report progress made. I have been very busy with both my children being...

Hi - just a quick one to say hello, not written much for a while. and this partl...

MaryF

Administrator•11 years ago

8 Replies

http://www.dailymail.co.uk/health/article-2299783/Contraceptive-pill-kills-20-women-year-blood-clots-says-French-health-watchdog.html

http://www.dailymail.co.uk/health/article-2299783/Contraceptive-pill-kills-20-wo...

jennybee

•11 years ago

1 Reply

The day hase arrived

Finally -yesterday i got my Pre op- instuctions{ not till 3:30 in the P.M.] and they were not complete- anesthesia plan still in the air - need to check in to...

Finally -yesterday i got my Pre op- instuctions{ not till 3:30 in the P.M.] and ...

jetjetjet

•11 years ago

5 Replies

How long does Fragmin stay in your system?

HWickers

•11 years ago

2 Replies

Does anyone else feel sick and dizzy when they lift their arms up? They ache really badly even if it is only for a few seconds..any ideas?

louise78

•11 years ago

7 Replies

Nuerosphycologist appointment

Went yesterday for 6 hour appointment which consisted of numerous tests. Some where ok the recall/rembering ones I did really bad on. Have to go back in month...

Went yesterday for 6 hour appointment which consisted of numerous tests. Some wh...

sharonap

•11 years ago

8 Replies

Pain in the neck!

I've suffered a sore neck /shoulder/back pain on and off, and always put it down to bad sleeping position, sitting at work all day type thing, but this weekend...

I've suffered a sore neck /shoulder/back pain on and off, and always put it down...

swx3

•11 years ago

5 Replies

Plaquenil, anyone taking this, and have hearing loss?

Wife has been taking Plaquenil for about 4 weeks... starting to get some hearing loss, anyone ever have any or some hearing loss?

Wife has been taking Plaquenil for about 4 weeks... starting to get some hearing...

Skyllark

•11 years ago

8 Replies

Will I bleed too much if I take Fragmin when menstruating?

I'm going on a 4.5 hour flight to Cyprus, I normally only take 75mg daily of aspirin. My GP said its up to me if I take Fragmin or not and I thought better to...

I'm going on a 4.5 hour flight to Cyprus, I normally only take 75mg daily of asp...

HWickers

•11 years ago

1 Reply

Does anyone know a blood pressure medication that you can take when you have Hughes?

I read that some blood pressure medications can make the Hughes syndrome worse. I was recently on a BP med that gave me horrible spasms & pain. I stopped it &...

I read that some blood pressure medications can make the Hughes syndrome worse. ...

designer16

•11 years ago

13 Replies

what is the recommended treatment , aspirin or warfarin after previous multiple P.E . and is there a difference in how each drug works

dutchess

•11 years ago

5 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for March 2013

how do u know?

Do you have LOW Platelets or does your platelets BOUNCE low to normal?

Peoples experiences of self-testing needed for the AntiCoagulation Self-Monitoring Campaign (ACSMA)

HAPPY EASTER

Had a funny Saturday walking lol

meetings?

heart raceing (why)

It takes 2-3 days for Warfarin/Coumadin adjustments to affect my INR. How long does it take for a bowl of green vegetables to affect INR?

I'm back

Fatigue help!!!

lifes ups and downs

Communication! Isn't it a good thing?

Considering self-monitoring. Who's doing it? Your experience? Please share!

How long do you get at a Tommy's appointment? And hot chocs...

Retirement

Did a blood thinner (not aspirin) help with your shortness of breath?

Did a blood thinner (not aspirin) help your brain with memory, thinking, sluggishness, reading comprehension or with processing things?

Charity run by my son for Hughes

Required by neurologist I went to a psychiatrist, She said: ......

Hello,not blogged for a while! and WELCOME any new members from over the last few weeks!

http://www.dailymail.co.uk/health/article-2299783/Contraceptive-pill-kills-20-women-year-blood-clots-says-French-health-watchdog.html

The day hase arrived

How long does Fragmin stay in your system?

Does anyone else feel sick and dizzy when they lift their arms up? They ache really badly even if it is only for a few seconds..any ideas?

Nuerosphycologist appointment

Pain in the neck!

Plaquenil, anyone taking this, and have hearing loss?

Will I bleed too much if I take Fragmin when menstruating?

Does anyone know a blood pressure medication that you can take when you have Hughes?

what is the recommended treatment , aspirin or warfarin after previous multiple P.E . and is there a difference in how each drug works

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