Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for April 2017

Should I be on medication?

I was diagnosed after lots of miscarriages years ago and was treated in pregnancy with fragmin asprin after for 5 weeks but haven't been on any medication...

I was diagnosed after lots of miscarriages years ago and was treated in pregnanc...

pixie2011

•8 years ago

1 Reply

Blood group

Hello all, I have not posted much but read regular, I have just read an article in relation to persons who's blood group are"NOT" O are more likely to a heart...

Hello all, I have not posted much but read regular, I have just read an article ...

SueH21

•8 years ago

5 Replies

Just a quick question :)

Hi can Hughes syndrome cause breathlessness? I don't mean when it causes a pe, can the condition alone cause it as a symptom? Many Thanks x

Hi can Hughes syndrome cause breathlessness? I don't mean when it causes a pe, c...

Anyac81

•8 years ago

33 Replies

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Left leg swelling

Having trouble with leg swelling above left ankle

oldman1938

•8 years ago

4 Replies

Been wondering about APS pamphlets

I'm not sure if I have asked this before. But I have been wondering if there are pamphlets available on APS that I could take to the Dr.'s offices around my...

I'm not sure if I have asked this before. But I have been wondering if there are...

SoulRebel-APS

•8 years ago

9 Replies

Pain in the stomach zone and hard vomiting

Hello. I have APS, and have a stroke in November 2016. I have migranes from 6 years of age, with hard vomiting. With varifin i do not have more migranes, but...

Hello. I have APS, and have a stroke in November 2016. I have migranes from 6 ye...

skoll1975

•8 years ago

3 Replies

Brain fog

Hi, How do you fight the brain fog? I feel in these cases as useless and frustrated Thanks in advance! regards

Hi, How do you fight the brain fog? I feel in these cases as useless and frustra...

anaastgal

•8 years ago

9 Replies

ADHD/ADD and APS

I recently posted about APS and the effect it has on my brain ie brain fog, doing stupid things etc. A few days ago I watched the documentary on ADHD with...

I recently posted about APS and the effect it has on my brain ie brain fog, doin...

Molly100

•8 years ago

5 Replies

travelling abroad

Hi all, Can anyone advise me whether I need a GP letter or other proof of my APS condition in order to take fragmin injections abroad? Thanks

Hi all, Can anyone advise me whether I need a GP letter or other proof of my APS...

krysty

•8 years ago

9 Replies

Inr still not going up 😐

Should I take injection tonight ? Called on call register at st Thomas last night wasn't a very nice man wasn't help full told me I was testing to often and...

Should I take injection tonight ? Called on call register at st Thomas last nigh...

Tim_Thorpe

•8 years ago

7 Replies

Wafrin crashed

Last week self tested my self as normal on Tuesday inr was 2.6 ! My target is 4 and when inr falls below 3 take fragmine injections of 5.000 units Struggled...

Last week self tested my self as normal on Tuesday inr was 2.6 ! My target is 4...

Tim_Thorpe

•8 years ago

10 Replies

Sneddons Syndrome

Hi all! I just found this and am reading everything and it's all so helpful. I was recently diagnosed with sneddons, or seronegative APS. My doctor has only...

Hi all! I just found this and am reading everything and it's all so helpful. I ...

Turnbough01

•8 years ago

8 Replies

The most ideal medical person

I had to step in and help somebody recently that I dearly love, they had been feeling very very off colour, appearance very lack lustre, regularly feeling sick...

I had to step in and help somebody recently that I dearly love, they had been fe...

MaryF

Administrator•8 years ago

28 Replies

Hi Update on My APS

Hi it's been an overwhelming 3-4 months! I don't get the pleasure of reading fb or this site, due to no time! I've been caring for my husbands aggressively...

Hi it's been an overwhelming 3-4 months! I don't get the pleasure of reading fb...

Debbweb01

•8 years ago

6 Replies

Ketosis now - tweaking a paleo diet

I have tried taking Plavix which was to severe. I have been good on Paleo diet no strong green veg. Asparin blood pressure tablets. New doc suggested a...

I have tried taking Plavix which was to severe. I have been good on Paleo diet ...

LindaMorrell

•8 years ago

17 Replies

Help I know nothing about antiphlosiphid syndrome

I got diagnosed with antiphlosiphid syndrome about 5 years ago after being referred to the infertility clinc they did blood test and told me that's what I have...

I got diagnosed with antiphlosiphid syndrome about 5 years ago after being refer...

amilou0829

•8 years ago

3 Replies

Multivitamins and Heparin

Hi all, Looking for some advise or general info from your experience please. I have APS (Hughes Syndrome), and we are trying for a family, therefore my...

Hi all, Looking for some advise or general info from your experience please. I ...

Louise_Davies

•8 years ago

4 Replies

Being inactive

My INR had gone much higher than it has ever been, last week I had severe vertigo, unable to function for nearly 5 days, Warfarin clinic informed me being...

My INR had gone much higher than it has ever been, last week I had severe vertig...

Dot69

•8 years ago

8 Replies

APS Diagnosis

Hi everyone I suffered a massive bilateral pulmonary embolism in January 2016 and was on Warfarin for 6 months with no review at the end of this period. The...

Hi everyone I suffered a massive bilateral pulmonary embolism in January 2016 an...

Robbieboy

•8 years ago

7 Replies

Hello :)

Hi I recently found the site and joins Lupus uk forum, after describing some issues I'm having another member kindly mentioned Antiphospholipid, my diagnosis...

Hi I recently found the site and joins Lupus uk forum, after describing some iss...

Anyac81

•8 years ago

13 Replies

CLEXANE GIVEN LATE

Is it ok if you have your clexane just over 4 hours late! I am panicking a bit (actually more than a bit) I have been taking it everyday for 5 months for a PE...

Is it ok if you have your clexane just over 4 hours late! I am panicking a bit (...

Pinkbubble28

•8 years ago

14 Replies

Another example of awareness raising being needed!

http://www.dailymail.co.uk/news/article-4417962/Mother-suffered-stroke-taking-contraceptive-pill.html The notable family history here should have indicated to...

http://www.dailymail.co.uk/news/article-4417962/Mother-suffered-stroke-taking-co...

MaryF

Administrator•8 years ago

3 Replies

Rash

Been getting this rash in the last six months any ideas what it could be ?? Don't if it's to do with sticky blood or mild lupus I have 😐

Been getting this rash in the last six months any ideas what it could be ?? Don'...

Tim_Thorpe

•8 years ago

4 Replies

Warfrin not working

Had an appointment wth prof hunt last Tuesday said my micro clots from my last brain scan was due to wafrin not working because of my antiphosolipid syndrome...

Had an appointment wth prof hunt last Tuesday said my micro clots from my last b...

Tim_Thorpe

•8 years ago

5 Replies

Our son, Grant ( age 15) has been diagnosed with APS - "let's talk about the new experimental Antibodies"

1. Got the results yesterday. Aspirin for now should be fine. His " traditional three antibodies "are border line but negative. ( unlike me.) 2. The new...

1. Got the results yesterday. Aspirin for now should be fine. His " traditional...

KellyInTexas

Administrator•8 years ago

4 Replies

Does anyone else feel like this

Sometimes I feel as if I am losing my mind. I cannot string a sentence together or the wrong word comes out of my mouth. My husband says think about what I...

Sometimes I feel as if I am losing my mind. I cannot string a sentence together...

Molly100

•8 years ago

35 Replies

Folic Acid Deficiency

I have been on Warfarin for 8 years, range 3-4. I have had two Retinal Vein Occlusions. The first before treatment, and the second unfortunately when on...

I have been on Warfarin for 8 years, range 3-4. I have had two Retinal Vein Occl...

Zamalek

•8 years ago

2 Replies

I despair I really do.

Back on the 3rd of Feb I had a third stroke while I had an Inr of 4. They didn't believe I'd had a stroke and tried to send me home. I wasn't leaving until...

Back on the 3rd of Feb I had a third stroke while I had an Inr of 4. They didn't...

Tucson

•8 years ago

23 Replies

I will be on this forum slightly less for one week

Hello, I will still be coming on here, to help, but am away on a retro busking tour in Adalucia in Spain, so will be relying on a very remote cafe in the...

Hello, I will still be coming on here, to help, but am away on a retro busking ...

MaryF

Administrator•8 years ago

23 Replies

Inr crashed

Took inr this morning 2.6 so take fragmine when below 3 my target is 4 Emailed Anticoagulation clinic with results 5 times through out the day now reply...

Took inr this morning 2.6 so take fragmine when below 3 my target is 4 Emailed ...

Tim_Thorpe

•8 years ago

7 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for April 2017

Should I be on medication?

Blood group

Just a quick question :)

Left leg swelling

Been wondering about APS pamphlets

Pain in the stomach zone and hard vomiting

Brain fog

ADHD/ADD and APS

travelling abroad

Inr still not going up 😐

Wafrin crashed

Sneddons Syndrome

The most ideal medical person

Hi Update on My APS

Ketosis now - tweaking a paleo diet

Help I know nothing about antiphlosiphid syndrome

Multivitamins and Heparin

Being inactive

APS Diagnosis

Hello :)

CLEXANE GIVEN LATE

Another example of awareness raising being needed!

Rash

Warfrin not working

Our son, Grant ( age 15) has been diagnosed with APS - "let's talk about the new experimental Antibodies"

Does anyone else feel like this

Folic Acid Deficiency

I despair I really do.

I will be on this forum slightly less for one week

Inr crashed

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