What Are Your Opinions Of The Louise Coote Lupus Unit Since It Moved To Guys Under Rheumatology? (This is for UK Members only)
APsnotFab2 years agoPOPULAR
This Poll is SPECIFICALLY for Members who are or have had Sero-Negative diagnosis(dx) for Hughes/APS . ONLY tick if the answer is YES[b/]
On Behalf of Kate Hindle at HSF - Would you find it useful to have access to a local Hughes Syndrome/APS Support Group?
MaryF4 years agoPOPULAR
46 Replies1 Like
Has your GP heard of Hughes Syndrome/APS? on behalf of Hughes Syndrome Foundation awareness raising etc
What do you think of the new changes on this HeathUnlocked Site
APsnotFab4 years ago
Out of Hours GP provision - how has your's served you in an emergency?
MaryF4 years ago
How long did it take you to be diagnosed with APS/Hughes syndrome?
Hidden5 years ago
Which treatment do you take to manage the symptoms of your APS?
Hidden5 years agoPOPULAR
Do you present low grade fever with primary APS ?? or only those who have also LUPUS?
paddyandlin5 years ago
Were you ever diagnosed with mal de Debarquement syndrome before APS was found?
What sort of activities/exercise/sports do you do on a standard week?
paddyandlin5 years agoPOPULAR
"Fatigue assuming a normal set of circumstances i.e. no increase in normal activity,do you find that your fatigue is worse
Including APS, which of these other conditions have you ever been diagnosed with?
APsnotFab5 years agoPOPULAR
Did the age at which you first noticed Hughes symptoms affect your spelling and learning ability
Have you ever had a strange experience such as feeling that you cannot speed up when walking?
Do you know what your Cholesterol is and how it got better
Have you gone on to get pregnant successfully after being diagnosed with APS
Do you have gum disease?
Do you have a food intolerance?
What is your blood type?
paddyandlin6 years ago
Spelling, I can't can you ?
Is their a change in the neatness of your writing depending on your inr being in range?
If you have problems with word muddling do you still have the same problem when writing
Are you right-handed or left-handed?
Did you ever had a false-positive RPR Test/Syphilis Screening Test in routine medical exams?
paddyandlin6 years agoPOPULAR
According to how you feel (not what your doctor suggests), what is your ideal INR?
22 Replies1 Like
If you look back, what age could you say you started to see symptoms of Hughes Syndrome?
What is your current age range?
What country do you live in?
Hidden6 years agoPOPULAR
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