Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for January 2012

Recommendations about the flu vaccine?

Anyone know if we should or should not get it? I haven't gotten the vaccine in years past, but looking for input since I have been diagnosed. Thanks.

Anyone know if we should or should not get it? I haven't gotten the vaccine in ...

Hilariew930

•13 years ago

12 Replies

It has been 20 years this year - feeling sorry for myself!

It was 20 years ago that I was first diagnosed as having APS - I was 24 and having the time of my life...I'd worked really hard, acheived my ambition and...

It was 20 years ago that I was first diagnosed as having APS - I was 24 and h...

Lucky67

•13 years ago

15 Replies

update

hi everyone: i hadnt posted in a while, but two days before New Years I started bleeding from my nose, mouth and urinating blood as well. I ended up having a...

hi everyone: i hadnt posted in a while, but two days before New Years I started ...

lovemyheart

•13 years ago

9 Replies

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Dilemma

I've been going to St Thomas' for 8 or 9 yrs now and this is the first time I have had cancelled appointments. Spoke to consultant's secretary and she is...

I've been going to St Thomas' for 8 or 9 yrs now and this is the first time I ha...

panda60

•13 years ago

7 Replies

WHAT TYPE OF SYMPTOMS WITH HIGH INRS

hELLO, WHEN I HAVE LOW INRS i.e. 3.0 then I have dizziness, etc and then I get to a certain level i.e. 4.0 and nothing too much but then when i start creeping...

hELLO, WHEN I HAVE LOW INRS i.e. 3.0 then I have dizziness, etc and then I get t...

daisy11

•13 years ago

5 Replies

where is my kristina, lost in the country side?????

boy trying to get these doc s to communicate is like shoveling ------ against the tide.n accept the tide at least comes back to you.?????? get back to me soon...

boy trying to get these doc s to communicate is like shoveling ------ against th...

jetjetjet

•13 years ago

2 Replies

MULTIPLE GALL STONES AND HUGHES ??

Hi Folks Well, wednesday night i had to phone for an ambulance as i was in a lot of abdominal/back pain. To cut a rather long story short i was discharged...

Hi Folks Well, wednesday night i had to phone for an ambulance as i was in a...

linda1scot

•13 years ago

7 Replies

Husband support with wifes of C/APS

What is the support like you get from your Husbands/Wifes with having C/APS?

Skyllark

•13 years ago

20 Replies

CAN FOOD POISONING CAUSE HIGH INR

Can food poisoning or infections cause high inrs? My local doctor said he could not understand why my INR had risen to 5.6. Having been ill over the last...

Can food poisoning or infections cause high inrs? My local doctor said he could...

daisy11

•13 years ago

5 Replies

WHAT ABOUT OUR FAMILIES HOW DO THEY COPE

Hello I was diagnosed April last year and my condition went catastrophic between xmas and new year. My family are struggling sometimes trying to deal with...

Hello I was diagnosed April last year and my condition went catastrophic between...

Mystynzl

•13 years ago

11 Replies

Swollen hands

Does anyone else get swollen hands and really achy fingers. My fingers are now so swollen I have had to have my rings cut off Is this a symptom?

Does anyone else get swollen hands and really achy fingers. My fingers are now...

Debs18

•13 years ago

11 Replies

DLA

I have systemic lupus and APS i've had a PE and TIA in the past the fatigue at present is unbearable and at time i know it sounds silly i feel like i'm on my...

I have systemic lupus and APS i've had a PE and TIA in the past the fatigue at p...

kaysie

•13 years ago

19 Replies

Hi, I was diagnosed in 2006, after having a stroke. I've always had symptoms such as fatigue, double vision, vertigo, nausea and joint pain

(among others), but been able to live with it reasonably well. The last few weeks though have been really tough. I had an incident where my left thumb...

(among others), but been able to live with it reasonably well. The last few week...

DelH

•13 years ago

5 Replies

Does my pain go away when my blood regimen is on track?

I have horrible body pain and I am 30yrs old with the memory of a 90yr old. This is very scary as I am the mom of 3 little boys. My eldest son had intro...

I have horrible body pain and I am 30yrs old with the memory of a 90yr old. This...

DawnS

•13 years ago

9 Replies

Does anyone have tingling and numbness in hands and feet?

I was diagnosed with Hughes last spring. During that time I constantly felt fatigued and sick. I lost a lot of weight and was constantly having joint pain and...

I was diagnosed with Hughes last spring. During that time I constantly felt fati...

Mike88

•13 years ago

4 Replies

does any1

does any1 suffer frm boils or abcesses ive had several last few years ...... inc 1 had b lanced(ouch) i have 1 now on my neck and dont knw if there link...

does any1 suffer frm boils or abcesses ive had several last few years ...... inc...

rach1081985

•13 years ago

5 Replies

Anyone feel fatigued at times?

There times when I feel fine and feel like being active. But, more often than not, I feel run down, sluggish. So much to the point that it is affecting my...

There times when I feel fine and feel like being active. But, more often than no...

Christopher_O

•13 years ago

10 Replies

Has anyone ever felt bullied at work?

I have worked since I was 15, 30 years and since being diagnosed 16 years ago have managed to remain in full time employment as a field manager for a well...

I have worked since I was 15, 30 years and since being diagnosed 16 years ago ha...

BridgetGoldie

•13 years ago

6 Replies

St Thomas' have done it again

I have had my 'annual' appointment changed so many times I have lost the plot. When my July 2011 was changed to Feb 2012 then again till August I phoned up...

I have had my 'annual' appointment changed so many times I have lost the plot. ...

panda60

•13 years ago

9 Replies

Marathon running with Hughes Syndrome does Warfarin help with fatigue?

I am a newbie to the forum as 3 days ago I was diagnosed with Hughes Syndrome after having a bilateral PE last year (seven delightful clots found in my lungs)...

I am a newbie to the forum as 3 days ago I was diagnosed with Hughes Syndrome af...

Marathon_Runner

•13 years ago

6 Replies

APS quarterly newsletters

sbncmo

•13 years ago

8 Replies

Support for pregnancy, miscarriage and female issues and APLS

I wasn't sure where to put this information so hope I'm in the correct spot and not treading on any toes. If you have APLS and have something of a female...

I wasn't sure where to put this information so hope I'm in the correct spot and ...

tassie

•13 years ago

6 Replies

Anyone get cramps with warfarin?

When I started taking warfarin a few weeks back I started getting more cramps than usual and in my hands and fingers as well where I've never had cramps...

When I started taking warfarin a few weeks back I started getting more cramps th...

tassie

•13 years ago

4 Replies

Could Vitamin D be bad for us?

With all the discussion of Vitamin D, does anyone know if taking extra in vitamin form Is good for us? Or, could it have a negative impact on us with...

With all the discussion of Vitamin D, does anyone know if taking extra in vitami...

Hilariew930

•13 years ago

4 Replies

Hi. The last letter i had from St Thomas' says that i have Cerebral APS. Can anyone help me understand what the cerebral bit is? Louise

ciaronsmum

•13 years ago

4 Replies

Vitamin K

Does vitamin K make a difference to how you fee,l even if you are not on warfarin. I am asking because before I had my life saving Heart attack and was put on...

Does vitamin K make a difference to how you fee,l even if you are not on warfari...

daisyd

•13 years ago

6 Replies

Self-Testing with Coagucheck XS???

Hi I received this message from Roche Coaguchek when I asked them if their new machine was more accurate with antiphospholipid patients. "We advise all...

Hi I received this message from Roche Coaguchek when I asked them if their new...

Danimgw

•13 years ago

9 Replies

Headaches - fibro or hughes

I know there a few others here who also have FM which I was diagnosed with two months ago. My headaches have been so much better since I've been on warfarin....

I know there a few others here who also have FM which I was diagnosed with two m...

panda60

•13 years ago

7 Replies

The General Medical Council - Review of Good Medical Practice 2012

For those who may be interested: There is the chance for organizations/individuals/patients/doctors, to fill in one of their on line questionnaires. I...

For those who may be interested: There is the chance for organizations/individ...

MaryF

Administrator•13 years ago

1 Reply

Has anyone had their radial nerve caught when having their blood taken. The other week I had loads of blood tests including my warfarin

then the phlebotomist caught my radial nerve, pain shot down from my inner arm to just above my thumb. Still having problems two weeks on, anyone else had...

then the phlebotomist caught my radial nerve, pain shot down from my inner arm t...

MaryH

•13 years ago

4 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for January 2012

Recommendations about the flu vaccine?

It has been 20 years this year - feeling sorry for myself!

update

Dilemma

WHAT TYPE OF SYMPTOMS WITH HIGH INRS

where is my kristina, lost in the country side?????

MULTIPLE GALL STONES AND HUGHES ??

Husband support with wifes of C/APS

CAN FOOD POISONING CAUSE HIGH INR

WHAT ABOUT OUR FAMILIES HOW DO THEY COPE

Swollen hands

DLA

Hi, I was diagnosed in 2006, after having a stroke. I've always had symptoms such as fatigue, double vision, vertigo, nausea and joint pain

Does my pain go away when my blood regimen is on track?

Does anyone have tingling and numbness in hands and feet?

does any1

Anyone feel fatigued at times?

Has anyone ever felt bullied at work?

St Thomas' have done it again

Marathon running with Hughes Syndrome does Warfarin help with fatigue?

APS quarterly newsletters

Support for pregnancy, miscarriage and female issues and APLS

Anyone get cramps with warfarin?

Could Vitamin D be bad for us?

Hi. The last letter i had from St Thomas' says that i have Cerebral APS. Can anyone help me understand what the cerebral bit is? Louise

Vitamin K

Self-Testing with Coagucheck XS???

Headaches - fibro or hughes

The General Medical Council - Review of Good Medical Practice 2012

Has anyone had their radial nerve caught when having their blood taken. The other week I had loads of blood tests including my warfarin

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