Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,354 members • 10,542 posts

All posts for July 2023

TIA experiences / advice

I’m hoping someone has advice for me. I had a mini stroke on Monday. Tuesday I was in hospital for tests, and on Friday I go to a TIA Clinic for more tests. I...

I’m hoping someone has advice for me. I had a mini stroke on Monday. Tuesday I w...

•9 months ago

Trials

Hi I just read on the Australian Forum there are several trials taking place Does anyone know where or who is sponsoring. Something about antibodies in...

Hi I just read on the Australian Forum there are several trials taking place ...

•9 months ago

Private movement disorder neurologist with understanding of aps?

I have some sort of movement Disorder and looking to go private as the waiting time with nhs is 1 year I just found out. I just don't know where the best place...

I have some sort of movement Disorder and looking to go private as the waiting t...

•9 months ago

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Brain fog

Hi everyone,I was diagnosed in 2016 but had diplopia episode in 2007 during this I started replacing words with others such as brown chichen as turkey window...

Hi everyone,I was diagnosed in 2016 but had diplopia episode in 2007 during this...

•9 months ago

Diabetes and APs / Keto

i was diagnosed as APS back in 2005 and had stable INR controlled with warferin since then. A few months ago my cholesterol and glucose levels were high....

i was diagnosed as APS back in 2005 and had stable INR controlled with warferin ...

•9 months ago

What age did APS start

Hi I was wondering when peoples APS started. I have been looking back over my life and when I was in my infant school and junior school I was bright, clever,...

Hi I was wondering when peoples APS started. I have been looking back over my ...

•9 months ago

NORD Centers

Thank you for your comments! I ended up yesterday in the er and the bruising was so severe they thought I was a victim of domestic violence They...

Thank you for your comments! I ended up yesterday in the er and the bruising wa...

•9 months ago

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Been on hydroxychloroquine 3yrs

I have been taking hydroxychloroquine for 3 years now. It started about 6 months ago Me having dark patches on my neck. Now I have dark patches on my face;...

I have been taking hydroxychloroquine for 3 years now. It started about 6 month...

•9 months ago

NORD CENTERS

NORD has just designated 31 treatment centers Emphasizing the team approach and treatment. Kind of regional. But brand new. Any ideas? Hope all is...

NORD has just designated 31 treatment centers Emphasizing the team approach ...

•9 months ago

Reversed diagnosis

Hey everyone, usually a lurker but I'm actually looking for advice. Bare with me, a bit of history have had 4 miscarriages, a stillbirth and ectopic pregnancy...

Hey everyone, usually a lurker but I'm actually looking for advice. Bare with me...

•9 months ago

hydroxychloroquine

hi same old story Hydroxychloroquine zentiva , my pharmacy say they can’t get hold of them, has anyone else mananged to get them in the uk thank in advance

hi same old story Hydroxychloroquine zentiva , my pharmacy say they can’t get ho...

•10 months ago

shockwave therapy

hi, has anyone who is triply positive for APS been given the OK for shockwave therapy. I’ve got non-traumatic fractures that haven’t healed after almost 5...

hi, has anyone who is triply positive for APS been given the OK for shockwave th...

•10 months ago