Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,392 members • 10,588 posts

All posts for May 2024

Leflunomide

My rheumatologist might start me on this next week. Have been reading up on it, and it's a bit scary Anyone here taking it?

My rheumatologist might start me on this next week. Have been reading up on it, ...

•3 months ago

right side face droop

Hi im new here and wondered if anyone suffered facial droop one side. mine was right side face and mouth along with muscle weakness, worst on right side but...

Hi im new here and wondered if anyone suffered facial droop one side. mine was r...

•3 months ago

New Post, community only please

HiI found out I had APS during my 8th pregnancy in 2006. I had PEs. Fast forward to 2024. One of my adult daughters had PEs in pregnancy, horrific treatment...

HiI found out I had APS during my 8th pregnancy in 2006. I had PEs. Fast forward...

•3 months ago

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Warfarin

Has anyone experienced Warfarin failing you more than once? I have had three different instances where I had large clots in my lungs while on it. I am still on...

Has anyone experienced Warfarin failing you more than once? I have had three dif...

•3 months ago

Blood thinning jab that won’t cause internal bleeding

In the Health section of the Mail last November I read about a new injection Abelacimab which in a head to head trial caused 81% fewer major bleeding...

In the Health section of the Mail last November I read about a new injection Abe...

•3 months ago

Ryeqo medication

Is anyone on Ryeqo? I have fibroids and endo and someone suggested this, but reading the product info I'm not too sure. I have APS and have previously...

Is anyone on Ryeqo? I have fibroids and endo and someone suggested this, but rea...

•3 months ago

IV Therapy safe with APS?

I am having trouble getting help with the next phase of my disease. I have been in a 5 month funk with micro clots which has caused fatigue and all the...

I am having trouble getting help with the next phase of my disease. I have been...

•3 months ago

confusion about diagnosis

my blood work indicated aps. i had a stroke and tia. i'm on warfarin. neither the hemotologist nor the neurologist seem to want to say for certain that i have...

my blood work indicated aps. i had a stroke and tia. i'm on warfarin. neither t...

•3 months ago

Does anyone know anything about the Harpal Clinic?

Has anyone heard of the Harpal Clinic. Allegedly multidisciplinary, concentrating on autoimmune and related conditions. Not cheap of course. I'm just fed up...

Has anyone heard of the Harpal Clinic. Allegedly multidisciplinary, concentratin...

•4 months ago

Hives

Hi Everyone! Disgusting outbreak of hives. I have been lucky - been awhile. Usually later on in the summer. any rec’s? I am on the east coast not too...

Hi Everyone! Disgusting outbreak of hives. I have been lucky - been awhile. U...

•4 months ago

Eliquis for Antiphospholipid syndrome?

I had a pulmonary embolism and was prescribed Eliquis 5 mg 2xday. Does anyone else take Eliquis for pulmonary embolism? Are you experiencing any side...

I had a pulmonary embolism and was prescribed Eliquis 5 mg 2xday. Does anyone e...

LavenderLemonade

•4 months ago