Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,354 members • 10,542 posts

All posts for October 2022

Bruises on legs

Hi I have APS and Lupus SLE. Medications: Warfarin, Hydroxychloroquine and Vitamin D and also HRT patches. I recently have a few small bruises on my legs...

Hi I have APS and Lupus SLE. Medications: Warfarin, Hydroxychloroquine and Vi...

•2 years ago

Total Gastrectomy

Hi Has anyone had a total gastrectomy that is willing to contact me and give me advice etc. I am due to have one in November due to a large adenoma in my...

Hi Has anyone had a total gastrectomy that is willing to contact me and give me...

•2 years ago

Inflammation Flare

I just went through a major flare that has lasted over 8 months!!!! Inflammation has consumed my whole body. Fatigue, swelling, brain fog, forgetful & all over...

I just went through a major flare that has lasted over 8 months!!!! Inflammation...

GirlfromTennessee

•2 years ago

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blood results

can anyone advise if the platelet count is high? I am on riveroxoban

can anyone advise if the platelet count is high? I am on riveroxoban

•2 years ago

INR very different at poc vs venous

recently had aps diagnosis after stroke. Trying to get my inr to 3.5. Dosage keeps going up weekly but my inr has dropped! Diet exactly same week on week....

recently had aps diagnosis after stroke. Trying to get my inr to 3.5. Dosage ...

•2 years ago

out of target symptoms

Hi my name is Kath I’ve had APS dx 1990 on long term warfarin since 24 when I nearly died due to recurrent clots on the brain. My target INR is 3.5. I have a...

Hi my name is Kath I’ve had APS dx 1990 on long term warfarin since 24 when I ne...

•2 years ago

painful muscles thighs

I have had pains in my legs I think muscular could be joint or bones mainly in my left leg, previously Dvt rt leg during pregnancy, it has been putting me off...

I have had pains in my legs I think muscular could be joint or bones mainly in m...

•2 years ago

no symptoms ???

hi guys. Haven’t posted for a while but was so shocked yesterday had to tell you. Been diagnosed with APS for many years now and thought gp knowledge was...

hi guys. Haven’t posted for a while but was so shocked yesterday had to tell you...

•2 years ago

inaccurate venous inr test

Hi all, Last month I posted that hospital made an error on my inr testing. They admitted an error but can’t explain why. The same has happened again.....

Hi all, Last month I posted that hospital made an error on my inr testing. Th...

•2 years ago

help!!

I’m getting more and more impatient and angry / moody is this the effects of my cerebral APS of me just turning into a grumpy old man. I need everything done...

I’m getting more and more impatient and angry / moody is this the effects of my ...

•2 years ago

My wife of 40 years and APS

I strongly believe in doing everything to avoid inflammation generally. Stop all processed foods, no seed oils and restrict or complete avoid grains (wheat,...

I strongly believe in doing everything to avoid inflammation generally. Stop all...

•2 years ago

Aps/migraines/pre menopause?

Hi I have been diagnosed with Aps for 9 yrs and I am now 40yrs old. I have been suffering with cluster migraines which have currently got a lot worse. They...

Hi I have been diagnosed with Aps for 9 yrs and I am now 40yrs old. I have been ...

•2 years ago

prescription charges uk

if I started a petition do you think there are enough warfarin patients that would sign the petition?

if I started a petition do you think there are enough warfarin patients that wou...

•2 years ago

altitude?

When I was diagnosed, a good 20 + years ago, I was told that altitude was going to be an issue for my hiking. I told the hematologist that as a West...

When I was diagnosed, a good 20 + years ago, I was told that altitude was going ...

•2 years ago

hydroxychloroquine Zentiva

My Pharmacy doesn’t have Hydroxychloroquine Zentiva, in stock and is unable to get it apparently, I have phoned Zentiva their is a problem but they would only...

My Pharmacy doesn’t have Hydroxychloroquine Zentiva, in stock and is unable to g...

•2 years ago