Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,351 members • 10,539 posts

All posts for May 2018

A story from the New York Times

https://www.nytimes.com/2018/05/31/well/live/25-and-still-alive.html The woman concerned is busy reading our charity website. MaryF

https://www.nytimes.com/2018/05/31/well/live/25-and-still-alive.html The woman ...

MaryF

Administrator•6 years ago

8 Replies

YET AGAIN INR UP OR DOWN I CANNOT COPE

Yet again INR finger test >8 It’s been another bank holiday weekend here in the UK, got tested at GP Surgery just before the weekend,INR was 1.0. ( far to...

Yet again INR finger test >8 It’s been another bank holiday weekend here in the ...

mariamoo1

•6 years ago

15 Replies

Thyroid problem with hughes

Can anyone help with what is going on. I am seeing a private specialist called professor Singhal in endocrinology as now my thyroid seems to be problematic. I...

Can anyone help with what is going on. I am seeing a private specialist called p...

Kittybaker

•6 years ago

8 Replies

Want to take advantage of all our features? Just log in!

Diagnosed with Obstetric APS back in 1999, is it the case once past child bearing, there is no need to refer to lupus unit for APS flares?

Diagnosed with Lupus/APS in 1999, then in 2007 SLE onset, after 2 years of treatment on Clopidogrel and Hydroxxychloquine, symptoms, cramps, fatigue, pain...

Diagnosed with Lupus/APS in 1999, then in 2007 SLE onset, after 2 years of treat...

pamchris

•6 years ago

7 Replies

mouth

Hi does anyone suffer from white spots inside the cheek & what can they be please?

Hi does anyone suffer from white spots inside the cheek & what can they be pleas...

Gilliansimba

•6 years ago

5 Replies

Antiphospholipid Antibodies Syndrome

To the girl with APS Syndrome!! I have the same thing. You need a Hemotologist they are the blood doctor. However I went to the specialist after losing two...

To the girl with APS Syndrome!! I have the same thing. You need a Hemotologist t...

Heatherrae

•6 years ago

3 Replies

Professor Graham Hughes' Blog - April 2018

https://ghic.world/self-help/blog/april-2018 MaryF

MaryF

Administrator•6 years ago

6 Replies

Advice PLEASE!

I haven't been active on the site since last year. I have been in poor health and just trying to get through each day has proven to be no small feat. I wonder...

I haven't been active on the site since last year. I have been in poor health an...

DanaL13

•6 years ago

1 Reply

Looking for happy stories

To the lovely bunch out there, I have had three miscarriages before I was formally diagnosed with (obstetric) APS. Unfortunately I have had another...

To the lovely bunch out there, I have had three miscarriages before I was forma...

wlnz

•6 years ago

4 Replies

Low iron and white blood count on fragmin

Hey ladies I was wondering if anyone has low iron and white blood cells on Fragmin? My periods are very heavy on it !!! And I noticed my hair started falling...

Hey ladies I was wondering if anyone has low iron and white blood cells on Fragm...

Vj1990

•6 years ago

2 Replies

Aps and pregnancy. Please help!

Hi everyone, I tested positive for LA a few months back. Still haven't had my second test to confirm. This morning I've just had a faint positive on a...

Hi everyone, I tested positive for LA a few months back. Still haven't had my se...

Heidi2791

•6 years ago

18 Replies

Circulation booster

Hi - I work at a desk all day and whilst I do try and move about regularly, I do suffer from cold feet and spider/early varicose veins. Does anyone with APS...

Hi - I work at a desk all day and whilst I do try and move about regularly, I do...

StuartD

•6 years ago

13 Replies

No Period for over a year?

Hi all just woundering if any1 can help i got my dianosis around 4 years ago after dvt and pe. My periods before was sometimes scattered like 3 months apart....

Hi all just woundering if any1 can help i got my dianosis around 4 years ago aft...

lissiexsx

•6 years ago

4 Replies

Wildflower

Good Morning from Brockville Ontario,Canada. I am new to the group and reading your letters has answered so many of my unexplained symptoms except for this one...

Good Morning from Brockville Ontario,Canada. I am new to the group and reading y...

hollyirene

•6 years ago

10 Replies

Inr

How High is your inr and how do you know what is best?

murphylotte

•6 years ago

21 Replies

Dream run has had a hiccup.

So, i've felt great for just over a year now. A few nights ago I had a bowel obstruction and ended up in hospital. I waited until the pain was unbearable and...

So, i've felt great for just over a year now. A few nights ago I had a bowel obs...

Ozchick

•6 years ago

10 Replies

Antibiotics

Hi guys , I have never had to have antibiotics whilst on Warafrin until now . Will my INR go up or plummet x

Hi guys , I have never had to have antibiotics whilst on Warafrin until now . Wi...

amy1808

•6 years ago

15 Replies

Today we have reached 8,000 members

Wow, what a lot of us there are! A lot on here have already read this paper, but for our newer members this is a great read for yourselves and also your GP!...

Wow, what a lot of us there are! A lot on here have already read this paper, ...

MaryF

Administrator•6 years ago

3 Replies

I'm scheduled to have total knee replacement in both knees at Guys

I was referred to Guys by Prof. Hunts team at st Thomas'. They will be done one at a time and the second one will only go ahead once the first has healed. I...

I was referred to Guys by Prof. Hunts team at st Thomas'. They will be done one ...

Tucson

•6 years ago

16 Replies

Pregnant and undiagnosed but fearful

Hello all, I'm hoping you all can give me a little insight on hughes syndrome. My mother was diagnosed many years ago after losing 3 babies. She then had me 12...

Hello all, I'm hoping you all can give me a little insight on hughes syndrome. M...

Angelbrooke96

•6 years ago

8 Replies

INR up and down vitamin K, and then fragment depending on reading. I feel so ill

Hi everyone, thank you for all your support. My arm has had a CT SCAN. Awaiting results to see if they can re- break it, to put the humerus and shoulder in the...

Hi everyone, thank you for all your support. My arm has had a CT SCAN. Awaiting ...

mariamoo1

•6 years ago

3 Replies

Loss of power to arm.

I am on an INR of 3.0 - 4.0 recently. I felt my Left arm losing power and had difficulty in lifting it to my head or above. I checked my INR as I have my own...

I am on an INR of 3.0 - 4.0 recently. I felt my Left arm losing power and had di...

LesJames

•6 years ago

3 Replies

Temporal Artiritus

Temporal Artiritus. What is this condition I was in hospital after being admitted for very high blood pressure and they took some bloods and some came back...

Temporal Artiritus. What is this condition I was in hospital after being admitte...

JemimaPuddleduck1

•6 years ago

15 Replies

Blood type and severity of symptoms

Having read the recent articles on type o blood clotting less https://www.google.co.uk/amp/s/www.medicalnewstoday.com/articles/amp/321708 I wondered what blood...

Having read the recent articles on type o blood clotting less https://www.google...

starships

•6 years ago

17 Replies

APS doctors in Canada.

Thanks to all the helpful people on this site I have a list (short) for specialists here in Canada. Dr. Fritzler recommended: Ann Clarke - Calgary 403...

Thanks to all the helpful people on this site I have a list (short) for speciali...

turkeyfalcon

•6 years ago

6 Replies

Has anyone seen the site online regarding APS and there are all types off information given by doctors etc.

I came across this site which covered APS and the top doctors that was involved with this site. One of the topics that was discussed was the use of blood...

I came across this site which covered APS and the top doctors that was involved ...

Teanna

•6 years ago

10 Replies

Clexane and periods???

Hi! I have recently been switched over to clexane and asprin from taking warfin each day. Can i ask if anyone has noticed a change in there period cycle since...

Hi! I have recently been switched over to clexane and asprin from taking warfin ...

gemgemz

•6 years ago

4 Replies

Could this be APS? From vertigo to superficial vein thrombrosis to Splinter Haemorrhage to heart palpitations and more...

Hello I am new here. I have been having alot of health issues in the last couple of months with no diagnosis at all. From my kidneys to pelvic pain and my...

Hello I am new here. I have been having alot of health issues in the last couple...

Misg

•6 years ago

18 Replies

No help in Canada

I live in Canada and there seems to be a real lack of APS doctors here. I went to a rheumatologist yesterday and she didn’t even mention the two high positive...

I live in Canada and there seems to be a real lack of APS doctors here. I went t...

turkeyfalcon

•6 years ago

18 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for May 2018

A story from the New York Times

YET AGAIN INR UP OR DOWN I CANNOT COPE

Thyroid problem with hughes

Diagnosed with Obstetric APS back in 1999, is it the case once past child bearing, there is no need to refer to lupus unit for APS flares?

mouth

Antiphospholipid Antibodies Syndrome

Professor Graham Hughes' Blog - April 2018

Advice PLEASE!

Looking for happy stories

Low iron and white blood count on fragmin

Aps and pregnancy. Please help!

Circulation booster

No Period for over a year?

Wildflower

Inr

Dream run has had a hiccup.

Antibiotics

Today we have reached 8,000 members

I'm scheduled to have total knee replacement in both knees at Guys

Pregnant and undiagnosed but fearful

INR up and down vitamin K, and then fragment depending on reading. I feel so ill

Loss of power to arm.

Temporal Artiritus

Blood type and severity of symptoms

APS doctors in Canada.

Has anyone seen the site online regarding APS and there are all types off information given by doctors etc.

Clexane and periods???

Could this be APS? From vertigo to superficial vein thrombrosis to Splinter Haemorrhage to heart palpitations and more...

No help in Canada

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