Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for August 2015

Neurologists

I have seen a rheumatologist and a neurologist this week - the rheumatolist was great he really understood Hughes and my symptoms and confirmed on my CT and...

I have seen a rheumatologist and a neurologist this week - the rheumatolist was ...

Danni33

•9 years ago

16 Replies

Hideous fatigue

Hello all, Forgive the sympathy request nature of what follows but does anyone have any tips or suggestions on coping with bouts of crippling fatigue. I'm...

Hello all, Forgive the sympathy request nature of what follows but does anyone ...

Herbs77

•9 years ago

22 Replies

Right side of head hurts bad when I sit up or stand up

Help me figure out what is wrong

girl_12

•9 years ago

4 Replies

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Not sure what to do

Since awful brain fog Monday and inr it two I have been feeling awful. As haemo suggested u called GP to get blood test done same time as coagucheck. GP not...

Since awful brain fog Monday and inr it two I have been feeling awful. As haemo ...

Fusch

•9 years ago

13 Replies

Fed up

I have an emergency appointment today with consultant. I don't hold much hope that I will come away feelin positive . My foot feels stuck when I move or walk...

I have an emergency appointment today with consultant. I don't hold much hope th...

Paulie303

•9 years ago

10 Replies

Rutiximab with APS

Hello everyone .. Is rutiximab used in APS .. Is it work in it ...pls share ur reviews

Hello everyone .. Is rutiximab used in APS .. Is it work in it ...pls share ur r...

Sazew

•9 years ago

3 Replies

Guys visit

Hi all I had my appointment at Guys, another 18 vials of blood and deemed positive on Igm, betaglycoprotein and For the first time, Lupus Anticoagulant...

Hi all I had my appointment at Guys, another 18 vials of blood and deemed posit...

Fusch

•9 years ago

3 Replies

Update on appointment in NYC

I'm sorry I haven't updated earlier. Last week was the last week of summer break here in Texas and I have three children at home. Rather than retype...

I'm sorry I haven't updated earlier. Last week was the last week of summer brea...

junipers76

•9 years ago

17 Replies

Got my second positive LA test

Hi Everyone, I finally was able to get my second LA test and I now have had 2 positive results 12 weeks apart. The rheumatologist called me and is putting me...

Hi Everyone, I finally was able to get my second LA test and I now have had 2 p...

bassetpup

•9 years ago

8 Replies

Anyone ALLERGIC TO shellfish?

At the age of 17yrs I became so allergic to all shell-fish/ and fish. Up until the age of 17 I was able to eat any type of seafood, However after 17yrs I...

At the age of 17yrs I became so allergic to all shell-fish/ and fish. Up until ...

Lyndsaylou

•9 years ago

6 Replies

life changing APS

I am a 51 year old women who was prefectly fit and well non smoker, non drinker who suffered a stroke in Jan 15, which affected my right side mobility, as a...

I am a 51 year old women who was prefectly fit and well non smoker, non drinker ...

Danni33

•9 years ago

12 Replies

Pain in lower back

Has anyone with hughes suffered from back pain? This seems to be a fairly new symptom to me (by new I mean the last year or two). I get crippling pains in my...

Has anyone with hughes suffered from back pain? This seems to be a fairly new sy...

Tomcat

•9 years ago

5 Replies

Hospital appointment and a new problem - advice please.

Hi all, I finally got an immunology appointment for Frimley park in September. I'm quite nervous because having fought so hard for it I now don't know what to...

Hi all, I finally got an immunology appointment for Frimley park in September. ...

phoenix77

•9 years ago

11 Replies

Chest pain,headache and eye pain

Not sure I'd I should be concerned about the eye pain that has recently started to bother me. Started off like a headache behind my left eye, several days of...

Not sure I'd I should be concerned about the eye pain that has recently started ...

Juejue11

•9 years ago

6 Replies

Travelling on Warfarin

Hi, I was just wandering if any of you can share your experiences of travelling on long flights ie. 10 hours with APS (previous stroke) whilst on warfarin. I...

Hi, I was just wandering if any of you can share your experiences of travelling ...

Cookie83

•9 years ago

14 Replies

PIP Tribunal

Hi, I am very pleased to say this I WON ! !! I went to my face to face Tribunal last Thursday. I met with a Gp a Judge and a lady ( I think she said from...

Hi, I am very pleased to say this I WON ! !! I went to my face to face Tribunal ...

Totallysick

•9 years ago

11 Replies

Good news 1st last

Well yesterday I went to see the pain management nurse who is a connective tissue specialist, I asked for an appointment as I was totally confused with my...

Well yesterday I went to see the pain management nurse who is a connective tissu...

bevjane74

•9 years ago

9 Replies

Light headedness and eye twitch

Hi, Just wandering if anyone has had the feeling of extreme light headedness and at the same time the left eye twitches. This has happened twice over the past...

Hi, Just wandering if anyone has had the feeling of extreme light headedness and...

Cookie83

•9 years ago

8 Replies

Styes

Hi, does anyone else keep getting recurring styes in the same eye?

Sue-Carr

•9 years ago

6 Replies

Nerve Blocking for Headaches

Hi Has anyone had nerve blocking done for headaches. They have also recommended botox. We are trying to find out about this treatment Louise has had a sagittal...

Hi Has anyone had nerve blocking done for headaches. They have also recommended ...

KatrinaJones

•9 years ago

7 Replies

Hi everyone

Hi, I have just joined this forum after reading it for a while. I was diagnosed with APS following a collapse from DVT and multiple bilateral PE's 8 years ago...

Hi, I have just joined this forum after reading it for a while. I was diagnosed ...

sartee

•9 years ago

16 Replies

Bridging plan for holiday to Australia when on Rivaroxaban?

Hi all, I was wondering if anyone had any advice or experience of a similar situation: I am soon going to be travelling to Australia for 3 weeks. I currently...

Hi all, I was wondering if anyone had any advice or experience of a similar situ...

merrohawk83

•9 years ago

6 Replies

Off to guys today

My appointment in Beverley Hunt's clinic is this morning. Having been tested in June by kings and dx with very high antiphospholipid antibodies, put on...

My appointment in Beverley Hunt's clinic is this morning. Having been tested in...

Fusch

•9 years ago

10 Replies

Anticoagulant Clinic has switched me to Dalteparin from Warfarin after INR reading swing to 9.5

Hi all, just a quicky, after a coupleof months of Warfarin I've been switched back to Dalteparin as the Warfarin didn't agree with me, they recorded my INR as...

Hi all, just a quicky, after a coupleof months of Warfarin I've been switched ba...

Herbs77

•9 years ago

6 Replies

Genetics?

I am very confused. My husband had a stroke at 32yrs and was later diagnosed with Hughes syndrome. In the 16yrs we have been together he has continually...

I am very confused. My husband had a stroke at 32yrs and was later diagnosed wit...

Iinca123

•9 years ago

9 Replies

Fragmin dosage query

I am currently using fragmin, the dosage being 18,000. At a haematology appointment last week, the consultant suggested at my next appointment reviewing the...

I am currently using fragmin, the dosage being 18,000. At a haematology appoint...

Positiveandhopeful

•9 years ago

7 Replies

small lump,size of pea,stings like crazy

have seen off the teen and the houseguests and am a bit calmer but this damn lump is stinging so much it kept me awake all night Have had large cyst on inside...

have seen off the teen and the houseguests and am a bit calmer but this damn lum...

donnabrain

•9 years ago

6 Replies

Quinoric

Hi all, hope you are all enjoying the warm weather, I would just like to ask a quick question. Can you tell me what the problem is with Quinoric, is it as...

Hi all, hope you are all enjoying the warm weather, I would just like to ask a q...

Elfie1

•9 years ago

11 Replies

When to resume taking Warfarin

I am due to have a minor surgical procedure under a local anaesthetic and have stopped my Warfarin for 5 days. When can I start retaking my medication

I am due to have a minor surgical procedure under a local anaesthetic and have s...

gizmomaven

•9 years ago

6 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for August 2015

Neurologists

Hideous fatigue

Right side of head hurts bad when I sit up or stand up

Not sure what to do

Fed up

Rutiximab with APS

Guys visit

Update on appointment in NYC

Got my second positive LA test

Anyone ALLERGIC TO shellfish?

life changing APS

Pain in lower back

Hospital appointment and a new problem - advice please.

Chest pain,headache and eye pain

Travelling on Warfarin

PIP Tribunal

Good news 1st last

Light headedness and eye twitch

Styes

Nerve Blocking for Headaches

Hi everyone

Bridging plan for holiday to Australia when on Rivaroxaban?

Off to guys today

Anticoagulant Clinic has switched me to Dalteparin from Warfarin after INR reading swing to 9.5

Other problems

Genetics?

Fragmin dosage query

small lump,size of pea,stings like crazy

Quinoric

When to resume taking Warfarin

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