Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,354 members • 10,542 posts

All posts for August 2019

Recurrent miscarriage and sticky blood syndrome tests

Hi all Im brand new here So in summary... I have a 3 yr old son who is healthy We tried for another child and still trying But have suffered three...

Hi all Im brand new here So in summary... I have a 3 yr old son who is health...

Sunflower979

•5 years ago

17 Replies

Joints

Hi guys Suffering badly with joint paint , what does everyone take for it , apparently I can only take paracetamol because of the warfarin.

Hi guys Suffering badly with joint paint , what does everyone take for it , app...

amy1808

•5 years ago

17 Replies

APS or MS

Feeling fed up so wanted a few opinions. Diagnosed wit cerebral APS by Prof D’Cruz at Guys about 18 months ago (possibly more but can’t remember!) so have been...

Feeling fed up so wanted a few opinions. Diagnosed wit cerebral APS by Prof D’Cr...

Greenmil3

•5 years ago

18 Replies

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I have a date for my arm surgery after 2 and a half years waiting

Hi, to all of you that have been following my long journey. I ended up going back to my GP, in regards to the heavy nose bleeds, turned out I have a folic acid...

Hi, to all of you that have been following my long journey. I ended up going bac...

mariamoo1

•5 years ago

5 Replies

Brain Fog from The Mighty

Hello all. I just saw this on The Mighty web site it talks of brain fog and has a lady describing what it is like. I think she did a really greet job so...

Hello all. I just saw this on The Mighty web site it talks of brain fog and has ...

SoulRebel-APS

•5 years ago

11 Replies

Back from plastic surgeon

Well All the Doctor would call it was a MASS - - the mass is right side of nose downward an inch at a 45 degree angle and up from the right side of the...

Well All the Doctor would call it was a MASS - - the mass is right side of nos...

jetjetjet

•5 years ago

30 Replies

Spoke to gynaecology secretary

Spoke to gynaecology secretary she highlighted my case and put it to consultant who in clinic tomorrow so fingers crossed. Picked up my painkillers and taken...

Spoke to gynaecology secretary she highlighted my case and put it to consultant ...

rach1081985

•5 years ago

8 Replies

Sent home

Sent home with strong painkillers and advised to phone and explain situation as nd fast track my gynaecology appointment September... Blood came back clear but...

Sent home with strong painkillers and advised to phone and explain situation as ...

rach1081985

•5 years ago

8 Replies

not so lucky

I suffer from aps. diagnosed in 2009 and have yet to have any medical intervention with the severe dizziness, and lightheadedness, the only time it does not...

I suffer from aps. diagnosed in 2009 and have yet to have any medical interventi...

packerfan

•5 years ago

26 Replies

Thoughts Needed

As I try to wrap myself around this I am thinking something that I’m curious if you agree with it. Anticoagulants help reduce the risk of clots and/or clots...

As I try to wrap myself around this I am thinking something that I’m curious if ...

TwoH

•5 years ago

18 Replies

Update

To all those who offered advice yesterday and last few days I have phone NHS direct and explained my symptoms and waiting for a call back next few hours........

To all those who offered advice yesterday and last few days I have phone NHS dir...

rach1081985

•5 years ago

8 Replies

Heat and Me!

Does anyone else get bad effects from hot weather? It seems to bring on more dizziness and feelings of falling over. That’s without my skin feeling on fire....

Does anyone else get bad effects from hot weather? It seems to bring on more diz...

Greenmil3

•5 years ago

18 Replies

Silly question

Can you go to a and e I suspect I have fibroids or early menopause... Have for a while pain is awful at times and makes eyes water.... I have gynaecology...

Can you go to a and e I suspect I have fibroids or early menopause... Have for a...

rach1081985

•5 years ago

20 Replies

Feeling so down

Feeling incredibly sad today and in lots of pain and discomfort.... Just want cry and give up... Full of stress at moment.... 1 thing after another

Feeling incredibly sad today and in lots of pain and discomfort.... Just want cr...

rach1081985

•5 years ago

16 Replies

Waiting on Lupus anticoagulant results

I had an unexplained DVT at the back of my knee in February 2019. Had an appointment with a heamotologist in May 2019 in which they sent me for a Lupus...

I had an unexplained DVT at the back of my knee in February 2019. Had an appoint...

Cardcraft

•5 years ago

11 Replies

A reminder regarding Patient's Day

For those of you attending, (and we are now sold out), and, we have changed our location due to outgrowing the original location. We will be holding these...

For those of you attending, (and we are now sold out), and, we have changed our...

MaryF

Administrator•5 years ago

16 Replies

Just a little note

Just to give some hope out there to all those who want children.. I have 2 healthy children and its been a battle as I never thought I be able have children......

Just to give some hope out there to all those who want children.. I have 2 healt...

rach1081985

•5 years ago

2 Replies

APS and work

So I had a meeting with my boss today who was reassured by the APS diagnosis as it helps him understand a lot of how I can be at work. He spoke about being...

So I had a meeting with my boss today who was reassured by the APS diagnosis as ...

AnnaBeth

•5 years ago

10 Replies

Occipital nerve block postponed

Hi all I was due to have my nerve block this week but when I contacted them asking when I should stop my warfarin I was told to stop 3 days prior and order...

Hi all I was due to have my nerve block this week but when I contacted them aski...

SteveRN

•5 years ago

7 Replies

APS and cataract surgery in Sept

I worry about bleeding when any procedure is done. Im having cataract surgery on both eyes two weeks apart-9/10 and 9/24. Id like to hear from anyone who’s...

I worry about bleeding when any procedure is done. Im having cataract surgery on...

loretta1106

•5 years ago

10 Replies

Question

Has anyone out there having APS and also diabetes having INR bottoming out and taking the sugar count down with the INR . I have been battling this for weeks...

Has anyone out there having APS and also diabetes having INR bottoming out and t...

jetjetjet

•5 years ago

7 Replies

Fibroids early menopause?

Anybody know if symptoms are similar I feel like I'm coming in period not long had 1... Big change in my cycle as well.. Any advice before my gynaecology...

Anybody know if symptoms are similar I feel like I'm coming in period not long h...

rach1081985

•5 years ago

3 Replies

Does Anti-phosphatidylserine = APS diagnosis?

Hello! I could really use some direction. (Located in US). I tested positive - twice - for anti-phosphatidylserine IgM (32 and 53). I tested negative...

Hello! I could really use some direction. (Located in US). I tested positiv...

ChicagoCubs

•5 years ago

10 Replies

Oct. gallbladder surgery!

Oct. gallbladder surgery! I will come off my Coumadin, and use Fragmin (injectible) to bridge prior to surgery. I’m glad my General surgeon wants to err on...

Oct. gallbladder surgery! I will come off my Coumadin, and use Fragmin (inject...

ELlieRL

•5 years ago

14 Replies

Coagucheck XS

Did they recall the coagucheck machine or just some of the texts strips. Is the XS a good option for triple positive APS? Need wonder and don’t know if I...

Did they recall the coagucheck machine or just some of the texts strips. Is the...

SoulRebel-APS

•5 years ago

7 Replies

Referral

Im having problems getting my GP to refer me to a rheumotologist.... I tested positive twice for lupus anticoagulant after having a stroke and then a DVT...

Im having problems getting my GP to refer me to a rheumotologist.... I tested po...

debiann

•5 years ago

16 Replies

Double vision glasses? What other Meds help you?

Do prism glasses work for APS double vision? Also, other than blood thinners, what meds are you on for APS?

Do prism glasses work for APS double vision? Also, other than blood thinners, wh...

Medically_confused

•5 years ago

11 Replies

Leg pain

Good Morning Everyone I’d like to know if anyone has or is experiencing numbness and burning from the knees down. The Dr cannot find a pulse on the top part of...

Good Morning Everyone I’d like to know if anyone has or is experiencing numbness...

hihannula

•5 years ago

17 Replies

Early menopause

Any advice on early menopause... Have concerning symptoms I'm 34 change in my cycle amongst other signs... I'm seeing gynaecologist September.. Got question...

Any advice on early menopause... Have concerning symptoms I'm 34 change in my cy...

rach1081985

•5 years ago

2 Replies

INR Nurses

I know we all like to moan about our INR clinics wether nurse led or hospital based. I spoke to the nurses this morning who were wonderful as others have...

I know we all like to moan about our INR clinics wether nurse led or hospital ba...

judes

•5 years ago

2 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for August 2019

Recurrent miscarriage and sticky blood syndrome tests

Joints

APS or MS

I have a date for my arm surgery after 2 and a half years waiting

Brain Fog from The Mighty

Back from plastic surgeon

Spoke to gynaecology secretary

Sent home

not so lucky

Thoughts Needed

Update

Heat and Me!

Silly question

Feeling so down

Waiting on Lupus anticoagulant results

A reminder regarding Patient's Day

Just a little note

APS and work

Occipital nerve block postponed

APS and cataract surgery in Sept

Question

Fibroids early menopause?

Does Anti-phosphatidylserine = APS diagnosis?

Oct. gallbladder surgery!

Coagucheck XS

Referral

Double vision glasses? What other Meds help you?

Leg pain

Early menopause

INR Nurses

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