Sticky-Blood – Hughes Syndrome Support is a Forum that helps support people with Hughes/Antiphospholipid Syndrome and Sero-negative Hughes/APS (SN-APS...Read more
What symptoms do you have/get?
Hidden4 days ago
Curious as to what others are experiencing
Numbness in legs
DebsT9 days agoPOPULAR
Hi I was diagnosed with APS in 2011 whilst going through IVF. I have been on aspirin daily since that time. This week I got out of bed and...
Lure22 days ago
I would like to know if you have had bad experiances after a bite from a mosquito, a wasp or a gadfly (breeze fly)? the latter connected wit...
Has anyone ever seen a Neuro immunologist?
Hidden2 days ago
Well my migraines are unbearable. I've had various daily types of headaches for around 3 months and had 20 migraines in the last 30 days. So...
APS & the gallbladder
Good4u2 days ago
Hi everyone, just wondering how many of you suffer gallbladder problems? Prior to "official" diagnosis in 2012 I'd had several scans to chec...
Just been diagnosed but not confirmed yet
DeanJ5 days agoPOPULAR
Hi I'm 53 and had a year of terrible illness ranging from. severe chest pains, chronic prostatitis. temporary monocular blindness, several T...
Any other hope for relief?
8yearsandcounting6 days ago
I've had APS for over 8 years now. Aside of at least 5 episodes of DVT's / PE's, I've also had a stroke too. I've been at my prescribed INR...
Warfarin to Rivaroxaban
MASuk1023 days agoPOPULAR
Hi It's been a month or so since the results of the trial were published. Has anyone swapped yet and if so how are you getting on...
Sara_A7 days ago
This will probably only really been relevant to uk residents as its about a TV programme...
19 Replies1 Like
This flipping disease
Hidden10 days ago
O my good god please somebody tell me that there is light at the end of this very long tunnel . My INR is up and down like I don't know wha...
18 Replies2 Likes
APS Guys hosp after Khamashtas depart.
Hidden6 days ago
Been a patient if Khamashta for some years. Diagnosed 1st at London Bridge...
Prevalence of Severe deep leg pain / bone pain.
SoulRebel-APS17 days agoPOPULAR
I have APS and have been suffering from sever bone deep pain in my legs at night, not every night but frequently. The pain seems to start in...
20 Replies1 Like
Problems with my head
pennyd20043 days ago
Hi everyone I know I have not posted in awhile, but I'm having problems with migraine headaches that they think were triggered by a really r...
addz4 days ago
Hey guys! Hope everyone is coping well with their symptoms - just wondered if anyone else suffered from a cardboard taste at all? I started ...
Weak lupus anticoagulant? In need of help
Oliversmum12 days ago
In the past year I have miscarriaged twice before 10 weeks...
17 Replies1 Like
Cholesterol not the culprit in coronary plaque build
nnchin13 days ago
Does statin Crestor now have a role in reducing bad or high LOL
Hidden12 days ago
Well following advice from you lovely people I finally saw my APS specialist today and found out my diagnosis 8 years ago was borderline and...
14 Replies1 Like
Severe pains in bones and muscles
RebeccaP3 days ago
Diagnosed with APR 4 years ago have very good team in Dublin. However for past 9 weeks suffering very badly with pains in my lung, bones an...
NEED DOCTOR in Southern California
ehc9187 days ago
I have Hughes Syndrome and have been working with my primary who has been very, very accommodating with my treatment, however she feels that...
donnabrain21 days agoPOPULAR
So, I have been on here moaning before (twice) about not being able to make contact at all in between annual check ups at lupus unit...
What Are Your Opinions Of The Louise Coote Lupus Unit Since It Moved To Guys Under Rheumatology? (This is for UK Members only)
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