Sticky-Blood – Hughes Syndrome Support is a Forum that helps support people with Hughes/Antiphospholipid Syndrome and Sero-negative Hughes/APS (SN-APS...Read more
I have got to prove that I am having an INR test and my INR numbers ....to get a Warfarin prescription?! Anyone else been asked for proof?!
loppylou684 months agoPOPULAR
I went to my GP today...
Needing answers re: Hughes Syndrome
thumbtac4 months agoPOPULAR
I have Hughes syndrome also called APS I have no balance I black out and shake can't find a Dr that knows what to do trying to go to mayo bu...
kbmis0033 months agoPOPULAR
The Blood Bank called my husband and I about giving blood. We told them I had APS and the caller said that she would talk to her director ...
Under investigation for autoimmune conditions. Years of suffering
Mickyaela3 months agoPOPULAR
Hi. I've just had a load of blood tests done and I noticed one of them was Antiphospholipid Antibodies so I thought I would introduce mysel...
Jennybreslau3 months agoPOPULAR
Hi everyone, I'm new here, am currently suffering with a DVT extending from foot to pelvis, have been in hospital for 9 days and now dischar...
Nursewendy37614 months agoPOPULAR
Anyone have hot flushing- it is 100 times worse than hot flashes? Does it come with flares
Any APS'ers have issues with petechiae
mylafont3 months agoPOPULAR
I've recently noticed petechiae on my lower legs and feet. Have any of you guys here experience this.....is this something else that goes al...
21 Replies1 Like
Worried about getting diagnois taken away??!!
Hidden3 months agoPOPULAR
Hi ll,hope your all as well as can be, given all the changes i have decided not to go back to guys hospita, dr k isnt there anymore.im still...
20 Replies1 Like
APS and suffering still with Tia's ?
amy18083 months ago
Been on warafrine for 6 weeks now ,things really started to feel normal again , well as normal as they can , then bam yesterday got left sid...
Botox -- for pain etc.
jetjetjet4 months ago
18 Replies1 Like
The truth shall prevail!!!
Debbweb014 months ago
Hi Kerstin! Thx for ur response! I must clear something I've been hiding since I've seen that NYC SPECIALIST IN APD ! This particular Doctor...
Mottling, red and white under skin
Mickyaela3 months ago
Hi, I introduced myself last night. I'm under investigation for lupus and other things and included on the blood tests was APS and vascul...
Aps or not?
Kali1104 months ago
Hi all! A year ago last jan i had a blood clot on my lung. At the time the specialists were convinced it was due to tge pill ( had been cere...
16 Replies1 Like
Professor Graham Hughes Monthly Blog April 2016
MaryF4 months ago
15 Replies5 Likes
Triple Positive APS, hoping for advice on anti-coagulation
Hidden3 months ago
I have Lupus, B12 Anaemia, Raynauds, Sjrojens, Muscle Weakness, Neuropathy etc etc!! Whilst my Lupus seems stable, according to Prof D'Cruz ...
Now we know why! Finally! "Hughes Syndrome"
Reem044 months ago
Anyone with a shakey hand???
I'll try to make this short! Lol... Today my left hand started to shake! It feels like it's not yhere!!! It's a bit like a tremor! Can't see...
13 Replies1 Like
As a follow up to last friday: Went to my primary care DR today
Hidden4 months ago
Hi, I saw my Primary DR today as I still had the same problems since last week, but also others such as my right eye is blurry and feels hea...
Me and my husband are like chalk and cheese with need to blow our noses. He is constantly blowing his whereas I hardly ever need to...
Positive then negative for a p s.
Since I had a positive and a negative test for a p s ,I have in the last six months started having episodes of vertigo and balance problems...
This Poll is SPECIFICALLY for Members who are or have had Sero-Negative diagnosis(dx) for Hughes/APS . ONLY tick if the answer is YES[b/]
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