Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

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All posts for December 2013

Wishing you all the best for 2014

Hoping that everybody is enjoying a wind down of the old year and looking forward to the new one shortly. Best wishes to lots of lovely people:...

Hoping that everybody is enjoying a wind down of the old year and looking forwar...

MaryF

Administrator•10 years ago

18 Replies

I hope everybody is having a lovely Christmas break, and is waiting for a good New Year to roll on in.

I had a great Christmas, although my house was full to the brim from days before until yesterday, AND.... I have now started my after Christmas exercise...

I had a great Christmas, although my house was full to the brim from days before...

MaryF

Administrator•10 years ago

18 Replies

Happy holidays everyone. I am visiting my brother in France and I suspect that he has Hughes/Sjogrens as I do.

He is complaining of constant joint pains and also has headaches at times. Does anyone know of a doctor he could see in the Paris area? He lives half an hour...

He is complaining of constant joint pains and also has headaches at times. Does...

Christin

•10 years ago

2 Replies

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Hi, quick question. Does anyone livedo when their hands are hanging by their sides?

It's like the blood pools in my hands and they get tingly and my hands and arms get covered in red blotches. I am diagnosed with MS but this does not seem to...

It's like the blood pools in my hands and they get tingly and my hands and arms ...

MSer

•10 years ago

11 Replies

I'm on 60 mg Lovenox injection twice daily. And coumadin 7.5mg once day. My dr is discontinue my shots tomorrow and dropping my coumadin t

To 2.5mg. I have every side effect of the meds. My question is what should I expect coming off the lovenox since I have to return to work tomorrow also?...

To 2.5mg. I have every side effect of the meds. My question is what should I ex...

Arleen

•10 years ago

1 Reply

New to this site

No diagnosis of Hughes...i came across it and when i read more about it I thought getting other peoples opinions maybe of help. Iv Hashimotos, underactive...

No diagnosis of Hughes...i came across it and when i read more about it I though...

yorkshiregirl44

•10 years ago

7 Replies

Can aps cause dry skin & loss of pigmentation?

My skin has been dry for ages and I was going to bed with cream and cotton gloves on - not a good look!! Last week the skin was cracked and bleeding on my...

My skin has been dry for ages and I was going to bed with cream and cotton glove...

stillwaiting

•10 years ago

2 Replies

Does anyone know if SLE can cause kidney cists?

I know this page is about Hughes but I also have sle. I did a CT do to abdominal pain and the images shows several kidney cysts and the biggest measures 1.3...

I know this page is about Hughes but I also have sle. I did a CT do to abdominal...

BrazilianBade

•10 years ago

2 Replies

Warfarin and tinzaparin injections

Hi again - when I first discovered I had DVT I was started on tinzaparin injections and then warfarin was introduced this helped my blood levels reach I...

Hi again - when I first discovered I had DVT I was started on tinzaparin injecti...

bevjane74

•10 years ago

4 Replies

Hi all Does anyone have the old downloadable leaflets on hughes -cant find these on the new site -and I dont want to have to always direct

people to the site as they might not look it up ! thanks

sangje

•10 years ago

2 Replies

Hi.Can anyone tell me the name of the pill that seems to help with the sleeping too much problem for APS sufferers?

Zimmer

•10 years ago

8 Replies

How soon are you notified if there's a problem after ct venography.

Hi all. I've been experiencing neurological symptoms, visual field loss and raised intracranial pressure for several months. During the investigation I was...

Hi all. I've been experiencing neurological symptoms, visual field loss and rais...

Tinythepanda

•10 years ago

2 Replies

Second scan!

Had another scan today (I'm being well looked after) and all good so far. 9 weeks pregnant. Also I was interested to note that on the antenatal care record...

Had another scan today (I'm being well looked after) and all good so far. 9 week...

Hopingforababy

•10 years ago

7 Replies

DVT?

Hi Everyone, I'm hoping someone can help me, my mum has APS too and we have just got back from A&E. We went there as the GP had diagnosed my mum earlier as...

Hi Everyone, I'm hoping someone can help me, my mum has APS too and we have jus...

EllaRuby

•10 years ago

17 Replies

Research into dementia

Would be nice if they discussed Hughes syndrome as well. I sent an email to the local paper yesterday nothing back yet! An opportunity missed

Would be nice if they discussed Hughes syndrome as well. I sent an email to the ...

daisyd

•10 years ago

6 Replies

Hi been reffered to a haematologist by my rheumatologist ,ive got polyglandular auto immune failure.Rhuematologist suspects APS,hughes .

I've type 1 diabetes ,addisons disease,Large vessel vasculitis .Giant cell artiritis and pmr.also vitiligo .My rheumatologist suspected aps a few months ago...

I've type 1 diabetes ,addisons disease,Large vessel vasculitis .Giant cell artir...

mickt

•10 years ago

7 Replies

Is it possible to have APS from being a child and not having it diagnosed?

From being approx 18 months old I suffered from Epilepsy this continued undiagnosed for 11 years growing up I was always ill, from the Age of 18 I started...

From being approx 18 months old I suffered from Epilepsy this continued undiagno...

bevjane74

•10 years ago

3 Replies

Meeting in Staffordshire / Derbyshire is now postponed.

The meeting in Staffordshire / Derbyshire was on the 20th December at 6:30, It was at the Stanhope Arms, the address is: 82 Ashby Road East, Burton-on-Trent,...

The meeting in Staffordshire / Derbyshire was on the 20th December at 6:30, It w...

Suzypawz

•10 years ago

6 Replies

Why do my bruises change color?

I know this might be a silly question but it is bothering me. I don't metabolize coumadin (Warfarin) so I take an Imitrex injection daily. The other morning...

I know this might be a silly question but it is bothering me. I don't metaboliz...

Hidden

•10 years ago

3 Replies

Coming off Clexane/Finding a good doctor

So after much MUCH to-ing, fro-ing and indecision over very high positive APL blood test results (interspersed with normal results) I was finally put on a...

So after much MUCH to-ing, fro-ing and indecision over very high positive APL bl...

Fairypies

•10 years ago

2 Replies

hi all I seem to be tired all the time could this be related to my thyroid or is there anything I can take 2 ease it

i also have pain all over every day seems a struggle..... im only 28 and constantly tired n drained....I also feel so short of breath and when I breathe in my...

i also have pain all over every day seems a struggle..... im only 28 and constan...

rach1081985

•10 years ago

2 Replies

Extreme Tiredness

My wife (whose username I am posting under) is having issues with extreme tiredness. She is getting to the point now where she is unable to stay awake for more...

My wife (whose username I am posting under) is having issues with extreme tiredn...

lornaeloise

•10 years ago

13 Replies

Is being diagnosed with lupus anticoagulant the same as ALS/Hughes?

I was recently diagnosed with lupus anticoagulant (my doc's wording), after three positive tests and a blood clot (which started the whole thing). I've had a...

I was recently diagnosed with lupus anticoagulant (my doc's wording), after thre...

Honey-thick

•10 years ago

7 Replies

Has anyone heard of neurological function disorder?

Iam really upset as I thought finally I was getting somewhere with answers to all these symptoms and when days I cant walk, cant function, cant speak, cant co...

Iam really upset as I thought finally I was getting somewhere with answers to al...

Tonkawoman69

•10 years ago

6 Replies

Clexane and lumps

This is for anyone on Clexane. I inject twice a day and am sometimes left with large painful lumps that usually bruise. I do apply arnica cream which does help...

This is for anyone on Clexane. I inject twice a day and am sometimes left with l...

margaretjo

•10 years ago

8 Replies

Warfarin vs Heparin/Fragmin 10,000 units

Hi Everyone, Really hoping someone can help. I was started on Fragmin for a trial to see if symptoms improved. They have, I would say around 30 percent but...

Hi Everyone, Really hoping someone can help. I was started on Fragmin for a tri...

EllaRuby

•10 years ago

11 Replies

Has anyone else experienced blood vessels bursting on finger tips?

jackjack2

•10 years ago

5 Replies

Recently Diagnoised with Primary Antiphospholipid Antibody Syndrome in the US, looking for others.

Following a miscarriage in May, I began developing silent migraines (long time migraine sufferer), splinter hemorrhages, fainting spells, transient numbness in...

Following a miscarriage in May, I began developing silent migraines (long time m...

dotnikdavis

•10 years ago

51 Replies

Just seen consultant haematologist suggests changing from warfarin to low molecular heparin . Anybody care to share their experiences?

I have APS plus reduced activated protein C resistance (Leiden v), target INR level 3.5 but very unstable

I have APS plus reduced activated protein C resistance (Leiden v), target INR le...

BlueJT

•10 years ago

20 Replies

Finally my own living accommodations-

Since my Mary passed on May 12 th of this year i have a place to call home , Casey and I have been battling the housing fight ,after a couple of bumps in...

Since my Mary passed on May 12 th of this year i have a place to call home , ...

jetjetjet

•10 years ago

17 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for December 2013

Wishing you all the best for 2014

I hope everybody is having a lovely Christmas break, and is waiting for a good New Year to roll on in.

Happy holidays everyone. I am visiting my brother in France and I suspect that he has Hughes/Sjogrens as I do.

Hi, quick question. Does anyone livedo when their hands are hanging by their sides?

I'm on 60 mg Lovenox injection twice daily. And coumadin 7.5mg once day. My dr is discontinue my shots tomorrow and dropping my coumadin t

New to this site

Can aps cause dry skin & loss of pigmentation?

Does anyone know if SLE can cause kidney cists?

Warfarin and tinzaparin injections

Hi all Does anyone have the old downloadable leaflets on hughes -cant find these on the new site -and I dont want to have to always direct

Hi.Can anyone tell me the name of the pill that seems to help with the sleeping too much problem for APS sufferers?

How soon are you notified if there's a problem after ct venography.

Second scan!

DVT?

Research into dementia

Hi been reffered to a haematologist by my rheumatologist ,ive got polyglandular auto immune failure.Rhuematologist suspects APS,hughes .

Is it possible to have APS from being a child and not having it diagnosed?

Meeting in Staffordshire / Derbyshire is now postponed.

Why do my bruises change color?

Coming off Clexane/Finding a good doctor

hi all I seem to be tired all the time could this be related to my thyroid or is there anything I can take 2 ease it

Extreme Tiredness

Is being diagnosed with lupus anticoagulant the same as ALS/Hughes?

Has anyone heard of neurological function disorder?

Clexane and lumps

Warfarin vs Heparin/Fragmin 10,000 units

Has anyone else experienced blood vessels bursting on finger tips?

Recently Diagnoised with Primary Antiphospholipid Antibody Syndrome in the US, looking for others.

Just seen consultant haematologist suggests changing from warfarin to low molecular heparin . Anybody care to share their experiences?

Finally my own living accommodations-

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