Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,354 members • 10,542 posts

All posts for June 2023

Can aps cause dystonia?

Just wondering if anyone has any experience of dystonia with aps. Admitted to hospital a few days ago with what I thought was seizures but now told are not...

Just wondering if anyone has any experience of dystonia with aps. Admitted to ho...

•10 months ago

Desperately trying to get back to within therapeutic level

I have been struggling to get back to my therapeutic level of 3-4 for the past 3 months, I self test at home and send my results weekly to my GP surgery. Each...

I have been struggling to get back to my therapeutic level of 3-4 for the past 3...

•10 months ago

Painting my APS story

Please feel free to listen to the livestream I did last night and give it a thumbs up on the like button ....

Please feel free to listen to the livestream I did last night and give it a thum...

•10 months ago

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Varicose Veins

I've developed varicose veins just below my knee on one leg. I've had some permanent bruising on the same leg that the consultant says not to worry about for...

I've developed varicose veins just below my knee on one leg. I've had some perma...

•10 months ago

Any advice before going in for an op with aps?

I'm going in for an op tomorrow on my ear and I'm nervous because of my diagnosis with aps. Anything I should know I should or shouldn't be doing? I'm not...

I'm going in for an op tomorrow on my ear and I'm nervous because of my diagnosi...

•10 months ago

Good News!

After a week waiting in various Specialist's rooms-I have good news. Cardio has cleared me and said there are only minor changes in heart valve and not enough...

After a week waiting in various Specialist's rooms-I have good news. Cardio has...

•11 months ago

Thrombocytopenia?

I have APS, Sjogren's, hypothyroidism and a host of other complaints. One of these is easy bruising and bleeding. So much so that I can no longer play with...

I have APS, Sjogren's, hypothyroidism and a host of other complaints. One of th...

•11 months ago

FONDAPARINUX

Greetings, I have been cleared for a hip surgery , after testing positive twice for aps antibody, but I remain asymptomatic. The last surgery I had, I used...

Greetings, I have been cleared for a hip surgery , after testing positive twice ...

•11 months ago

Ooopppss!!

I have been helping with remodeling our 3 bathrooms. I accidentally dropped a 3 foot piece of moulding on the top of my foot. It hurt but I could still walk...

I have been helping with remodeling our 3 bathrooms. I accidentally dropped a 3 ...

•11 months ago

asymptomatic APS?

Hi, I was diagnosed with APS in 2020 prior to a surgery as an incidental finding. I am going in for a hip replacement sooon, and they repeated the tests and...

Hi, I was diagnosed with APS in 2020 prior to a surgery as an incidental finding...

•11 months ago