Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,442 members•10,641 posts

All posts for January 2018

One Step At A Time!

The more posts I read the more I realise this is such an awful illness. It hides, it jumps up from no where and screams in our faces, it can be different all...

The more posts I read the more I realise this is such an awful illness. It hide...

WendyWoo50

•7 years ago

46 Replies

One step forward two back

This year hasn’t started off great . First bad palpitations and breathlessness but all test came back fine . Only problem with it Is my GP won’t send me for a...

This year hasn’t started off great . First bad palpitations and breathlessness b...

amy1808

•7 years ago

32 Replies

Round and round

Well I met up with my Rheumatologist on Thursday, informing him that I had followed his advice and come off Methotrexate and since doing so felt terrible. He...

Well I met up with my Rheumatologist on Thursday, informing him that I had follo...

LesJames

•7 years ago

9 Replies

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I understand that APS can cause tiredness but has anyone found anything that helps?

My husband has had iron tests and put on iron tablets as surgery risky with being on warfarin but still the extreme tiredness is now really effecting his...

My husband has had iron tests and put on iron tablets as surgery risky with bein...

Vespa1

•7 years ago

21 Replies

Professor Graham Hughes' Blog January 2018

BLOG : January 2018 January 2018 is proving a dark, rather depressing start to the year. A number of our team have been hit by the ‘flu’...

BLOG : January 2018 January 2018 is proving a dark, rather depressing start to ...

MaryF

Administrator•7 years ago

9 Replies

Kelley and Ryan This morning

Toni Braxton Said she has Lupus and Kelley knew it is an auto immune system blood problem !! to me is describing APS with the clotting problem . Effects her...

Toni Braxton Said she has Lupus and Kelley knew it is an auto immune system bl...

jetjetjet

•7 years ago

6 Replies

Can you clot even if taking Rivaroxabin daily?

Hi, Has anybody out there ever had a clot whilst taking rivaroxabin? My haematologist assures me I cannot clot when on this drug but I believe that last week I...

Hi, Has anybody out there ever had a clot whilst taking rivaroxabin? My haematol...

Clotia

•7 years ago

29 Replies

Update and Raw Spinach Question ;D)

Hello everyone! I am so happy to say that I finally found a hematologist near me that works with APS! He looked at my past 3 labs that were taken 3 months...

Hello everyone! I am so happy to say that I finally found a hematologist near me...

Tyler3

•7 years ago

17 Replies

Has anyone seen Professor Patrick Gordon

Hi Has anyone seen Professor Patrick Gordon at the London Bridge Hospital. If so was he helpful, does he listen, etc.... Designer16

Hi Has anyone seen Professor Patrick Gordon at the London Bridge Hospital. If s...

designer16

•7 years ago

1 Reply

Medication options

For the past 9 months I have been taking Coumadin from the UK because I cannot tolerate the US brands do to the fillers. I no longer can get it. Prof Hughes...

For the past 9 months I have been taking Coumadin from the UK because I cannot t...

designer16

•7 years ago

2 Replies

Needing help

Hi everyone I feel like I only ever come on here when times are hard and I need support. Brief overview 4 years ago was diagnosed with aps after collapsing....

Hi everyone I feel like I only ever come on here when times are hard and I need...

Kittybaker

•7 years ago

13 Replies

Summary from Kings Hospital

I've had my appointment at Kings re my low heart rate. They were fantastic!!! I've to have loads of tests to cross other things off the list but the current...

I've had my appointment at Kings re my low heart rate. They were fantastic!!! I...

WendyWoo50

•7 years ago

22 Replies

Xarelto compatible with HRT?

Rivaroxabin and HRT Dear All, Does anybody know if xarelto/Rivaroxabin and HRT are compatible? Anybody taking both of these medications due to the menopause...

Rivaroxabin and HRT Dear All, Does anybody know if xarelto/Rivaroxabin and HRT a...

Clotia

•7 years ago

1 Reply

Continuous swollen leg

One very swollen leg , and foot, hospital says it is due to being old. I have LA and no specialist. Leg has been like this for one and a half weeks. Any...

One very swollen leg , and foot, hospital says it is due to being old. I have LA...

Salmonious

•7 years ago

13 Replies

Flu jab - Yes or No

Hi everyone ! I've read different views on here in the past of having a flu jab. I've been wondering about the current flu situation and whether I should have...

Hi everyone ! I've read different views on here in the past of having a flu jab....

janekins

•7 years ago

20 Replies

Heparin to Warfarin Bridging

Hi, I recently came out of surgery and was given heparin injections (came off warfarin in advance of the surgery). I am now being bridged back to warfarin....

Hi, I recently came out of surgery and was given heparin injections (came off wa...

1818hst

•7 years ago

7 Replies

For all those who are curious about my Functional Med siuccess story:

check out this site: www.brokenbrain.com Next week starts a live docu series regarding the basic precept of you are what you eat, I know that nearly all of...

check out this site: www.brokenbrain.com Next week starts a live docu series r...

GinaD

•7 years ago

18 Replies

TEVA vs Zentiva?

My new CCG either won't or can't supply Zentiva brand Hydroxycholoroquine Sulphate. Have people found that the TEVA brand is generally OK? Thanks.

My new CCG either won't or can't supply Zentiva brand Hydroxycholoroquine Sulpha...

Coppernob

•7 years ago

5 Replies

Recurrent miscarriages

Hi my name is Lisa. I am just going through my 4th miscarriage in the last 13 months. I had one positive blood test for lupus anticoagulant antibodies before...

Hi my name is Lisa. I am just going through my 4th miscarriage in the last 13 mo...

Lisa1702

•7 years ago

10 Replies

Kidneys/Adrenal Glands

I go for a Unitary tract ultrasound in the morning, I have had pain in my bladder/Kidney area for some time. The pain is only when the are is knocked or...

I go for a Unitary tract ultrasound in the morning, I have had pain in my bladde...

LesJames

•7 years ago

1 Reply

My daughter's GP still insists that her APS has gone.

Hi all, My daughter was diagnosed with APS in 2002 and when she had my first grandchild in 2010 they put her on fragmin throughout pregnancy, all went well...

Hi all, My daughter was diagnosed with APS in 2002 and when she had my first gra...

Teanna

•7 years ago

6 Replies

Crazy INR's persists

Well last month was the month i would love to forget -Casey being so sick as well as myself . Lost 14 pounds with out even trying, last week and a half...

Well last month was the month i would love to forget -Casey being so sick as ...

jetjetjet

•7 years ago

7 Replies

Was tested positive for antiphospholipid antibodies in my Blood

Hi so I was supposed to get sinus surgery and during the pre op they found that I had antiphospholipid antibodies. I am 38 years old and have never had any...

Hi so I was supposed to get sinus surgery and during the pre op they found that ...

leamercedes22

•7 years ago

19 Replies

A Request From My GP For London Admin, Please, Regarding Specific Levels : Vitamins / Thyroid

Ladies, here’s looking at you. My GP in Kerrville, has asked me to ask you for the specific levels of The various vitamins you ask us to keep an eye on. This...

Ladies, here’s looking at you. My GP in Kerrville, has asked me to ask you for t...

KellyInTexas

Administrator•7 years ago

19 Replies

Obstetric APS - anyone?

Hi everyone, I have recently been diagnosed with APS after recurrent miscarriages. Would love to hear from anyone with similar experience and what they have...

Hi everyone, I have recently been diagnosed with APS after recurrent miscarriage...

wlnz

•7 years ago

11 Replies

Tea

Hi. Are we ok to have peppermint tea ?

amy1808

•7 years ago

7 Replies

Am I cured?

I tested positive for LA in 2007 after I had a stroke in 2006. Since then I haven't had any clots and I have two negative tests recently. So does this mean I...

I tested positive for LA in 2007 after I had a stroke in 2006. Since then I have...

JOHNN

•7 years ago

6 Replies

Chromogenic Factor X Assay ( CFX) interpretation ( conversion from traditional vein value INR)

I have stared calling the CFX value ( which is a percentage) and “ adjusted Traditional Vein value”. This is how you adjust it , factoring in the CFX value:

I have stared calling the CFX value ( which is a percentage) and “ adjusted Trad...

KellyInTexas

Administrator•7 years ago

10 Replies

CFX ( chromogenic Factor X) Assay

*I’m including my results on a few draws compared in IV vein value draws, as well as coagucheck Finger prick values. This , my hematologist, confirms I’m...

*I’m including my results on a few draws compared in IV vein value draws, as wel...

KellyInTexas

Administrator•7 years ago

5 Replies

Hello all! I am wondering if anyone is having severe foot pain? If so do u know what is causing it?

I have been waking up at night with sever pain on the bottom of my feet especially the heal. I have no idea why I do not spend a lot of time on my feet and...

I have been waking up at night with sever pain on the bottom of my feet especial...

SoulRebel-APS

•7 years ago

15 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for January 2018

One Step At A Time!

One step forward two back

Round and round

I understand that APS can cause tiredness but has anyone found anything that helps?

Professor Graham Hughes' Blog January 2018

Kelley and Ryan This morning

Can you clot even if taking Rivaroxabin daily?

Update and Raw Spinach Question ;D)

Has anyone seen Professor Patrick Gordon

Medication options

Needing help

Summary from Kings Hospital

Xarelto compatible with HRT?

Continuous swollen leg

Flu jab - Yes or No

Heparin to Warfarin Bridging

For all those who are curious about my Functional Med siuccess story:

TEVA vs Zentiva?

Recurrent miscarriages

Kidneys/Adrenal Glands

My daughter's GP still insists that her APS has gone.

Crazy INR's persists

Was tested positive for antiphospholipid antibodies in my Blood

A Request From My GP For London Admin, Please, Regarding Specific Levels : Vitamins / Thyroid

Obstetric APS - anyone?

Tea

Am I cured?

Chromogenic Factor X Assay ( CFX) interpretation ( conversion from traditional vein value INR)

CFX ( chromogenic Factor X) Assay

Hello all! I am wondering if anyone is having severe foot pain? If so do u know what is causing it?

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