Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for February 2019

Strange lesion on lower leg

I have a lesion on my leg. I normally have petechiae but this is different. It has not changed in one week. It does not itch, not painful and does not...

I have a lesion on my leg. I normally have petechiae but this is different. It...

Raw57

•5 years ago

27 Replies

GP reluctant to refer.

Hi everybody I was hoping I could get some other APS sufferers views on this. After much research I convinced my GP to run the APS antibody tests. I came back...

Hi everybody I was hoping I could get some other APS sufferers views on this. Af...

Newcastlelad

•5 years ago

24 Replies

Amitriptyline for migraines in the body??

Hi, I've been assumed by a neurologist that I have migraines in the left side of body, symptoms include pins and needles, weakfeeling in leg and arm, numbness...

Hi, I've been assumed by a neurologist that I have migraines in the left side of...

Theosmum

•5 years ago

11 Replies

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Update on my appointment with Haematologist

To recap, this was my original thread. https://healthunlocked.com/hughes-syndrome/posts/140022450/transitioning-from-dalteparin-to-rivaroxaban So today I had...

To recap, this was my original thread. https://healthunlocked.com/hughes-syndro...

LupusKaren

•5 years ago

6 Replies

Shooting pains

Hi guys , my INR has been below range for a few weeks now . They upped my warfarin but it still is being a pain . I’m starting to get shooting pains in my arms...

Hi guys , my INR has been below range for a few weeks now . They upped my warfar...

amy1808

•5 years ago

21 Replies

I have just been diagnosed with Pyoderma Gangranosum which has given me leg ulcers on my ankle. Has anyone else been diagnosed with this?

I have had APS for around 45 years and been diagnosed for around 35 years. I have had a number of clots, DVTs and TIAs also haemolytic Anaemia amongst other...

I have had APS for around 45 years and been diagnosed for around 35 years. I hav...

Loobylooloo

•5 years ago

3 Replies

Who should i be seeing in the UK?

Hi, Im in the Uk. was told I had lupus anticoagulant after having a clot on my brain (and a DVT whilst on warfarin) My neuro rehab told me in 2018. My GP...

Hi, Im in the Uk. was told I had lupus anticoagulant after having a clot on my b...

debiann

•5 years ago

15 Replies

Behcet's

Does anyone have leg ulcers with behcet's, thanks

Scandal

•5 years ago

3 Replies

Checking all avenues regarding diagnosis

As you know often when people arrive on this forum, or come back with new problems, we do as admins often advise, that individual if they can possibly afford...

As you know often when people arrive on this forum, or come back with new proble...

MaryF

Administrator•5 years ago

5 Replies

Headache

I’ve had this headache since thanksgiving and idk if it’s cause of the car accident I got into I got a X-ray & Ct Scan it came out good but idk kinda worried

I’ve had this headache since thanksgiving and idk if it’s cause of the car accid...

Josephd09

•5 years ago

2 Replies

Update on Migraine

Hi it's been a long 3 weeks with a migraine and sudden onset of very hi blood pressure! I wound up going to hospital wher I use to work! I was lucky in and...

Hi it's been a long 3 weeks with a migraine and sudden onset of very hi blood pr...

Debbweb01

•5 years ago

8 Replies

Not feeling well

Woke up this morning headace ,left arm sore and weak left sholder blad hurts also. Mild chest pains

Woke up this morning headace ,left arm sore and weak left sholder blad hurts als...

Tragongrandma

•5 years ago

7 Replies

3 lots of APS results GP doesn't understand them - pls help.

Hi everyone, I've been tested for APS since August 2018. My symptoms scream of APS. After finally getting 3 lots of results 12 weeks apart I'm at a dead end....

Hi everyone, I've been tested for APS since August 2018. My symptoms scream of A...

Mirandarr

•5 years ago

11 Replies

Appointment

I recently had an appointment in st Thomas hospital. The doctor told me because I haven't had a clot I only have the anti bodies and not the syndrome. Blamed...

I recently had an appointment in st Thomas hospital. The doctor told me because ...

Ash0507

•5 years ago

63 Replies

Bit of waffle

Just treading water waiting for another set of PET scans and psychometry - see if any change. Bradycardia - autonomic unit at National hospital have referred...

Just treading water waiting for another set of PET scans and psychometry - see i...

Fusch

•5 years ago

2 Replies

5 years on !

Hello, I had issues that started 5 years ago, I did post on here then. In brief GP thought I may have MS Symptoms- balance issues, extreme fatigue, pins and...

Hello, I had issues that started 5 years ago, I did post on here then. In brief...

bathouse

•5 years ago

6 Replies

Colonoscopy Question

My 2nd request of an opinion for the day. Please forgive me! I’m due to have a Colonoscopy in the very close weeks. The Gastroenterologist wants to bridge me 5...

My 2nd request of an opinion for the day. Please forgive me! I’m due to have a C...

GirlfromTennessee

•5 years ago

26 Replies

Blood Thinners

I currently take Warfarin, my dose is 4mg daily this keeps my INR around 2.5-2.8. My question is... now I understand that Xarelto now has an antidote. I Do Not...

I currently take Warfarin, my dose is 4mg daily this keeps my INR around 2.5-2.8...

GirlfromTennessee

•5 years ago

19 Replies

Lost...

I spoke to my specialist yesterday because i have a very bad infection and this is the 2 one this year. I wanted to know.. is our immunesystem weaker than...

I spoke to my specialist yesterday because i have a very bad infection and this ...

murphylotte

•5 years ago

12 Replies

Inr Home Machine?

I understand that there are machines that can be used at home to test inr? If so, what would you recommend? I’m in the US and hubby has aps.

I understand that there are machines that can be used at home to test inr? If so...

Hidden

•5 years ago

9 Replies

High Blood Pressure Now

One thing I gota say is my BP thru both of my heart surgeries always perfect! Maybe once or twice Borderline! My nasty doc can back from vacation and was very...

One thing I gota say is my BP thru both of my heart surgeries always perfect! Ma...

Debbweb01

•5 years ago

17 Replies

General testing beyond Hughes Syndrome/APS

Hi As you know a post written under 'pinned posts' was carefully written regarding extra Thyroid testing and B12 testing and similar. I shop around for...

Hi As you know a post written under 'pinned posts' was carefully written regar...

MaryF

Administrator•5 years ago

4 Replies

Short term memory

How’s everybody’s short term memory ? Mines dreadful 😮I get worried sometimes

amy1808

•5 years ago

10 Replies

Quick explanation please.

Good evening , I’ve just been diagnosed with lupus to go along with the rest of my problems. Could somebody please explain in stupid terms what Lupus is....

Good evening , I’ve just been diagnosed with lupus to go along with the rest of ...

davtay

•5 years ago

8 Replies

A coagucheck recall 12/2018 everyone probably know this but just in case u don’t some coagucheck strips have been recalled See link

Company Terrific Care. I’m not sure if links are allowed on the site if not look up FDA Recalls 2018. I’m not sure what areas this company covers but just...

Company Terrific Care. I’m not sure if links are allowed on the site if not look...

SoulRebel-APS

•5 years ago

2 Replies

Kelly in texas

Hi Kelly I responded to you under my pist DK if ul see it! Thank you sorry if I'm telling u like this lol... not sure if I'm allowed to

Hi Kelly I responded to you under my pist DK if ul see it! Thank you sorry if I'...

Debbweb01

•5 years ago

1 Reply

Travel insurance

Can anybody recommend a reasonable travel insurance co

amy1808

•5 years ago

13 Replies

APS specialist referral & thyroid results

Good afternoon everyone I hope you are all having a lovely weekend, It’s been 5 weeks since my last miscarriage and just over a week ago I received a letter...

Good afternoon everyone I hope you are all having a lovely weekend, It’s been 5...

Hollyhughes

•5 years ago

7 Replies

Adrenal Gland

Does anyone have any feed back in regards to possible problems with our blood problems and the gland and function or lack there of . I have been having some...

Does anyone have any feed back in regards to possible problems with our blood ...

jetjetjet

•5 years ago

4 Replies

Migraine for 10 Days

Hi everyone! Hope this finds Y'all well and happy! I'm in Sjogrens flare up for over a month! I have appointment with Rheumatologist on March 12th! She...

Hi everyone! Hope this finds Y'all well and happy! I'm in Sjogrens flare up for ...

Debbweb01

•5 years ago

17 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for February 2019

Strange lesion on lower leg

GP reluctant to refer.

Amitriptyline for migraines in the body??

Update on my appointment with Haematologist

Shooting pains

I have just been diagnosed with Pyoderma Gangranosum which has given me leg ulcers on my ankle. Has anyone else been diagnosed with this?

Who should i be seeing in the UK?

Behcet's

Checking all avenues regarding diagnosis

Headache

Update on Migraine

Not feeling well

3 lots of APS results GP doesn't understand them - pls help.

Appointment

Bit of waffle

5 years on !

Colonoscopy Question

Blood Thinners

Lost...

Inr Home Machine?

High Blood Pressure Now

General testing beyond Hughes Syndrome/APS

Short term memory

Quick explanation please.

A coagucheck recall 12/2018 everyone probably know this but just in case u don’t some coagucheck strips have been recalled See link

Kelly in texas

Travel insurance

APS specialist referral & thyroid results

Adrenal Gland

Migraine for 10 Days

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