Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for March 2024

Might be diagnosed with Antiphospholipid Syndrome (APS)

Hi I previously in January 2023 was diagnosed with PE, the past year has been difficult and long and knowing I was on blood thinners adoxaban forever as the...

Hi I previously in January 2023 was diagnosed with PE, the past year has been d...

•10 months ago

Warfarin & Tattoos

Hi everyone, since I started on warfarin I’ve not had any more tattoos, (NHS recommend not to) but wondered if anyone has experience or thoughts around having...

Hi everyone, since I started on warfarin I’ve not had any more tattoos, (NHS rec...

•10 months ago

Medsil

I had microblading 18 months ago.I stopped my riberaxaban for 2 days, I had no problem , no blood or anything. I am going for a fill in in June, don't think...

I had microblading 18 months ago.I stopped my riberaxaban for 2 days, I had no p...

•10 months ago

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Dentist asking for INR Test Results

Last week my dentist asked me for my INR test results. I'm a little suspicious and wondering if anyone else has had their dentist ask them to give them your...

Last week my dentist asked me for my INR test results. I'm a little suspicious ...

•10 months ago

microblading

I need advice on whether eyebrow microblading is safe if taking 10 mg Rivaroxiban daily. Therapist won’t do it if you are on blood thinners unless deemed safe...

I need advice on whether eyebrow microblading is safe if taking 10 mg Rivaroxiba...

•10 months ago

Hotelfanatic

Hi everyone,I'm new to this group,was diagnosed with Aps 2020 after a miscarriage in 2019 ,no children,only got pregnant once and lost the baby at seventeen...

Hi everyone,I'm new to this group,was diagnosed with Aps 2020 after a miscarriag...

•10 months ago

anyone near LBI in NJ?

I am in Barnegat/Manahawkin now

I am in Barnegat/Manahawkin now

•11 months ago

Nosebleeds

Hi, How many of you are getting regular nosebleeds that continue for an hour or so, even when INR is in range? Never had a nosebleed before; been on...

Hi, How many of you are getting regular nosebleeds that continue for an hour or...

•11 months ago

Has anyone taken Perdnisone or Prednisolone with Warfarin ?

Hello everyone, Just wondering if anyone has taken Perdnisone or Prednisolone with Warfarin ? Experienced any drug interactions ? Many thanks,...

Hello everyone, Just wondering if anyone has taken Perdnisone or Prednisolone ...

•11 months ago

Which teas w warfarin?

Can anyone tell me which tea I should not have with warfarin? I am finding different information online. Some say black tea is good. Some say it's not. I...

Can anyone tell me which tea I should not have with warfarin? I am finding diffe...

•11 months ago

Methotrexate

I would be very grateful for any information regarding any side affects, when taking Methotrexate

I would be very grateful for any information regarding any side affects, when ...

•11 months ago

health/travel insurance

hi all I hope all is well. Could anybody give me recommendations for travel insurance for abroad holidays. I have cerebral antiphospholipid syndrome. Personal...

hi all I hope all is well. Could anybody give me recommendations for travel insu...

•11 months ago

APS specialist in Australia

Hello, I’ve had APS for 8 years and wondering if anyone knows of a specialist in Australia. Doctors in Oz have an awareness of the illness but few have...

Hello, I’ve had APS for 8 years and wondering if anyone knows of a specialist in...

•11 months ago

pernicious anaemia

Hi I had the results of my intrinsic test and I have pernicious anaemia I start loading doses on Monday ,Do you think it is likely to affect my INR and if so...

Hi I had the results of my intrinsic test and I have pernicious anaemia I start ...

•11 months ago

Guide for medical practitioners and providers regarding B12 (NICE) Guidelines.

1, https://www.nice.org.uk/guidance/ng239/documents/draft-guideline 2. https://www.bmj.com/content/383/bmj-2022-071725 MaryF

1, https://www.nice.org.uk/guidance/ng239/documents/draft-guideline 2. ht...

Administrator•11 months ago

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Heart Attack at 38

Hi, I first posted on the thyroid board but was sent here to check with the knowledgeable people here. At the end of January I had a heart attack. The...

Hi, I first posted on the thyroid board but was sent here to check with the k...

DownAndDesperate

•11 months ago

Any one here with this particular ANA ?

I had just had a set of Rituximab 5 days prior, so my antibodies should have been really knocked down. My anti cardiolipin was still a bit elevated at 26 I...

I had just had a set of Rituximab 5 days prior, so my antibodies should have bee...

Administrator•11 months ago

Good Morning 🩷 new to the group....

Hello! I've just been recently diagnosed with APS after a fall down concrete stairs broke my left fibula (lower leg) January 11/24.When I was able to get the...

Hello! I've just been recently diagnosed with APS after a fall down concrete sta...

•11 months ago

Self Test at Altitude

Hi, am trekking in Nepal in May 24, and taking own self test meter to monitor INR basis diet change. Meter only works accurately up to 4,300m, but will be...

Hi, am trekking in Nepal in May 24, and taking own self test meter to monitor IN...

•11 months ago

To Kelly and all who post!!!

Thank you for continuing to make this site Responsive reliable and accurate. !! It helps so much to have reliable sources along the way Piece by piece...

Thank you for continuing to make this site Responsive reliable and accurate. ...

•11 months ago