Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for March 2016

Eating GF is fun and Healthy

Sorry Gluten Free Pancakes better photo! Sorry! They were a healthy breakfast for me! I thought I'd only eat one and so good wound up eating two! My...

Sorry Gluten Free Pancakes better photo! Sorry! They were a healthy breakfast fo...

Debbweb01

•8 years ago

5 Replies

Gluten Free can be fun if you use ur imagination!!!

Hi I waited at home with my bad aches and pains and thought got better by Tuesday!!! WRONG Ended up in hospital without a friend to speak up for me! They had...

Hi I waited at home with my bad aches and pains and thought got better by Tuesda...

Debbweb01

•8 years ago

2 Replies

Another trip to hospital

I know I am daft but I do get ahead of myself and think my Hughes is controlled and then the uncontrolable element of the beast raises its ugly head and it...

I know I am daft but I do get ahead of myself and think my Hughes is controlled ...

stillwaiting

•8 years ago

4 Replies

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What INR self testing machine is recommended and where should I get it from..?!

Yesterday I was told by the specialist at Guys and St Thomas that I need to self test 3 times a week and that I need to get my own INR machine now. He was...

Yesterday I was told by the specialist at Guys and St Thomas that I need to self...

loppylou68

•8 years ago

15 Replies

Professor Graham Hughes' March Blog 2016

There is a link to a paper in this, (I will put the actual paper underneath). Monthly Blog March 2016 Easter weekend. A warm, sunny Good Friday after three...

There is a link to a paper in this, (I will put the actual paper underneath). M...

MaryF

Administrator•8 years ago

22 Replies

High anticardiolipin AB igm then negative

Hi. I'm grateful to be able to ask a question here and hope I can get some understanding. I had a positive anticardiolipin IGM test and then 6 months later...

Hi. I'm grateful to be able to ask a question here and hope I can get some und...

Kimberlygolden

•8 years ago

7 Replies

Is it really APS

I had a stroke or TIA one month ago. After long inspection they said it is APS. My MRI shows the new clot ands another old one. From what I read about APS it...

I had a stroke or TIA one month ago. After long inspection they said it is APS. ...

azahran

•8 years ago

17 Replies

APS confirmed but GP has diagnosed lupus.(I asked for printed results)

Hi, Firstly I would like to apologise for posting and disappearing last time after you were all so lovely. I have had lots of confusion with results so I...

Hi, Firstly I would like to apologise for posting and disappearing last time aft...

Billie-Jo79

•8 years ago

16 Replies

Pain and body aches

Hi just to let u know it's been 6 hours of torturous pain! I've had these body aches that come on like intense labor that last for 2-3 hours! It's 5:30 am in...

Hi just to let u know it's been 6 hours of torturous pain! I've had these body a...

Debbweb01

•8 years ago

3 Replies

Advice please

I'm 36 and suffer with APS and fibromyalgia....I've been taken off of hydroxychloquine temporarily due to a recent blood test..(liver enzymes were a bit high)...

I'm 36 and suffer with APS and fibromyalgia....I've been taken off of hydroxychl...

Clhaire

•8 years ago

16 Replies

Body Aches~~ APS OR VIRUS???

Hi since Friday night my whole body from neck down is in spasms, including a headache at times! The spasms last 2-3 hours then disappear! The pain so bad I...

Hi since Friday night my whole body from neck down is in spasms, including a hea...

Debbweb01

•8 years ago

7 Replies

Anti coagulation and anti platelets

Hello All, I wondered if anyone knew how taking a low dose aspirin along with warfrin might help INR?

Hello All, I wondered if anyone knew how taking a low dose aspirin along with wa...

Vespa1

•8 years ago

4 Replies

Followup with the Rheumatologist

Result tests were conclusive for APS as well as a positive result for something called, "68 KD Antigen (HSP70)," which is probably the root cause of the...

Result tests were conclusive for APS as well as a positive result for something ...

JossMiller

•8 years ago

4 Replies

PE with APS

Hello everyone .. Does anyone experince PE with aps infect maintaing INR b/w range of 3.5 to 4 .. Here i m unable to get wise advise ... How to control clots...

Hello everyone .. Does anyone experince PE with aps infect maintaing INR b/w ran...

Sazew

•8 years ago

9 Replies

Hair dye sensitivity

Hello all. The last couple of times I've dyed my hair I've ended up with a lumpy and terribly itchy scalp! I think it may be more to do with the lupus than...

Hello all. The last couple of times I've dyed my hair I've ended up with a lumpy...

minnime63

•8 years ago

11 Replies

A question about Thyroid?

Hi everyone. I know that some of you have suggested in the past that I have my thyroid checked. Over the past few months my condition has been stable, the...

Hi everyone. I know that some of you have suggested in the past that I have my t...

Kittybaker

•8 years ago

10 Replies

Hi confused and deeply depressed!

Wow my left eye is getting bad fast! Is there any meds to stop this fast progression??? I'm in catch 22 situation! In USA if ur left eye affected they take ur...

Wow my left eye is getting bad fast! Is there any meds to stop this fast progres...

Debbweb01

•8 years ago

6 Replies

Need to know how to help a friend & Sojerns!

Hi I first want to wish all of my friends across the Pond a very Happy Easter Holiday! God Bless Y'all and keep you healthy and save from harm! May he hold you...

Hi I first want to wish all of my friends across the Pond a very Happy Easter Ho...

Debbweb01

•8 years ago

6 Replies

Confused!!

I was diagnosed with aps 6 years ago through my miscarriage clinic following miscarriage and a still birth. I was told treatment of aspirin and fragmin...

I was diagnosed with aps 6 years ago through my miscarriage clinic following mis...

hibble

•8 years ago

6 Replies

PE and APS on Warfarin

So I am 27 and I had bilateral PE in 2013. At the time I was on combination birth control, had driven four hours one-way and back (so 8 hours) and taken a trip...

So I am 27 and I had bilateral PE in 2013. At the time I was on combination birt...

bnestes

•8 years ago

3 Replies

Sudden downturn in health

I've had APS and Lupus for years now and it's usually pretty well managed, I take a small amount of steroids, aspirin, three different blood pressure meds and...

I've had APS and Lupus for years now and it's usually pretty well managed, I ta...

Tomcat

•8 years ago

14 Replies

chemical pregnancy and clexane dose

Hi all, this is my first post here, I had 5 chemical pregnancies and I've never had a successful pregnancy before, I have blood disorders 'sticky blood' and...

Hi all, this is my first post here, I had 5 chemical pregnancies and I've never ...

suzans

•8 years ago

17 Replies

G.P today to request testing for Hughes syndrome

Good morning 😊 I'm diagnosed with polycythaemia and fibro myalgia, but the more I read about Hughes the more I feel that this is what I have. I'm going to...

Good morning 😊 I'm diagnosed with polycythaemia and fibro myalgia, but the mo...

daisy82

•8 years ago

7 Replies

New study from The USA, antibodies in pregnancy.

Saw this today put up on the HSF Facebook page: http://www.ncbi.nlm.nih.gov/pubmed/26990620?dopt=Abstract MaryF

Saw this today put up on the HSF Facebook page: http://www.ncbi.nlm.nih.gov/pub...

MaryF

Administrator•8 years ago

1 Reply

Blood clot in brain not caught in time ..aps patient .. now awkward to walk

Hi all seeing my thuemy first time on Wed ..had blood clot in brain not caugh in time even though stood in front of proff of neurology ..told him pins n...

Hi all seeing my thuemy first time on Wed ..had blood clot in brain not caugh in...

fitzyc

•8 years ago

25 Replies

IV fluids

Hello everyone. I haven't posted in a while (diagnosed Aug 2014, full thyroid workup normal, live in S. California, state insurance so no choice in my drs.) I...

Hello everyone. I haven't posted in a while (diagnosed Aug 2014, full thyroid wo...

ehc918

•8 years ago

3 Replies

Not sure whether I should be here but think i need to be checked out x

Hi everyone, i havent had a diagnosis but i am going to see my doctor next week as i think i may need to be tested for this condition. I have had 4...

Hi everyone, i havent had a diagnosis but i am going to see my doctor next week...

parkysam

•8 years ago

4 Replies

New To Community

It was a pleasant surprise to accidentally discover this site in my search for an answer about a certain kind of head pain. I had blood clots in both lungs...

It was a pleasant surprise to accidentally discover this site in my search for a...

patriotic78

•8 years ago

9 Replies

No gallstones but thickening of the gall bladder wall

Can I have some advice, only had 1 attack of gall bladder symptoms which lasted 5 hrs , good news no gall stones found on ultra sound but gallbladder thickened...

Can I have some advice, only had 1 attack of gall bladder symptoms which lasted ...

Hidden

•8 years ago

1 Reply

Constant loud ringing in ear

My husband has a constant loud ringing in his ear and terrible headaches on the same side. He only has 15% hearing in the same ear. Hearing test performed at...

My husband has a constant loud ringing in his ear and terrible headaches on the ...

Tammysimons

•8 years ago

5 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for March 2016

Eating GF is fun and Healthy

Gluten Free can be fun if you use ur imagination!!!

Another trip to hospital

What INR self testing machine is recommended and where should I get it from..?!

Professor Graham Hughes' March Blog 2016

High anticardiolipin AB igm then negative

Is it really APS

APS confirmed but GP has diagnosed lupus.(I asked for printed results)

Pain and body aches

Advice please

Body Aches~~ APS OR VIRUS???

Anti coagulation and anti platelets

Followup with the Rheumatologist

PE with APS

Hair dye sensitivity

A question about Thyroid?

Hi confused and deeply depressed!

Need to know how to help a friend & Sojerns!

Confused!!

PE and APS on Warfarin

Sudden downturn in health

chemical pregnancy and clexane dose

G.P today to request testing for Hughes syndrome

New study from The USA, antibodies in pregnancy.

Blood clot in brain not caught in time ..aps patient .. now awkward to walk

IV fluids

Not sure whether I should be here but think i need to be checked out x

New To Community

No gallstones but thickening of the gall bladder wall

Constant loud ringing in ear

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