Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,351 members • 10,539 posts

All posts for April 2016

Dermatitis

My daughter has dermatitis on her hands and has been perscribed Eumovate Cream but when she puts it on, it makes her hands more itchy and painful. Has anyone...

My daughter has dermatitis on her hands and has been perscribed Eumovate Cream b...

heli13

•8 years ago

9 Replies

Driving and APS

Do all of you drive ?? I'm finding first thing in a morning and teatime are a no go . Feel to sick and woozy head in a morning and just plain knackered at...

Do all of you drive ?? I'm finding first thing in a morning and teatime are a no...

amy1808

•8 years ago

5 Replies

itchy sores that don't ever go away!!!

I have these itchy sores that appear on my forearms, hands, fingers, and legs. they seem to all start a little differently--some start by itching and then...

I have these itchy sores that appear on my forearms, hands, fingers, and legs. ...

boogyman

•8 years ago

11 Replies

Want to take advantage of all our features? Just log in!

Antiphospholipid syndrome

Hi, my names Sam I'm 28 and in the past year my nan, dad, uncle and cousin have all had heart attacks and strokes they found out they all had antiphospholipid...

Hi, my names Sam I'm 28 and in the past year my nan, dad, uncle and cousin have ...

Samt2016

•8 years ago

9 Replies

Confused.com

Hi all, Im a 36 yr old female from Yorkshire UK.. I'm new here and am currently watching all ur posts with interest. My neuro has referred me to a...

Hi all, Im a 36 yr old female from Yorkshire UK.. I'm new here and am currently ...

tat_lass

•8 years ago

14 Replies

Factor V Leiden also diagnosed after many blood tests.

I've previously posted about my son-in-law being struck with sudden and complete hearing loss in one ear with tinnitus. This was diagnosed as APN by a...

I've previously posted about my son-in-law being struck with sudden and complete...

teldee

•8 years ago

5 Replies

APS and suffering still with Tia's ?

Been on warafrine for 6 weeks now ,things really started to feel normal again , well as normal as they can , then bam yesterday got left side weakness but all...

Been on warafrine for 6 weeks now ,things really started to feel normal again , ...

amy1808

•8 years ago

18 Replies

From a Facebook gROUP

This Facebook Page has some very interesting articles from time to time. As I understand it you do not need a facebook account to read the content, but would...

This Facebook Page has some very interesting articles from time to time. As I un...

tim47

•8 years ago

4 Replies

From the newspapers.

1. http://www.dailymail.co.uk/health/article-3557406/Miscarriages-halved-2030-Pioneering-research-begins-try-spare-heartbreak-suffered-1-4-couples.html 2....

1. http://www.dailymail.co.uk/health/article-3557406/Miscarriages-halved-2030...

MaryF

Administrator•8 years ago

2 Replies

Any APS'ers have issues with petechiae

I've recently noticed petechiae on my lower legs and feet. Have any of you guys here experience this.....is this something else that goes along with APS and or...

I've recently noticed petechiae on my lower legs and feet. Have any of you guys ...

mylafont

•8 years ago

20 Replies

So sick I haven't eaten much in weeks

I have been severely nauseated. My stomach burns. I can't take my medication. Thankfully I had some clexane. They checked out my gallbladder. 1 at they said...

I have been severely nauseated. My stomach burns. I can't take my medication. Th...

designer16

•8 years ago

9 Replies

DVT extensive

Hi everyone, I'm new here, am currently suffering with a DVT extending from foot to pelvis, have been in hospital for 9 days and now discharged on Apixaban...

Hi everyone, I'm new here, am currently suffering with a DVT extending from foot...

Jennybreslau

•8 years ago

23 Replies

AVN anyone?

I was diagnosed with APS in 1999. Now they have found I have AVN (a vascular necrosis) in both hips - one replaced 2 yrs ago. But disease is in other one...

I was diagnosed with APS in 1999. Now they have found I have AVN (a vascular...

uscglady

•8 years ago

9 Replies

My sis got Neuropathy

My sister Nanny 23 got Neuropathy! I recently saw a post about neuropathy and my sis went to Neurolgist and didn't tell him about APS! I think my sister needs...

My sister Nanny 23 got Neuropathy! I recently saw a post about neuropathy and my...

Debbweb01

•8 years ago

5 Replies

Some action from the UN

I saw this today: http://www.theguardian.com/society/2015/oct/20/un-inquiry-uk-disability-rights-violations-cprd-welfare-cuts For those of you who have had...

I saw this today: http://www.theguardian.com/society/2015/oct/20/un-inquiry-u...

MaryF

Administrator•8 years ago

1 Reply

Severe Gastritis

Hi has anyone had gastritis from taking Eliquist & placid. I have been so sick from it. Designer 16

Hi has anyone had gastritis from taking Eliquist & placid. I have been so sick f...

designer16

•8 years ago

4 Replies

CAPS/Asherson's survivors

If there are any other people on here who have experienced Catastrophic Antiphospholipid Syndrome (CAPS), sometimes known as Asherson's Syndrome, would you be...

If there are any other people on here who have experienced Catastrophic Antiphos...

disloyalorder

•8 years ago

11 Replies

Is Hughs syndrome/Aps hereditary?, my son complains of a stinging heart sometimes!, age 9.

Its not all the time but comes in clusters and then he is fine.Should I get him tested?.Trouble is he has sensory processing problems, querie Aspergers. He...

Its not all the time but comes in clusters and then he is fine.Should I get him ...

pixie2011

•8 years ago

5 Replies

Hughs Syndrome Joint/neck pain?

Hi I was diagnosed with APS 15 years ago after multiple miscarriages. I went on to have three healthy children with lots of support, heparin (280 injections...

Hi I was diagnosed with APS 15 years ago after multiple miscarriages. I went on ...

pixie2011

•8 years ago

5 Replies

Hughes Syndrome & Breathing Difficulty

Hello, I'm just looking for a bit of advise. I've struggled with breathing difficulties all of my life, I have a severely deviated septum that's already been...

Hello, I'm just looking for a bit of advise. I've struggled with breathing diffi...

Floss_28

•8 years ago

6 Replies

Aches and pains

Does anyone else else get aches and pains in arms legs hips knees etc My specialist put me on hydrochlorquinne to help with this and also the fatigue or...

Does anyone else else get aches and pains in arms legs hips knees etc My speci...

stargazer5761

•8 years ago

9 Replies

Giving Blood

The Blood Bank called my husband and I about giving blood. We told them I had APS and the caller said that she would talk to her director and get back to...

The Blood Bank called my husband and I about giving blood. We told them I had ...

kbmis003

•8 years ago

26 Replies

A round up of useful papers and articles

1. http://www.ncbi.nlm.nih.gov/pubmed/27083494 and one via the HSF Facebook page: ...

1. http://www.ncbi.nlm.nih.gov/pubmed/27083494 and one via the HSF Facebook ...

MaryF

Administrator•8 years ago

4 Replies

APS and ear problems

Hi, I was diagnosed with APS about 18 months ago after a venous sinus thrombosis. Since this I have been told I have sjogrens although I tested negative I have...

Hi, I was diagnosed with APS about 18 months ago after a venous sinus thrombosis...

Christine7

•8 years ago

6 Replies

Is There Any New Research

Hi. I am new here. I have Primary APS and I want to learn more about the advances that have been made with this research. I have had three TIAs and 3 heart...

Hi. I am new here. I have Primary APS and I want to learn more about the advanc...

JanetL

•8 years ago

5 Replies

Mottling, red and white under skin

Hi, I introduced myself last night. I'm under investigation for lupus and other things and included on the blood tests was APS and vasculitis amongst many...

Hi, I introduced myself last night. I'm under investigation for lupus and othe...

Poppyfields65

•8 years ago

22 Replies

Under investigation for autoimmune conditions. Years of suffering

Hi. I've just had a load of blood tests done and I noticed one of them was Antiphospholipid Antibodies so I thought I would introduce myself and see what you...

Hi. I've just had a load of blood tests done and I noticed one of them was Anti...

Poppyfields65

•8 years ago

23 Replies

Headaches and APS

Hi friends! Hope all of you are coping and trying to b happy! I am even tho I'm waking up everyday with my migraines! I was without them for past ten years!...

Hi friends! Hope all of you are coping and trying to b happy! I am even tho I'm ...

Debbweb01

•8 years ago

2 Replies

New diagnostic criteria?

Hi, I wonder if anyone can help please? I was diagnosed with APS, approx 9 years back, on signs and symptoms, medical history and blood results, though my...

Hi, I wonder if anyone can help please? I was diagnosed with APS, approx 9 yea...

Ally7

•8 years ago

11 Replies

Needing answers re: Hughes Syndrome

I have Hughes syndrome also called APS I have no balance I black out and shake can't find a Dr that knows what to do trying to go to mayo but I live in AR and...

I have Hughes syndrome also called APS I have no balance I black out and shake c...

thumbtac

•8 years ago

36 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for April 2016

Dermatitis

Driving and APS

itchy sores that don't ever go away!!!

Antiphospholipid syndrome

Confused.com

Factor V Leiden also diagnosed after many blood tests.

APS and suffering still with Tia's ?

From a Facebook gROUP

From the newspapers.

Any APS'ers have issues with petechiae

So sick I haven't eaten much in weeks

DVT extensive

AVN anyone?

My sis got Neuropathy

Some action from the UN

Severe Gastritis

CAPS/Asherson's survivors

Is Hughs syndrome/Aps hereditary?, my son complains of a stinging heart sometimes!, age 9.

Hughs Syndrome Joint/neck pain?

Hughes Syndrome & Breathing Difficulty

Aches and pains

Giving Blood

A round up of useful papers and articles

APS and ear problems

Is There Any New Research

Mottling, red and white under skin

Under investigation for autoimmune conditions. Years of suffering

Headaches and APS

New diagnostic criteria?

Needing answers re: Hughes Syndrome

Search posts

Pinned Posts

Latest poll

Out of Hours GP provision - how has your's served you in an emergency?

Topics

Archive