Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,354 members • 10,542 posts

All posts for February 2014

I have APS; using Androgel for 30 days. Last weekend I had chest tightness and a bad headache for at least 24 hours. Concerned:clotting

I'm concerned that the Androgel caused a clot or heart issue - anyone with similar experience using Androgel or other HRT who has APS? Short of sending me to...

I'm concerned that the Androgel caused a clot or heart issue - anyone with simil...

apsdenver

•10 years ago

4 Replies

Noisy in my ears and feel heavy

I feel not com portable with my ears it has been 3 months now that its noisy and like full of air Ive been to ent and they found nothing I research on the...

I feel not com portable with my ears it has been 3 months now that its noisy and...

flower18

•10 years ago

6 Replies

Doctor retiring ..now what???

my APS doctor is about to retire.. He wants me to have a nurologist to go to...I asked what other APS doctor is available and he doesn't believe anyone other...

my APS doctor is about to retire.. He wants me to have a nurologist to go to...I...

happee1

•10 years ago

8 Replies

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Distressing call from rheumatology clinic

I had a very distressing call from a doctor at the clinic this morning. I had rung the help line to get some advice about my vertigo, tinnitus, and INR...

I had a very distressing call from a doctor at the clinic this morning. I had ru...

JanBad

•10 years ago

13 Replies

I have recently been diagnosed with aps after 6 miscarraiges, has anyone had a successful pregnancy after this?

I fear at the age of 42 im running out of time and scared I will miscarry again

sarakat

•10 years ago

24 Replies

Hughes Syndrome

After diagnosis with APLS I was put on Plavix. I felt a lot better for a number of years and my very bad headaches went. Now I have the headaches back and i am...

After diagnosis with APLS I was put on Plavix. I felt a lot better for a number ...

NialSeamusDubhglas

•10 years ago

15 Replies

When to come off Clexane injection?

I posted a question a few days ago about my INR dropping to 1.3. My GP increased my warfarin dose to 11mg and gave me a Clexane injection and I have had to...

I posted a question a few days ago about my INR dropping to 1.3. My GP increased...

janekins

•10 years ago

3 Replies

Opinions Required - APS screening - please read

I have been thinking for some time about this, and I really think it makes sense. But I think all females should be screened for APS before they are put on the...

I have been thinking for some time about this, and I really think it makes sense...

Louise_Davies

•10 years ago

7 Replies

Radio Interview

VIA HSF Charity page, You can now listen to Ryan and Kate Bowden's interview on BBC Radio Derby - they are 1 hour and 14 minutes into the programme. Thank...

VIA HSF Charity page, You can now listen to Ryan and Kate Bowden's interview o...

MaryF

Administrator•10 years ago

6 Replies

Government Plans to Share Patient Data-through ATOS!

Can I draw the attention of all UK members, to the governments plans to share your health data. But for a campaign by several organisations, around now, GPs...

Can I draw the attention of all UK members, to the governments plans to share yo...

tim47

•10 years ago

3 Replies

The director Harold Remis died recently of "autoimmune inflammatory vasculitis, a rare disease that involves swelling of the blood vessels"

Is this condition related to Hughes Disorder (APS)?

Hidden

•10 years ago

7 Replies

Pregnancy and cervical stitch

I am nearly 19 weeks pregnant and have been having cervical monitoring due to a lletz treatment in 2012. My cervix is down to 20mm and I need a stitch but I...

I am nearly 19 weeks pregnant and have been having cervical monitoring due to a ...

starships

•10 years ago

5 Replies

Ouch! Chilblains! Top tips please people!!

OK, have struggled with Reyanuds for a few years now. A couple of weeks ago I developed chilblains on my toes on my left foot (ouch). Yesterday it was...

OK, have struggled with Reyanuds for a few years now. A couple of weeks ago I de...

Bonnie39

•10 years ago

5 Replies

Pregnancy, APS, medications- how can you manage them all?

I was diagnosed with APS around 12 years ago, age 20, following a DVT and subsequent clot in my arm. Since then I have been a relatively stable warfarin...

I was diagnosed with APS around 12 years ago, age 20, following a DVT and subseq...

LadyWest

•10 years ago

4 Replies

Do those of you who take Warfarin find a difference in your headaches if your INR is under 3 vs between 3-4?

Rufusandfrankie

•10 years ago

5 Replies

I have numbness in my index finger and big toes. Is this common with APS? I have varying symptoms for APS,Lupus and test positive for RA

Although I have no joint pain symptoms. I have had a DVT and am on Warfarin. I also take Plaquenil to prevent RA symptoms I have migraines with strong family...

Although I have no joint pain symptoms. I have had a DVT and am on Warfarin. I ...

Rufusandfrankie

•10 years ago

10 Replies

Is St Thomas' discharging patients a lot at the moment?

Hi, under a consultant at the centre. Positive bloods and pre-diagnosed APS and ?SLE. Bloods say definately APS and possible SLE, symptoms suggest both. And...

Hi, under a consultant at the centre. Positive bloods and pre-diagnosed APS and ...

Bonnie39

•10 years ago

18 Replies

I have numb feet. Is this linked to my APS and Lupus even though both reasonably well controlled? I currently also have an itchy rash.

KerryA

•10 years ago

2 Replies

Is there anything that triggers "Catastrophic Antiphospholipid Syndrome"?

Lhrlovesmar

•10 years ago

2 Replies

unstable inr. started mini pill 1st jan,my inr shot up tp 6!!then dropped to 2.4,stopped minimill after 3 wks and still struggling.

inr on friday was 6.5.tested yesterday,after missing 2 doses,and inr is 1.7.my inr runs at 3.5-4.5 normally.anyone else experienced this please??starting to...

inr on friday was 6.5.tested yesterday,after missing 2 doses,and inr is 1.7.my ...

uniqueflo

•10 years ago

7 Replies

Magazine article......

Hi all - the article will be in pick me up magazine 13th March,then national and local papers after that x

Hi all - the article will be in pick me up magazine 13th March,then national and...

emmaj

•10 years ago

11 Replies

I have been itching all over and when is scratch a red dot appears. My daughter has the same thing. We both have several red dots on arms,

Klw1973

•10 years ago

3 Replies

Burning vein on top of foot?

I woke up a few nights ago with a burning sensation on the top of my foot. I got up and went to look at it in the bathroom and noticed the vein on top of my...

I woke up a few nights ago with a burning sensation on the top of my foot. I g...

thestellas54jc

•10 years ago

5 Replies

i keep getting really painful aches in the sides of my head. it lasts for up to 10-15 seconds.. i don't know what to do... help? thanks.

lisajane_x

•10 years ago

4 Replies

Brain fog

If this were meteorological fog I would now be a severe weather warning :) But joking apart, it is now becoming a bit scary. Other people are noticing which is...

If this were meteorological fog I would now be a severe weather warning :) But j...

stillwaiting

•10 years ago

38 Replies

A blip with my inr!

Tested myself last Wednesday (there was a reason but no idea what it was!) and it was 4.7 (range 3.0 -4.0). Normally I would ring the nurse but she doesn't...

Tested myself last Wednesday (there was a reason but no idea what it was!) and i...

panda60

•10 years ago

18 Replies

Fibro Myalgia and Oxygen levels.

Doe's anybody have the video posted on here a while back of a doctor relating oxygen levels to fibro myalgia please. I have deleted it by error & wished to...

Doe's anybody have the video posted on here a while back of a doctor relating ox...

Jillymo

•10 years ago

3 Replies

Aps and gynea problems

Hi again Just wondering if anyone can help here with some general advice was diagnosed with definite aps on the weekend (at last) have read the Hughes website...

Hi again Just wondering if anyone can help here with some general advice was di...

bevjane74

•10 years ago

6 Replies

Half-marathon run. 2nd March 2014. Llanelli, Carmarthenshire. 2 Sisters & Friend running in aid of Hughes Syndrome - Mum so Proud

Hi, I am so proud of my 2 daughters - Louise & Emma, they are running for the foundation and been in training for months. Louise (above) has APS and has...

Hi, I am so proud of my 2 daughters - Louise & Emma, they are running for the fo...

KatrinaJones

•10 years ago

6 Replies

does caffeine trigger symptoms?

Bottledigger

•10 years ago

16 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for February 2014

I have APS; using Androgel for 30 days. Last weekend I had chest tightness and a bad headache for at least 24 hours. Concerned:clotting

Noisy in my ears and feel heavy

Doctor retiring ..now what???

Distressing call from rheumatology clinic

I have recently been diagnosed with aps after 6 miscarraiges, has anyone had a successful pregnancy after this?

Hughes Syndrome

When to come off Clexane injection?

Opinions Required - APS screening - please read

Radio Interview

Government Plans to Share Patient Data-through ATOS!

The director Harold Remis died recently of "autoimmune inflammatory vasculitis, a rare disease that involves swelling of the blood vessels"

Pregnancy and cervical stitch

Ouch! Chilblains! Top tips please people!!

Pregnancy, APS, medications- how can you manage them all?

Do those of you who take Warfarin find a difference in your headaches if your INR is under 3 vs between 3-4?

I have numbness in my index finger and big toes. Is this common with APS? I have varying symptoms for APS,Lupus and test positive for RA

Is St Thomas' discharging patients a lot at the moment?

I have numb feet. Is this linked to my APS and Lupus even though both reasonably well controlled? I currently also have an itchy rash.

Is there anything that triggers "Catastrophic Antiphospholipid Syndrome"?

unstable inr. started mini pill 1st jan,my inr shot up tp 6!!then dropped to 2.4,stopped minimill after 3 wks and still struggling.

Magazine article......

I have been itching all over and when is scratch a red dot appears. My daughter has the same thing. We both have several red dots on arms,

Burning vein on top of foot?

i keep getting really painful aches in the sides of my head. it lasts for up to 10-15 seconds.. i don't know what to do... help? thanks.

Brain fog

A blip with my inr!

Fibro Myalgia and Oxygen levels.

Aps and gynea problems

Half-marathon run. 2nd March 2014. Llanelli, Carmarthenshire. 2 Sisters & Friend running in aid of Hughes Syndrome - Mum so Proud

does caffeine trigger symptoms?

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