Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for February 2020

D Dim on Warfarin

Feeling very annoyed spent 5 hours in A&E last night as my left calf is larger than my right saw the triage sister she didn’t know what I had! No surprise...

Feeling very annoyed spent 5 hours in A&E last night as my left calf is larger t...

•4 years ago

A book

I thought I’d seen a book something about a Journey etc but I’ve deleted it and was interested in buying it Sorry not a lot to go on Dot

I thought I’d seen a book something about a Journey etc but I’ve deleted it and ...

•4 years ago

Feeling Really positive

Hi all, I had my appointment under Professor Hunt yesterday, I was really impressed with how lovely and helpful the whole team there were. They are reviewing...

Hi all, I had my appointment under Professor Hunt yesterday, I was really impres...

•4 years ago

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Blood test queries

Second bloods back from my GP. CRP levels raised. FBC raised. folic acid extremely low, low iron. I have been tested for pernicious anaemia and that wasn’t it....

Second bloods back from my GP. CRP levels raised. FBC raised. folic acid extreme...

•4 years ago

Odd legs

I am fairly certain that I don’t have a DVT as no swelling, no cramp like pain, no other indications either but.... My left leg has a type of numb feeling and...

I am fairly certain that I don’t have a DVT as no swelling, no cramp like pain, ...

•4 years ago

Advice

I've been reading on what to eat best for me to feel better but almost every food seems to have Vik. K, any advice?

I've been reading on what to eat best for me to feel better but almost every foo...

•4 years ago

Oxygen Therapy

Has anyone tried Oxygen Therapy for their headaches? Did it help? When your APS is active and your INR is low are your SATs low?

Has anyone tried Oxygen Therapy for their headaches? Did it help? When your APS...

•4 years ago

Heart stents

Has anyone experienced having coronary stents put in place while having APS?

Has anyone experienced having coronary stents put in place while having APS?

•4 years ago

So very sorry haven't updated

My daughter did come but is leaving today. We had a wonderful visit even though I had appointments constantly. I was transfused on Friday with 12 units of...

My daughter did come but is leaving today. We had a wonderful visit even though ...

•4 years ago

The Plant Paradox

Hi everyone I’m new here. I was diagnosed with Hughes syndrome 20 years ago after suffering multiple miscarriages. I began to take 81 mg aspirin and had two...

Hi everyone I’m new here. I was diagnosed with Hughes syndrome 20 years ago afte...

•4 years ago

Pea sized lump in calf

Anyone had pea like lumps appeared on calf? I was frightened that I had another clot or DVT. Already had a stroke too. So I dialed 111 uk. And they sent me up...

Anyone had pea like lumps appeared on calf? I was frightened that I had another...

•4 years ago

Lupus anticoagulant no longer positive.

Hi everyone a little background. I have been suffering with symptoms of auto immune disease and after pushing my GP to run the APS blood tests I had a positive...

Hi everyone a little background. I have been suffering with symptoms of auto imm...

•4 years ago

Pre menopause - HELP!

Pre menopause symptoms - I have APS, a INR range of 3-4 and am on lifelong warfarin. For the last couple of months I have been experiencing hot flushes day and...

Pre menopause symptoms - I have APS, a INR range of 3-4 and am on lifelong warfa...

•4 years ago

We got the answer, but not what anyone wants to hear.

This is going to be my last time I post here. I did spend 2weeks in the hospital. During that time my blood levels were hard to get and stay level. So many...

This is going to be my last time I post here. I did spend 2weeks in the hospital...

•4 years ago

Extreme Fatigue with APS?

I was just reading an older post about someone with APS and extreme Fatigue. I was just diagnosed with APS. Also test for Lupus which was negative. I'm on...

I was just reading an older post about someone with APS and extreme Fatigue. I w...

•4 years ago

DVT and Thrombophilia

Hi everyone! I’m new here... diagnosed with APS in 2011, alongside UCTD. Fast forward to 2018 and I was tested at the recurrent miscarriage clinic but the APS...

Hi everyone! I’m new here... diagnosed with APS in 2011, alongside UCTD. Fast fo...

•4 years ago

Advice

I have Hughes syndrome but recently just bought a vibrating plate to exercise. Do u think it would be safe to use this???

I have Hughes syndrome but recently just bought a vibrating plate to exercise. D...

•4 years ago

APS & Severe Diverticulosis? or anything similar

Has anyone experienced or come across severe Diverticulosis or anything similar in relation to APS? I was as diagnosed with APS in 2012 following series of...

Has anyone experienced or come across severe Diverticulosis or anything similar ...

•4 years ago

MTX tablet or Injection?

I have been taking Methotrexate for some considerable time. I am told that a percentage of the tablet form is not taken up by the body. To counter this some of...

I have been taking Methotrexate for some considerable time. I am told that a per...

•4 years ago

I'm a happy girl (or lucky!)

Got the results from the Epileptologist (I'm collecting quite a few "ologists" on this APS journey) and have the all clear and no new seizures on current meds....

Got the results from the Epileptologist (I'm collecting quite a few "ologists" o...

•4 years ago