Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for December 2019

Looking forward to the next decade

Hi everyone, it's been sometime since I last wrote, settled well into a nice bungalow, well supported by local council who gave me plenty time to plan my move...

Hi everyone, it's been sometime since I last wrote, settled well into a nice bun...

dawnzy

•5 years ago

2 Replies

APS and link to breast implants? Is there one?

Is there any connection between aps and breast implants? I’ve seen a couple of complicated articles stating there is a connection between silicon and immune...

Is there any connection between aps and breast implants? I’ve seen a couple of c...

JojoWash

•5 years ago

2 Replies

Heparin for APs?

Hi, I was diagnosed with APS after a stroke. I’ve been on clopidogril aspirin and mepacrine (was in hydroxichloroquine but reacted horrendously so was...

Hi, I was diagnosed with APS after a stroke. I’ve been on clopidogril aspirin ...

Skatingonthinice

•5 years ago

15 Replies

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Confused?

Hi I am positive for anticardiolipin antibodies. Been on aspirin therapy. Never had a clot that I know of. Was in a car accident in May 2017. Air bag hit my...

Hi I am positive for anticardiolipin antibodies. Been on aspirin therapy. Never ...

Nanny23

•5 years ago

14 Replies

Holiday Fun

Happy New Year to everyone! I’m going to New England for the New Year! Boston, Massachusetts Looking forward to spending time with my sister by choice! God...

Happy New Year to everyone! I’m going to New England for the New Year! Boston, M...

Debbweb01

•5 years ago

8 Replies

Micro Clots or not?

Micro clits or not ??? I hope you all had a lovely Christmas 🎄 and were as well as you can be. On the 23rd my blood suddenly dropped to 2.8 when it’s been...

Micro clits or not ??? I hope you all had a lovely Christmas 🎄 and were as well...

WendyWoo50

•5 years ago

5 Replies

Erratic INR...

Just had my INR done, it’s been really erratic lately, was 5.6 last week and then 2.5 today.....my range is 3-4 missed injections by the skin of my teeth, as...

Just had my INR done, it’s been really erratic lately, was 5.6 last week and the...

Atkins106

•5 years ago

22 Replies

Presumed antiphospholipid syndrome and thrombotic thrombocytopenic purpura: An infrequent association

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6787783/ MaryF

MaryF

Administrator•5 years ago

Be the first to reply

Merry Christmas and a happy new year everyone.

Hope all is well for everyone. Have a happy 2020. ❤️

Nanny23

•5 years ago

5 Replies

Update on itching

No relief in sight! Wish I knew what this is! Maybe a dermatologist would know! Seems my liver tests ok! My eyes face and scalp seem to get the brunt of my...

No relief in sight! Wish I knew what this is! Maybe a dermatologist would know! ...

Debbweb01

•5 years ago

9 Replies

Merry Christmas to All and to ALL a GREAT Night

Merry Christmas to all my Fellow "Sludge Bloods thru out the world . Hope you all have been behaving so Santa can stop at each and everyone of your...

Merry Christmas to all my Fellow "Sludge Bloods thru out the world . Hope yo...

jetjetjet

•5 years ago

17 Replies

Itchy

Hi Holly and all! Took ur advice and they took blood work and gave me prednisone for itch hope it works! Thanks

Hi Holly and all! Took ur advice and they took blood work and gave me prednisone...

Debbweb01

•5 years ago

20 Replies

Hamden Medical Journal - a paper from Prof Hughes

http://www.hamdanjournal.org/article.asp?issn=2227-2437;year=2018;volume=11;issue=4;spage=169;epage=174;aulast=Hughes MaryF

http://www.hamdanjournal.org/article.asp?issn=2227-2437;year=2018;volume=11;issu...

MaryF

Administrator•5 years ago

9 Replies

Body Itching

Hello Everyone and Merry Christmas and a Happy and Healthy New Year! I have been itching all over my body for days! Don’t know what’s causing this! Anybody in...

Hello Everyone and Merry Christmas and a Happy and Healthy New Year! I have been...

Debbweb01

•5 years ago

17 Replies

Just rant

Hello everyone. Merry Christmas!!! I'm have been really depressed lately. I just dont feel good. Every time I eat I get real nauseous. My bowels aren't...

Hello everyone. Merry Christmas!!! I'm have been really depressed lately. I ju...

Eriewa1

•5 years ago

10 Replies

Wishing you a very Merry Christmas

Wishing you all a very Merry Christmas, as we wind up to the big day and the New Year, I hope everybody has a very lovely and relaxing time and that health...

Wishing you all a very Merry Christmas, as we wind up to the big day and the New...

MaryF

Administrator•5 years ago

14 Replies

A great film/lecture - Antiphospholipid Syndrome (APS) in Psychiatry - Neuropsychiatric Manifestations

Antiphospholipid Syndrome (APS) in Psychiatry - Neuropsychiatric Manifestations - Dr Sanil Rege https://www.youtube.com/watch?v=RSCLMu45F30 MaryF

Antiphospholipid Syndrome (APS) in Psychiatry - Neuropsychiatric Manifestations ...

MaryF

Administrator•5 years ago

8 Replies

Professor Graham Hughes' Blog - December 2019

https://www.ghicworld.org/post/hughes-syndrome-december-2019?postId=5df763e8cc37d70018b60a1d MaryF

https://www.ghicworld.org/post/hughes-syndrome-december-2019?postId=5df763e8cc37...

MaryF

Administrator•5 years ago

8 Replies

Finally seeing a neurologist!!

After what seems like a life time I’ve finally received a date to see a neurologist about my memory problems!! Also tomorrow my doc is starting me on Warfarin...

After what seems like a life time I’ve finally received a date to see a neurolog...

Tomcat

•5 years ago

10 Replies

Racing heart and pounding head with topiramate?

My neurologist put me on 25 mg topiramate for 7 days, then increase to 50 mg. However My head and heart are pounding! Funnythe pharmacist said topiramate...

My neurologist put me on 25 mg topiramate for 7 days, then increase to 50 mg. Ho...

Debfurm

•5 years ago

3 Replies

Opiates and cellulitis ?

So I have chronic Pain from multiple fractures in my spine that I discovered after they were healed, T12 L1-5 and a few herniated discs in my neck. My Drs...

So I have chronic Pain from multiple fractures in my spine that I discovered aft...

Bubbalover

•5 years ago

6 Replies

Incontinence

Hi, I was wondering if anyone knows whether my double incontinence is due to Hughes Syndrome/Lupus? Have tried several things from the GP but won’t take any...

Hi, I was wondering if anyone knows whether my double incontinence is due to Hug...

Jolevans

•5 years ago

3 Replies

Pregnancy with clexane and aspirin success

Hello everyone A bit of history : I was diagnosed with APS after one miscarrige(I was extremely lucky to find a good rheumatologist). I was treated with...

Hello everyone A bit of history : I was diagnosed with APS after one miscarrige(...

RubyAndBlue

•5 years ago

9 Replies

London Bound in the New Year

Hello lovely people. I saw my Lovely consultant on Wednesday. I have now tested positive on 2 occasions for anticardiolipin antibodies. He is referring me to...

Hello lovely people. I saw my Lovely consultant on Wednesday. I have now tested...

pinkyandperky

•5 years ago

18 Replies

Professor Graham Hughes' Blogs - October and November 2019

https://www.ghicworld.org/post/hughes-syndrome-october-2019 https://www.ghicworld.org/post/hughes-syndrome-november-2019 Mary F

https://www.ghicworld.org/post/hughes-syndrome-october-2019 https://www.ghicwor...

MaryF

Administrator•5 years ago

5 Replies

Electric Shock sensation down one side of face.

Hi all Hope you are all doing well. I just wanted to ask for advice. Over a month or so ago I boarded a bus and banged my head on one of the ceilings within...

Hi all Hope you are all doing well. I just wanted to ask for advice. Over a mo...

Danielle2419

•5 years ago

2 Replies

Maybe not APS after all

As some will know I was diagnosed with cerebral APS approximately 2 years ago at Guys Lupus unit. At my last appointment as I am not responding to warfarin or...

As some will know I was diagnosed with cerebral APS approximately 2 years ago at...

Greenmil3

•5 years ago

30 Replies

Genetic testing

Very anxious to know what will come out of genetic testing 😬 Only thing i was told as blood was drawn is that they check kidneys, liver and how or what is...

Very anxious to know what will come out of genetic testing 😬 Only thing i was ...

Anna1511

•5 years ago

9 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for December 2019

Looking forward to the next decade

APS and link to breast implants? Is there one?

Heparin for APs?

Confused?

Holiday Fun

Micro Clots or not?

Erratic INR...

Presumed antiphospholipid syndrome and thrombotic thrombocytopenic purpura: An infrequent association

Merry Christmas and a happy new year everyone.

Update on itching

Merry Christmas to All and to ALL a GREAT Night

Itchy

Hamden Medical Journal - a paper from Prof Hughes

Body Itching

Just rant

Wishing you a very Merry Christmas

A great film/lecture - Antiphospholipid Syndrome (APS) in Psychiatry - Neuropsychiatric Manifestations

Professor Graham Hughes' Blog - December 2019

Finally seeing a neurologist!!

Racing heart and pounding head with topiramate?

Opiates and cellulitis ?

Incontinence

Pregnancy with clexane and aspirin success

London Bound in the New Year

Professor Graham Hughes' Blogs - October and November 2019

Electric Shock sensation down one side of face.

Maybe not APS after all

Genetic testing

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