Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for February 2017

Factor V Leiden

Hi. My dad has Factor V Leiden. He had a total hip replacement and just learned, 8 weeks post op, that the bone is not attaching to the new hip. Is this...

Hi. My dad has Factor V Leiden. He had a total hip replacement and just learned...

helpformydad

•8 years ago

6 Replies

Self testing

I notice quite a few people on here do self testing. I was diagnosed with APS and started on Coumidin. Once I was stabalized betw. 2-3, they said to go to...

I notice quite a few people on here do self testing. I was diagnosed with APS an...

dwheeler

•8 years ago

16 Replies

Heparin (CLexane) injections

Hi all, newbie on here but not to Lupus or Hughes syndrome! In addition I have another clotting disorder ( reduced activated protein C) Warfarin became...

Hi all, newbie on here but not to Lupus or Hughes syndrome! In addition I have a...

Julie_T

•8 years ago

25 Replies

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Fibro and Hughes

Hi all my name is Jayne I have aps and fibromyalgia aps diagnosed over 10 years ago and fibro about 5 I am having an issue with my appetite as I don't have one...

Hi all my name is Jayne I have aps and fibromyalgia aps diagnosed over 10 years ...

Fibroapsfighter

•8 years ago

19 Replies

Organ donation and giving blood

Am I right in thinking that I won't be able to give blood or donate organs because I have APS and possible lupus SLE?

Am I right in thinking that I won't be able to give blood or donate organs becau...

Hidden

•8 years ago

7 Replies

Recommendation for the aps charity news letter

Hi i was just wondering how many of u guys have signed up for the aps charity news letter? If so how useful is it? Im in 2 minds as i would like to learn more...

Hi i was just wondering how many of u guys have signed up for the aps charity ne...

gemgemz

•8 years ago

11 Replies

INR 4.2 and black and blue marks with APS

I had one doctor who had my INR target 2.0-2.5 and I always felt worried because if it went over a tad she changed my meds. Now with new doc I have a target...

I had one doctor who had my INR target 2.0-2.5 and I always felt worried because...

loretta1106

•8 years ago

36 Replies

Warfarin causing lightheadedness anyone?

Dose increased so has lightheadedness.

Wittycjt

•8 years ago

5 Replies

First time Post

i am a 47 year old man who developed this illness 9 years ago have fought the inclination to ever go on anything like this before because I really didnt wanna...

i am a 47 year old man who developed this illness 9 years ago have fought the in...

Alalew711

•8 years ago

4 Replies

Confused

Good everyone and I hope you are all keeping well! I joined this group as I am supporting my partner as he was diagnosed with APS in January which has caused...

Good everyone and I hope you are all keeping well! I joined this group as I am ...

JimmyandPaddy

•8 years ago

17 Replies

Maps specialist

Any apps specialists in the cardiff area please. Diagnosed in 2015 prescribed warfarin with one of 2-3 still fell unwell one not stable would like to see apps...

Any apps specialists in the cardiff area please. Diagnosed in 2015 prescribed wa...

Turner71

•8 years ago

1 Reply

Fed up!

Hi all I've recently started taking hydro/plaquinel I really think this medication is making everything worse having so many systems needle pain is much worse...

Hi all I've recently started taking hydro/plaquinel I really think this medicati...

Gilliansimba

•8 years ago

6 Replies

Headaches

Really struggling with constant headaches at the minute. Painkillers don't even touch the pain

Really struggling with constant headaches at the minute. Painkillers don't even ...

Hidden

•8 years ago

5 Replies

Long haul flight

Hi all, I've been medicated with aspirin and hydroxychloroquine for some time now after a retinal vein occlusion and then subsequent odd symptoms which led to...

Hi all, I've been medicated with aspirin and hydroxychloroquine for some time no...

jp83

•8 years ago

11 Replies

Home INR testing machines

I was wondering if any of you that home test would tell me the name and model of their home testing machine. I am having major problems as my Ins doesnt seem...

I was wondering if any of you that home test would tell me the name and model of...

SoulRebel-APS

•8 years ago

14 Replies

Trying to post on twitter but can't figure out how

Please help. I don't have anyone who is on twitter that I can ask. Sometimes just want to add a comment and can't. It's very frustrating. Thank you in...

Please help. I don't have anyone who is on twitter that I can ask. Sometimes ju...

Wittycjt

•8 years ago

3 Replies

Help with headaches/pain in back of head and neck 😩

Hi i was diagnosed with APS 3 yrs ago and i test possitive for lupus. I self test and take warfrin and have a target of 3. I just wondered if anyone could...

Hi i was diagnosed with APS 3 yrs ago and i test possitive for lupus. I self tes...

gemgemz

•8 years ago

23 Replies

My brother died

My older brother Bob who would be turning 60 on 3/7/17, dropped dead in his kitchen. They did a partial autopsy and pulled all boll and fluids. I begged him to...

My older brother Bob who would be turning 60 on 3/7/17, dropped dead in his kitc...

ZRHONDA

•8 years ago

17 Replies

Pregablin

Has anyone experienced any side effects from taking Pregablin within the first 6-8 months. I've been prescribed it to help with nocturnal seziures, in...

Has anyone experienced any side effects from taking Pregablin within the first 6...

MerylAnn

•8 years ago

7 Replies

Inr keeps crashing?

Two to three times a year inr crashes Did it this week . Inr was 4.1 and on target tested my self yesterday as normal had dropped to 2.3 My Range is 3.5 to...

Two to three times a year inr crashes Did it this week . Inr was 4.1 and on tar...

Tim_Thorpe

•8 years ago

19 Replies

Glasgow Specialist

Hi I'm trying to get referred to a Hughes specialist preferably in Glasgow or near by as I have family there I could stay with. There a few listed and I...

Hi I'm trying to get referred to a Hughes specialist preferably in Glasgow or ne...

margaretjo

•8 years ago

8 Replies

Well here I am...

I am stll in the hospital, but now I'm in a nursing home. I will go to assisted living on 3/23. Ththey got all freaked out because my PT/IN was 5.8 They held...

I am stll in the hospital, but now I'm in a nursing home. I will go to assisted ...

ZRHONDA

•8 years ago

4 Replies

A round up from the papers

1. http://www.dailymail.co.uk/health/article-4237968/Drug-used-treat-arthritis-save-stroke-patients.html 2....

1. http://www.dailymail.co.uk/health/article-4237968/Drug-used-treat-arthriti...

MaryF

Administrator•8 years ago

1 Reply

HELP PAIN MOVING, WALKING, RAISING FROM SITTING, SLEEPING!

Hi, I'm back again as am very disheartened with lack of knowledge from my local doctors and specialists due to my recent problems. At the beginning of last...

Hi, I'm back again as am very disheartened with lack of knowledge from my local ...

MerylAnn

•8 years ago

7 Replies

heavy waves and pain in my brain when ears tinnitus

i start having tinnitus for many years ago! i enjoyed it at the beginning,it feels like under the water!!!as years goes i began to feel my head getting heavy...

i start having tinnitus for many years ago! i enjoyed it at the beginning,it fee...

ninawa

•8 years ago

5 Replies

Autoimmune diseases and Rh- blood type

I am 34 and I have HashimotosDisease, Severe Asthma, Vitiligo, I also have O- blood type... Does anyone think these two are connected? I mean autoimmune...

I am 34 and I have HashimotosDisease, Severe Asthma, Vitiligo, I also have O- bl...

Nicoleandrea

•8 years ago

3 Replies

Too many diagnoses

APS confirmed 2010. CVID confirmed 2015. Also vasculitis, non ischemic cardiomyopathy with heart failure, 2001 non Hodgkin lymphoma. BUT worst symptoms...

APS confirmed 2010. CVID confirmed 2015. Also vasculitis, non ischemic cardiomyo...

ndstephens49

•8 years ago

15 Replies

Pradaxa

Hiya, I'm on warfarin and was talking to the doctor today who asked why I wasn't on one of the new meds. I've been on warfarin for 9 yrs, and it is a pain, but...

Hiya, I'm on warfarin and was talking to the doctor today who asked why I wasn't...

Suejane

•8 years ago

11 Replies

Lupus

Hello any help on lupus diagnosis

Kiedra

•8 years ago

12 Replies

if you were switched from warfarin to clexane/lovenox, what differences, if any did you notice?

Besides being able to eat/drink whatever you want... did the memory fog return or any other symptoms change or occur? Want to get your facts, I know you aren't...

Besides being able to eat/drink whatever you want... did the memory fog return o...

Wittycjt

•8 years ago

5 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for February 2017

Factor V Leiden

Self testing

Heparin (CLexane) injections

Fibro and Hughes

Organ donation and giving blood

Recommendation for the aps charity news letter

INR 4.2 and black and blue marks with APS

Warfarin causing lightheadedness anyone?

First time Post

Confused

Maps specialist

Fed up!

Headaches

Long haul flight

Home INR testing machines

Trying to post on twitter but can't figure out how

Help with headaches/pain in back of head and neck 😩

My brother died

Pregablin

Inr keeps crashing?

Glasgow Specialist

Well here I am...

A round up from the papers

HELP PAIN MOVING, WALKING, RAISING FROM SITTING, SLEEPING!

heavy waves and pain in my brain when ears tinnitus

Autoimmune diseases and Rh- blood type

Too many diagnoses

Pradaxa

Lupus

if you were switched from warfarin to clexane/lovenox, what differences, if any did you notice?

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