Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,442 members•10,641 posts

All posts for August 2017

How nice to be back amongst friends

Thank you all for your good wishes and concern it is so very kind of you all. My local hospital here in Swindon was an absolute nightmare with little or no...

Thank you all for your good wishes and concern it is so very kind of you all. My...

Jillymo

•7 years ago

26 Replies

Education

Can someone suggest the important points about Hughes that I can tell my GP? I am interested in the thyroid tests and the three conditions that goes with...

Can someone suggest the important points about Hughes that I can tell my GP? I ...

Salmonious

•7 years ago

10 Replies

Bleeding from Warfarin

Is there anyone of you who has had a certified bleeding from a too high INR using Warfarin. If so, at what INR, taken in the vein, at an approved hospital...

Is there anyone of you who has had a certified bleeding from a too high INR usin...

Lure2

•7 years ago

22 Replies

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Anniversary

Anniversary - But not a good one Ha Ha . 8 years ago this Friday Sept 1 2009 at 3:30 A.M. i signed myself into ER with what I thought was a strained...

Anniversary - But not a good one Ha Ha . 8 years ago this Friday Sept 1 2009...

jetjetjet

•7 years ago

12 Replies

Medication given for Aps

I am in hospital at the moment please tell me what medications are used for the condition ? Despite not being able to tolerate warfarin and asprin together is...

I am in hospital at the moment please tell me what medications are used for the ...

Jillymo

•7 years ago

23 Replies

Tia not traced in mri

I have tia on 23 august....but in mri there is no symtoms of tia and blood clotting showed....i consult 4 top doctors...2 said ..that u have a tia and other 2...

I have tia on 23 august....but in mri there is no symtoms of tia and blood clott...

Rabada

•7 years ago

10 Replies

Numb tingling lip, weakness in left arm?

For the most part I live a life free of APS symptoms. I'm a full time special education teacher in Wash DC. I was diagnosed in 2005 as the result of a...

For the most part I live a life free of APS symptoms. I'm a full time special ed...

Holley

•7 years ago

10 Replies

APS how it changed my life.

Hi everyone. I'm 64 and just diagnosed with APS. I am seeing a specialist in hematology who suspects I've had active APS for many years but misdiagnosed until...

Hi everyone. I'm 64 and just diagnosed with APS. I am seeing a specialist in hem...

NorrieW

•7 years ago

28 Replies

Cold and hot feet

I have freezing cold feet during the day and burning feet in bed at night....only on the top of my feet... does anyone have any idea what the cause of this is?

I have freezing cold feet during the day and burning feet in bed at night....onl...

52366

•7 years ago

2 Replies

Genetic Testing

Do you have to be off of blood thinners to get accurate results for sticky blood. When I went in the hospital with pulmonary embolisms, the lab said I had...

Do you have to be off of blood thinners to get accurate results for sticky blood...

Redheadchik

•7 years ago

1 Reply

Potential Diagnosis...

Hello everyone, I'm new here having searched for a place I can ask questions regarding APS as I'm worrying a bit..! I gave birth to my 4th child (3rd birth as...

Hello everyone, I'm new here having searched for a place I can ask questions reg...

MemmaJ

•7 years ago

3 Replies

Should I take Plaquenil

I am a 53 year old female who has tested positive to all 3 of the APS antibodies (very ¬high levels). Although I’ve never been pregnant or had any events I...

I am a 53 year old female who has tested positive to all 3 of the APS antibodie...

Lulutay

•7 years ago

11 Replies

Possible clot in leg

I ha have had cramping in my right calf for almost 5 days now and I don't have insurance right now and im not sure what to do. I just found out last week that...

I ha have had cramping in my right calf for almost 5 days now and I don't have i...

guest2927216

•7 years ago

14 Replies

Referring Drs for APS

I live in Nj but I am close to Philadelphia..can some refer me to there Drs for APS or show me how to find Drs on here..thank you

I live in Nj but I am close to Philadelphia..can some refer me to there Drs for ...

Catnip1012

•7 years ago

5 Replies

Confused with Diagnosis

Hi I am new here and need some input here..i have tested positive twice in 20 years for sms which was low titre...through the years have had neg ANA'S..a few...

Hi I am new here and need some input here..i have tested positive twice in 20 ye...

Catnip1012

•7 years ago

11 Replies

Up to date with APS/THYROID/LUMPS on the hand etc

I last wrote on here because of the conflicting opinions about all my health problems. I'm on Riveroxoban plus 175mg of Thyroxine. I still don't & cant find...

I last wrote on here because of the conflicting opinions about all my health pro...

Teanna

•7 years ago

11 Replies

views

anyone who can tell reason for sudden pain on the left side(the part near the ear)of the brain?

anyone who can tell reason for sudden pain on the left side(the part near the ea...

saamira

•7 years ago

10 Replies

"CIC" , or Circulating Immune Complex used to detect Lupus Anticoagulant Antibody if already commenced on Warfarin?

My son's Pediatric hematologist is suggesting I be tested for Lupus Anticoagulant since my INR is so labile ( unstable) . I explained to him that I really...

My son's Pediatric hematologist is suggesting I be tested for Lupus Anticoagulan...

KellyInTexas

Administrator•7 years ago

18 Replies

Mosquito Bites

Looking at an old post, do others find they are a target for mosquito bites? When ever I'm away I get pounced on by them and end up with big angry red sores.

Looking at an old post, do others find they are a target for mosquito bites? Whe...

missmolly

•7 years ago

29 Replies

APS in pregnancy - clexane injections

I am hoping to connect with someone who is/has taken clexane throughout pregnancy. I was diagnosed with APS back in May this year due to recurrent...

I am hoping to connect with someone who is/has taken clexane throughout pregnanc...

My4angels

•7 years ago

12 Replies

Bleeding

On warfarin 7 months. Yesterday blood in urine, then lot, heavy bleeding . Bright red. From kidney and bladder I went to primary doctor. Cardiologist was...

On warfarin 7 months. Yesterday blood in urine, then lot, heavy bleeding . Bri...

Nkeskin

•7 years ago

2 Replies

jerking of right leg after a stroke

hi everyone . my partner had a stroke 10 weeks ago he is getting on ok and is doing most things on his own now. but one thing is his right leg at night when...

hi everyone . my partner had a stroke 10 weeks ago he is getting on ok and is d...

zack55

•7 years ago

3 Replies

MHRA Press Release: Batches of NovoPen Echo & NovoPen 5 recalled due to risk of fault

Borrowed from 'Clutter' who is an administrator on the Thyroid UK forum on here: People with diabetes who use NovoPen® Echo® and NovoPen® 5 should check to...

Borrowed from 'Clutter' who is an administrator on the Thyroid UK forum on here:...

MaryF

Administrator•7 years ago

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APS SPECIALISTS Hampshire, UK

Does anyone know of any specialists in anywhere near Portsmouth? And can suggest how I get an NHS consult done?

Does anyone know of any specialists in anywhere near Portsmouth? And can sugges...

Rosiek90

•7 years ago

1 Reply

Dipyridamole

Hello all. I've been doing some reading on Dipyridamole (Persantine in US). Does anyone take this drug and/or have any thoughts on its use in APS? What...

Hello all. I've been doing some reading on Dipyridamole (Persantine in US). ...

ndstephens49

•7 years ago

1 Reply

I just feel sooo ill & im getting worse!

Hello again, it seems I'm always moaning, but don't know what else I can do. I'm lupus anticoagulant positive I also have; Sjogrens, Lupus, Fibromyalgia, 4...

Hello again, it seems I'm always moaning, but don't know what else I can do. I'm...

WendyWoo50

•7 years ago

27 Replies

Watch me inplant

Anyone heard of this "Watch me Implant" that was just advertised? It is suppose to take the place of Warfin. It would be nice not to have to take anymore...

Anyone heard of this "Watch me Implant" that was just advertised? It is suppose...

Salmonious

•7 years ago

9 Replies

Anti inflammatory?

I've been diagnosed with having significant osteoarthritis in my lower back and sciatic joint. My chiropractor said anti inflammatory drugs can help but he...

I've been diagnosed with having significant osteoarthritis in my lower back and ...

Saralmac

•7 years ago

9 Replies

Warfrin

Seems my aps is getting worse had stroke then mini strokes now since my last ct scan shown I've got micro clots on my brain prof hunt told me I had had strokes...

Seems my aps is getting worse had stroke then mini strokes now since my last ct ...

Tim_Thorpe

•7 years ago

17 Replies

Wafrin

My dose of warfrin keeps rising over the last fees years to try to get my inr target of 4 Why is this ? Is my aps getting stronger or is it something else

My dose of warfrin keeps rising over the last fees years to try to get my inr ta...

Tim_Thorpe

•7 years ago

3 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for August 2017

How nice to be back amongst friends

Education

Bleeding from Warfarin

Anniversary

Medication given for Aps

Tia not traced in mri

Numb tingling lip, weakness in left arm?

APS how it changed my life.

Cold and hot feet

Genetic Testing

Potential Diagnosis...

Should I take Plaquenil

Possible clot in leg

Referring Drs for APS

Confused with Diagnosis

Up to date with APS/THYROID/LUMPS on the hand etc

views

"CIC" , or Circulating Immune Complex used to detect Lupus Anticoagulant Antibody if already commenced on Warfarin?

Mosquito Bites

APS in pregnancy - clexane injections

Bleeding

jerking of right leg after a stroke

MHRA Press Release: Batches of NovoPen Echo & NovoPen 5 recalled due to risk of fault

APS SPECIALISTS Hampshire, UK

Dipyridamole

I just feel sooo ill & im getting worse!

Watch me inplant

Anti inflammatory?

Warfrin

Wafrin

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